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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged, understood.

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Tuesday
Dec152009

Of Birds and Bees

We all bring a set of issues to the table of grief, whether it be a side-dish of marital problems, a salad of anxiety, or an appetizer laced with previous tragedies which this seems to compound. There's the bottle of money woes, the dash of low-esteem, and perhaps even (hidden under the napkin) the telltale odor of previous bouts with depression. All of these shade and color our experience, and shift our individual abilities to cope with babyloss. I'm not here to rate which are at least edible, and which could stand to be thrown into the compost, but I am going to discuss one particular problem many bring to the table and set down with a thunk, with the grace of an overcooked, 25 pound stuffed turkey.

That would be infertility.

Babyloss after -- during -- infertility is it's own peculiar injustice. For starts, infertility in and of itself can create it's own side excursions into mental trauma. As one avid reader here said to me in person recently, infertility is its own kind of grief.  For starts, what comes naturally in the pickle commercials and to your friends who seem to just look at each other naked and procreate, for you is not meant to be.  Frankly, that alone deserves some mourning.  There's the monthly reminder of failure, which you try hard not to internalize, but it's hard to go through more than a year without getting a bit mopey about overall body image and capabilities. Add to this the strain on marriage, which you try and avoid by making sex fun! And unto itself! But seriously, you're both eyeballing the calendar and know and wonder when it will be fun again, and secretly debate who exactly is letting whom down. Meanwhile all of your friends are pregnant and having babies and wondering what in hell you're waiting for? Time's a ticking! You go to your thousandth baby shower with a stiff upper lip and cry on the way home.

You finally go to an RE (that's Reproductive Endocrinologist) who runs you through a pantheon of testing. If you're lucky, you've climbed online and read up on this stuff so you're prepared for the discomfort of mulitple blood draws on various days of the month, watching radioactive dye run through your fallopian tubes, or having your uterus filled with liquid and monitored via ultrasound, or an uncomfortable uterine biopsy. There's the indignity of going in on day two of your menstrual cycle for a vaginal ultrasound to check the status of your ovaries, and the ever-popular post-coital testing where you run into the office when you should be lounging naked with a glass of something and a cig, and have them take a sample of everything that you didn't leave on the mattress to see if sperm can indeed make it through the secretions that you produce. And don't get me started on the discussion with your husband, which starts with "Honey, I really want to have a baby" and ends with "And so you need to go into the office where they'll hand you a jar. If you're lucky, this office may even have some inspirational magazines for you as well."

And that's just to get a diagnosis. If there is one to be found. Like so many things medical, after all of this, the answer is often "unknown."

Because now we know, maybe, or at least have an idea, there might be surgery to rid of endometriosis or fibroids or a blocked tube. Or IUI (Intra-Uterine Insemination -- you know, the old fashioned way, except with a turkey baster). Or if your husband presents a problem in the equation, IVF with ICSI (Intracytoplasmic Sperm Injection. Say that 10 times fast). Drugs are dispensed, often to yourself with syringes and detailed instructions on what needs done intramuscularly. Sometimes you skip right to IVF (In Vitro Fertilization), and sometimes there's a mind-blowing discussion about dead or absent sperm or a lack of eggs or a misshapen uterus that ends with the RE telling you about gamete donors and/or surrogates. Sometimes there's the unexpected surprise that all of these miscarriages you've been having are caused by a genetic problem carried by you or your spouse. Sometimes there's simply a vial of pills, sometimes there's the fluke of luck while waiting for the next round of shots to start, and sometimes there's the hellish conclusion that this will not end the way you intended when you walked in.

I should pause here and remind people who are staring at this jumble of acronyms and procedures like hieroglyphics that much of this testing and prodding and medicating and inseminating is not covered by insurance. Unless you're lucky enough to live in a small handful of states (or countries) that have rightly deemed infertility a medical problem necessitating treatment and hence coverage (and you're lucky to have insurance to begin with!), you're paying for this out of pocket. According to Resolve, the average IUI runs $865, depending on the medication needed; IVF's average (that's average) $8,150K, NOT including medication (which runs, on average, an additional $3,000-5,000). (For the record, I just used some banal progesterone, apparently necessary to keep embryos attached to my uterus but not covered by my insurance. The cost per 4 weeks of a daily single dose was $800, and I needed 8 weeks. And I consider myself lucky that's all I needed this time around.)

I know people who took out second mortgages for ART (Assisted Reproductive Technology), and people who used inheritances, and people who drew out of their retirement accounts and/or borrowed from family. All to achieve what many can do after turning off the late night news and climbing under the covers.

But let's say you get lucky, and get pregnant.

Worth it, right?

And now let's say your baby dies.

:::

Back up for a moment to what this reader said to me: Infertility is it's own kind of grief. It's a monthly dash of hopes, a monthly reminder of promises gone down the drain, often with the checking account. It's the thought when an embryo is tucked safely inside you that this is it! This is life! This is our life.  This blob will be my child! Only to be greeted by one line and blinding white two weeks later. Multiply this over, and over again. Possibly for years. Possibly having set your limit -- your emotional and financial finish line on the next attempt: this one is the last one. This one works, or we grieve never having children of our own, and move on to something else. Hope and faith and trust and marital communication may have left the building long before the death of a baby. You may have been desperate, on that last attempt, bargaining, wondering if anything would work.

In that regard, the death of a baby is part of this winding vine already invading your life. It's another loss, another dash of hopes, but this time on a much larger scale because . . . well obviously, it's different to hold a dead child than to stare at a negative pregnancy test, but there's also the thought that That might have been it.

Because you can't simply wake up one morning and say, Let's try again. As hard as that discussion is to have another baby after the death of the last, if you're infertile it's more complicated. There isn't the subconscious knowledge that Well of course this will work again like it's supposed to.  You need to pick up the phone and explain to people what happened, and what you'd like to do next. You need to go through a lot of the rigamrole again. You may need to alter how many embryos you transfer, or depending on why your child died, move to gamete donation or surrogacy. Perhaps you need to now fork out for PGD (Pre Implantation Genetic Diagnosis) (Incidentally, another average of $3,500 on top of your IVF expenses) to make sure any genetic problems aren't being passed along. You need to set to set a new limit, a new finish line, and further deplete your bank account. And each month that passes with an HCG (Human Chorionic Gonadtropin) test of two or less, you sink further into a bleak place. Perhaps that child was it. The only time this would work.

And sometimes, that is it. There are people here in this community, who read here, who reached the end. The end of the line. The money tree dried up, their emotions were frayed after years of trying and failure, and they needed to stop and move on. Move on with another life than the one they originally envisioned when they simply set out to have a baby of their own making. And that, putting behind not only a dead child but the attempt to have another of your own, is it's own crucible of grief. Inextricably wound up with the death of a baby that we're all familiar with, but branching out and encircling so many other parts of your conscious and marriage and identity and being. And like any loss, this deserves its own moment of grief, too.

Did you seek Infertility treatments in order to get pregnant with your child(ren)? Are you having to with a subsequent child? For you, how does your babyloss fit in with infertility -- does it stand alone, or has it become a chapter or branch within a greater struggle? Do you have limits? Have you met them already? 

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Reader Comments (35)

I'm lucky and I know it. We have never had much problem conceiving - 4 cycles for the first miscarriage, one for the ectopic, one real try for (2 cycles though) for Gabriel. I've had good friends go down that IF route and I've seen up close (as close as you can get without going through it yourself) how it works and just how little I can really understand all the depths of it - or at least how little one can truly understand from the outside.

I personally am in that gray area known as recurrent miscarriage/repeat pregnancy loss/different kind of fertility issue. I did all my bloodwork last month and my shg this morning with my OB practice's RE. I found out I have a heterozygous MTHFR mutation, and a cervix damaged at the internal os by my cervical pregnancy. Which leaves us far more fortunate than probably 97% of people going through IF and a lot less fortunate than most normal couples. For us, it's again that gray area of no real issues between sperm and egg meeting, but problems occurring once they've hooked up - not quite infertile, not quite subfertile, but nowhere near normal, either.

I'm lucky to have a recurrent miscarriage diagnosis that insurance doesn't balk at paying for, and to live in a state where IF testing coverage by insurance companies is mandated, though treatments aren't (and would be out of pocket if we were required to go that route). I'm lucky that a lot of women who have dealt with the heartbreak of IF have developed protocols that leech over into testing and treatment for me, the habitual aborter with the crazy pregnancy history.

I think it's a special kind of pain to have gone through so much to get pregnant and to lose your child. (Just as it is a special kind of pain to go through so much to keep a pregnancy and lose your child. Or to know there is a defect which may take your child's life and have to make those choices.) An extra twist of the knife in losing a child after infertility or dealing with infertility after losing a child. Something that I can sort of understand and that tugs at my heartstrings just a little more, I guess. Maybe I shouldn't respond at all, since I'm not really in that group. But I guess I would want to reach out to anyone there and offer an extra squeeze or pat on the arm or hug.
December 15, 2009 | Unregistered Commentereliza
I know it sounds kind of insane, because we've gone just about as high tech as you can get, but I've never thought of myself as experiencing infertility. I always worry that I'm going to say something that sounds idiotic or thoughtless or cruel to those for whom infertility has been an added layer of loss.
December 15, 2009 | Unregistered Commenterniobe
I started blogging around babyloss, but it took years of IF struggles to even get to a stillbirth. I've always felt a tad bit lonely as the majority of bloggers in my circle didn't have issues with getting pregnant. Loneliness, not jealously or anything like it though - because once you are here in babyloss land it sucks no matter what roads led you here.

For me, IF before and after loss has been soul crushing. Especially as my IF got worse post stillibirth complications and left us with only IVF left. Here I am, with this big gaping wound from the loss of my son that everyone can see and I suffer silently month in and month out afterwards. Having people look at me and wonder when we are going to "try again" not knowing that we have spent tens of thousands of dollars doing exactly that. Having people say, I hate to ask, but...

When we came to this last cycle, our final IVF and it failed (or we were told it failed, but that's a whole other story), I stumbled back into that dark, dark place I was in two years ago. I used to say thank goodness for that Joy of Pregnancy experience we had. It really was lovely. But now, I think maybe that was naive. Maybe the door should have slammed shut way back when, it might have been easier to deal with rather than this IF, stillbirth, IF, Tubal, IF, Miscarriage, IF, Miscarriage, IF Failure.

I'm not a better person after all this. Sure, I have more empathy for others and I am generally calmer. But I am deeply, deeply wounded.
December 15, 2009 | Unregistered Commenterg$
This post really touches me and where I am in this babylost journey. I struggled with IF for several years before finally conceiving my daughter Kara on our 3rd IVF attempt (after numerous clomid cycles, IUI's, and a plethora of tests.) At 37.5 weeks during a routine ultrasound, we could not find her heartbeat. We knew she was genetically perfect, we had the embryo tested before transfer. There simply was no explanation. It has been 18.5 months since her loss and not a day goes by that I don't grieve for her, and grieve for the family that we could/should have had by now. Everyone around me has sex and gets pregnant, giving birth easily to one after another, and my husband and I are left broken hearted. On our last try, we decided to use DE and I'm finally pregnant. But the cost was tremendous. Over $100K in IF treatments and medications, fees, tests, etc. and a donated gamete, and here we are. But neither of us thinks we'll actually bring a baby home alive. That's a whole other world that we don't live in. I can't even imagine being able to hold a live baby of my own in my arms. IF has ruined me, and losing my baby has broken the last bits of whoever I was before - when I was happily pregnant and niave to all of the ways babies can die.
December 15, 2009 | Unregistered CommenterKara's Mom
Our twins were the result of a frozen embryo transfer. I sometimes wonder if it were better if we hadn't transfered them. Would that be better? I really don't know.

Since losing out twins, I am really hoping that insurance will someday cover IVF so that people can afford to transfer just one embryo. This should result in a decrease in NICU costs and infant mortality due to complications associated with multiple gestation pregnancies.

Anyway, after the death of my babies, IF seems like a much smaller problem in comparison, but it is still real. When I first experienced IF, it was the end of my world. I just didn't realize things could get worse. And, if you're having trouble conceiving after losing a child, that is just so unfair.
December 15, 2009 | Unregistered CommenterMel
fantastic post. it really puts everything some of us went through into the massive perspective that it deserves, but that i myself so rarely give it. the two years we tried to have children...the holidays...living through friends' pregnancies...the tests and procedures and failed cycles...all felt so insignificant compared to the huge loss of two little lives. but you're right that it did and does deserve its own separate grief. and i at least often forget that we did go through all of that on top of losing our first two children. how can i forget?? but i do. i think if i didn't, i would go through life with an even bigger chip on my shoulder. thank you for putting this into words for those of us who went through it.
December 15, 2009 | Unregistered Commenterreba
Thank you so much for the wonderful post. After our IF journey (a fairly easy one compared to some others I know) my husband and I were pregnant. Then, at 17w6d we prematurely delivered our twins. We had spent years looking forward to bringing children into this world. We had spent thousands of dollars trying to get pregnant. This wasn't supposed to happen.

In an effort to find support from those who've walked in similar shoes I turned to the internet and found many blogs that I could kind of relate to. Not many covered infertility AND loss of children. Not only do people that suffer from both of these grieve the loss of our children, but we also grieve the time, energy, money, hopes and dreams that we had been planning and praying for that, with are children, are now dead. And now, after our children have died, we have to make the choice of whether or not we will again stand at the back of the line, hoping that someday, after we wait long enough we get to ride the pregnancy train again. But next time, we won't enjoy the ride as much.
December 15, 2009 | Unregistered CommenterBrianna
Infertility IS it's own kind of grief. You are right in that. And in so, there are layers. Layers upon layers. It is impossible to process. It is impossible to feel that amount of pain in one moment. Every element of every daily experience touches on this in some way and taunts.

We hope to adopt in the future. My experience with loss seems to be preparing me for the realities that face a birth family more than the average infertile mother. They're not the same, but I can relate in ways that I wouldn't have had we not lost our sweet girl. But still. If we bring home someone else's baby, s/he will never be OURS and ours alone. Even if a birth family wants a closed adoption. Our child will always have another family, will always come from somewhere else. Will always be missing that part of him/her and naturally be curious and grieve that fact. And I am willing to take this on whole-heartedly, as I need so badly to parent another baby. But the concessions? They're overwhelming sometimes.
December 16, 2009 | Unregistered CommenterAnna
I havnt had a baby die, as such. But I have lost 5 pregnancies in the first trimester, one particularly painful loss at 12 weeks, when I thought I was "safe". I have no living children. Part of whats so frustrating about recurrent pregnancy loss coupled with infertility, is that there is so much negotiation every time. Negotiating money, sex, putting all your other plans on hold, yet again. Its exhausting. Not to mention just trying to pull yourself together emotionally. I think much of the grief gets put on the back burner so you can keep plodding along and not have a mental breakdown. We have not thrown in the towel but we are approaching that time. I think one more failed pregnancy will put me over the edge, and the money is in short supply. Adoption also costs the earth, it can feel like injustice after injustice.
December 16, 2009 | Unregistered CommenterEmily
I have four children, three living. My first two children were very easy to conceive, my third took several months (which is likely a short time to many people), and my fourth was easily conceived (but, she was stillborn). Four months after E died, I had cancer. My choice to even try for another baby was, hopefully temporarily, taken from me. Just recently, my bloodwork finally game back normal. So I hope to try again. And I hope it's easy. But I know I'll feel despair if it isn't. I am sorry to those of you for whom it isn't easy. I am so sorry.
December 16, 2009 | Unregistered CommenterOM
I wonder all the time, were the boys it? Were they all the baby I'm going to get? I was so stupid, so naive. We got pregnant with them the first time we tried. I walked around the doctor's office thinking, we are soooo lucky. And then they died. And then they discovered I have a balanced translocation which causes recurrent pregnancy losses. I've had 5 miscarriages since losing the boys in 2008. In fact, this is the first Christmas I won't be pregnant in two years. We've taken steps to do embryo adoption (I'd love to hear from people who've doen this) and egg donation (again, email me if you have had good experiences with this) after the first of the year. But that's it. That's all we can afford. Every RE we've met with has immediately jumped to IVF with PGD but then when we discuss the odds of a successful pregnancy, they can't really give us much hope but they are still willing to try for a mere $20k. No where else would you be asked to spend $20k on something that more than likely won't work. I mean would you spend $20k on a car that probably won't run...or may run 25% of the time? And don't even get me started on adoption...Anywho.... I know, it's not the same as a car but I'm so tired of my reproduction being treated like a goods and services transaction.
December 17, 2009 | Unregistered CommenterMartha
Thanks for writing this post. I've been thinking alot about infertility myself lately, as I near the time when I have the green light (by my OB anyway) to conceive again, just as the one-year mark of my last try resulted in the twin pregnancy and loss of my two little girls is passing. Do I want to go there? Can I take the stress before conception, if any, compounded by the stress that would surely follow? I'm not sure. I fantasize about getting that suprize, "OMG, I'm pregnant!" scenario, which I know is highly unlikely.
Do I want to feel as though everybody and their brother has gotten a look at my nether regions, and beyond? The, "We have a student here today..." followed by my feigned jolly response with just a touch of self-depricating sarcasm, "Sure, the more the merrier!" Do I want tofeel like a science project surrounded by labcoats during a time that should be, in a perfect world, one of intimacy and love between my husband and I alone?
I too, wish "trying again" were just that simple. Instead it is a calculation, pros and cons, percentages, profit vs. cost. I know hubby doesn't want me to take all those meds again. I know I don't want another multiples pregnancy. I know my body isn't up for that challenge again. What it will take to be the end of the road for me, I'm not sure. I do know I want another baby. My little boy reminds me of what Im missing out on with my girls every day. It is ironic that he has been both my saving grace and some salt in my wounds in that way. And I know, for certain, that he was worth it.
December 17, 2009 | Unregistered CommenterHeather
For me - the recurrent pregnancy loss was a form of infertility - basically, the inability to produce a living child. This was after discovering the tiny little detail of not ovulating on my own and "fixing" that, only to find out that dh also had a tiny little detail called a varicocele and then figuring our way around that too to then discover that now I can get pg - whoo hoo! Now I can't stay pg. Not so whoo hoo. The fact that my very first pg ever - though a rocky one - did go pretty much to term and resulted in a living child was my lifeline through the subsequent losses. All I had to go on was I had done it before - maybe I could do it again. So, each time we started ttc - we queued up the pills, the shots, the lab work, the scans, the appointments and held our breaths waiting for that positive hpt and THEN, we walked on egg shells. Life and survival all measured in increments of weeks and mIU. Then when we were looking at years invested in injections, follicle scans and seven losses - I'd had enough. I had 3 kids (two that had been preemies) and even though I had always wanted at least 4 kids, I still had 3 more than I thought I would end up with during those years of loss after loss after loss. Aside from which - I really had hit my brick wall. For me - the recurrent loss was the bigger struggle. There really weren't any pills or magic bullets to keep me pregnant. My primary infertility - that of annovulation, and dh's limited but healthy sperm, were a piece of cake comparatively speaking. It took us a little while - but we found our way around it - lucky things that we were at that. Seven miscarriages though - THAT was the main theme for us.

Interesting to note though, is that so many times during those years I said "I quit" - whether from exhaustion of heartache and heartbreak or just all the gyrations of trying to conceive and yet, just when time would start drawing to the point of too late for that potential cycle, I'd dive back in again. But, that last time - right in the middle of a cycle of injectables and literally right in the middle of AN injection, I was done. I knew it, I felt it - I wasn't just throwing a fit, I was really, truly done. That was my last injectables cycle. Even now - almost 8 years after the fact, I cannot think about drawing up another syringe without feeling sick.
December 17, 2009 | Unregistered CommenterJuliaS
I well remember the extra layer of anxiety, panic that accompanied our loses throughout Infertility treatments before our son was born. That relentless question of whether or not we would ever be parents was all around us, all the time.

After the birth of our son, we eventually returned to treatment. It was hard, but not as hard. And it was so much easier to draw the line, to say "enough is enough" and be the parents of an only child.

For those of you who had to move on without a child, my heart aches for each of you. I wish for you peace and healing.
December 19, 2009 | Unregistered CommenterKathleen
Hubby and I have spent so much money that I want to cry about that alone, and it's only been a few months. This is the last month that hubby will try and I feel so hopeless.

It pisses me off that everyone (my family & some friends) dismissed the fact that we could actually have problems ttc, and I feel a heap of emotions around this, because it's not happening as easy as they said it would. It wasn't like I believed or didn't believe them, it's just that they would dismiss our loss and say "oh well you're both very fertile, you shouldn't have any problems..." I feel almost as if their words were and have been a curse.

I pray every day to make me give up this desire for a baby. I don't pray any more for babies, I can't stand the heart-ache.

Thanks so much for this post..I was wondering where in all of this do I belong. I don't know if I do or don' but being able to see where others are coming from is something that I need right now.
December 20, 2009 | Unregistered CommenterSalma
Wonderful post. My Devin was the result of IVF after months of testing and treatments that didn't work - and a failed IVF cycle. When I got pregnant we truly thought we had made it, overcome that obstacle, achieved our goal. When he died I kept saying to the ultrasound tech, "He can't be dead, he's our miracle." How could we go through ALL of that, just to have it taken away right at the end? It made no sense. It still doesn't. And then we were faced with more IVF cycles just to get pregnant again. That was the worst kind of hell - knowing my first son, my baby, was dead, and never knowing if I could ever get pregnant again. Sure it happened once, but what if that WAS our miracle? What if that was all we ever got?

I am lucky enough to have one of those subsequent IVF cycles work again, and I am pregnant. But it doesn't feel like the victory that my first pregnancy was. Now it just feels like I'm halfway there, teetering on the edge of insanity once again. And we know that if this one dies, too, that we're done, we're at the end of our road.
December 20, 2009 | Unregistered CommenterNatalie
Beneath the depressed fog of clomid, I didn't realize how easy I had it with my first pregnancy. We conceived our son on the 5th cycle of cllomid. My depression lifted and I loved my pregnancy. I was unaware.

2009 has brougt me 3 pregnancies ( all medicated with femera/ IUI): lost at 10 weeks, 4.5 weeks, and I'm currently at 14 weeks and going well. My state of mind is another thing. After the 10 week loss, I was distraught. I could not believe that I could have gone through so many cycles only to loose a pregnancy. That miscarriage left me raw and brought anxiety and fear issues I've had all my life to the surface. The 4.5 week loss was a confirmation of the long road I saw before me.

Then with our 14th cycle, I was pregnant again. Four ultrasounds in the first 12 weeks and using my home doppler once a day have yet to convince me that this baby is sticking around. My losses have been early but this anxiety will be with me all 40 weeks. I'm trying to cope but the "dead baby dreams" are still around about once a week.

Infertility tried my patience. It tested my trust in God/ universe. Miscarriage all but destroyed that. Now I trying to recover some sense of trust, faith. Maybe then, I can follow with joy with this pregnancy. Enjoy the gift I've been given.
December 20, 2009 | Unregistered Commenterhil
i conceived my daughter easily but we lost her at 39 weeks, reason unknown, and the autopsy showed her to be completely healthy. now i feel like my body is so out of whack that we're going to add infertility to the list of devastations.

thank you for this post.
December 21, 2009 | Unregistered Commenterbeth
Thank you for this post.

In three years I have had three early losses. I've only ovulated literally a handful of times, and don't ever ovulate without intervention. We're not even sure what the exact cause was for our losses, which adds another faucet to the whole ordeal. Wondering, if we do try again, will we just keep losing babies... We're now on a long break trying to regroup after our last loss.

It weighs heavy on me, knowing we've struggled for so long and spent so much energy and money into this dream- to have it dashed repeatedly in one form or another. We've truly reached our limits, emotionally and financially. Constantly mourning what almost was, what may never be, some days it's too much to bear. I've lost faith in my body, in science, in pregnancy, in what should have been the simplest thing. All the would-have-beens and could-have-beens are haunting. Finding the strength to go on came harder with each passing month, each let down- each loss was almost debilitating. Yet somehow I kept putting one foot in front of the other. And now, I'm resting, waiting to figure out where that next step should be. Knowing I should have already been out of here with my babies I wanted more than anything, but I'm not.
December 21, 2009 | Unregistered CommenterAnother Dreamer
i conceived fairly easy with silas- we stopped using birth control about a year and a half before, but we weren't actively trying the whole time. i guess we could have gotten pregnant in that time, but we didn't.

now, 15 months later, we're still at it for baby #2. we did 3 cycles of clomid/iui that did not work. i've been doing all the natural methods you can think of. most likely next month we start the ivf.

to see all these other babylost mom's who lost their babies the same time as me go on to get pregnant and have their subsequent babies is so hard. i'm so happy for all of them, but it makes it that much more difficult for me to keep going.

i have to believe it will happen- it did once before and with no intervention. just not sure why its taking so long this time. i'm losing my patience.

the other day a friend said to me (in response about plans for the day i think)

"you have to plan when you have sex?"

umm, yeah, not all of us get pregnant without even friggin trying (she who has 3 unplanned babies). i snapped- i was so frusterated. what a dumb question to ask someone who you know has been trying to get pregnant after a loss for as long as we have. i set her straight.

so weird that others haven't a clue how hard it could be.
December 21, 2009 | Unregistered CommenterLani
Thank you, Tash. This is so timely for me. Over my time trying to conceive, I've gone from being labeled infertile to fertile to infertile again, this time with blood numbers to stick the label for sure.

It's another grief on top of deepest grief for those of us struggling with an fighting against infertility, and your acknowledgement of that "peculiar injustice" is so important here, so thanks.

C.
December 21, 2009 | Unregistered CommenterC
Thank you for the post. For me, I feel that it will take a life time to process what we've experienced. Part of me feels anesthetized somehow, because it is all so big. Maybe that is for the better. I'm not sure how often I can gasp for air.

I've struggled for a long time with the labels that come with this experience. Miscarriage. Bereaved. Multiple losses. Neonatal death. Genetic condition. Stillbirth. Infertile. HSG. IVF. ICSI. FET. How to integrate? Is it a separate cloak or is it woven in with the rest of life. Sometimes it's both. Our FET is now a 5 year old boy so for that I am so grateful and also incredibly amazed - it seems like our own personal miracle - and at the same time, perplexed. Why did it happen this way? What about the other children. With Magnus, we have another label to try to understand - only child. This one makes me mad but I can deal with it. It's troubling how easily it is for strangers to make assumptions, or for those who know us to forget the road we've traveled.

It's been a few years now that we've known that we can have no more children of our own making. We are in the process of adoption but it's a long process with no end within our sight. I simply say, "We will see." I always cling to hope no matter what. Hope is what carries us through life, no matter how small it may seem. My life is being put together in other ways now.
December 28, 2009 | Unregistered CommenterKarin
How about being (repaeatedly) told that your firstborn died (and his surviving twin has remaining medical issues) because the pregnancy was "unnatural?" (IVF/ICSI-- ah, yes, I speak the language of IF)

--and, instead of being able to revel in the deliciousness of a surprise, nearly-full term subsequent child, having to deal with the near-constant comparisons to his older brother?
December 29, 2009 | Unregistered CommenterKyrsten
a little late to join in here, but yes. welcome to my world.

the son we lost nearly 4 years ago was the closest we ever came to having a living biological child. I've about the convergence of my various forms of grief here:
http://lifefromhere.wordpress.com/2008/10/18/convergence/

thanks for this, tash.
December 30, 2009 | Unregistered Commenterluna
I've *written* about this, is what that was supposed to say.
December 30, 2009 | Unregistered Commenterluna
I'm a little late here, but wanted to thank you for a marvellous post, Tash. I did not seek IF treatments to get pregnant with my Katie -- but we had been trying on our own for 2 & 1/2 years. I went off the pill when I was 35 & had been married 10 years, fully expecting I would pregnant within a matter of months. When I didn't I felt increasingly uneasy. My family dr kept reasuring me "it will happen," & it eventually did, by some miracle -- but if I had one wish about this whole experience, it's that I would have pressed him to investigate earlier, as it might have bought us more time.

Katie was stillborn six months into my pregnancy, when I was 37. And I did have that thought, "That might have been it -- our one shot at parenthood." And I was right.

We tried for another year on our own after that, aided by "Taking Charge of Your Fertility," OPKs, saliva monitors, you name it...) & then began fertility testing with my ob-gyn. I was referred to an RE shortly after my 39th birthday, & over the next year & a half did several timed cycles with clomid & then three IUIs with injectables before throwing in the towel. I did not pursue treatments to the extent that many women have, but for me, it was enough. I was a physical & emotional wreck, & the financial costs were starting to add up. We took a good hard look at our odds for success with further treatment at our ages with the factors we were dealing with & knew they were not very high. We decided adoption was not for us, and so resolved to continue to live childless/free. I continued to chart for a while longer, and to hope for a miracle pregnancy for some time after my last IUI, but Ithat hope faded as I headed into my mid-40s.

I hate playing the "pain Olympics," and my heart goes out to anyone who has lost a baby -- but infertility just heaps insult upon injury. I knew it was time to step down from facilitating our pregnancy loss support group last year when I found myself gritting my teeth while listening to a couple of younger bereaved moms (both of whom had other children already) moaning that they STILL weren't pregnant again, and they'd been trying for FOUR WHOLE MONTHS.
December 31, 2009 | Unregistered Commenterloribeth
U addressed my greatest fear!!!!! We will be pursuing IVF and I panic thinking that this may happen. I'm no longer nieve about the reality. Pregnancy does not always equal baby. I think those trying after infant loss want a baby immediatley and not being able to get pregnant would be their worse fears so even 4 months seems like a long time. I wish this on no one.
January 1, 2010 | Unregistered Commenterj
This post in part explains why i relate to babyloss blogs even though I come from an IF/ first tri recurrent m/c background rather than one of still /perinatal loss. You said it so much better that I could though.
January 3, 2010 | Unregistered CommenterBetty M
After 3 IVF attempts we got pregnant, just 1 month after my grandma, my "nana" passed away. We were beyond excited, no pregnancy complications. I enjoyed the heartburn and positively glowed. I naively thought successful pregnancy meant bringing home a baby, afterall all my other friends were doing it. Then he came early at 26 weeks and died due to prematurity/complications in the NICU. My faith has been tested and now I'm like a zombie...My heart aches more than I thought possible. He looked just like me!! but know in my heart that I have to jump back on that train, not to replace him, but to be a mom to a living chlid. Is it going to happen again? My RE says good chance that it will, afterall, the first pregnancy was achieved at age 40, so we'll try for another miracle right before age 41. I'm terrified, what if that really was my ONLY chance??
January 3, 2010 | Unregistered CommenterVera
this post says it all thank you. infertility adds insult to injury.

the hurt that I feel is of people assuming that because i have l/c that it makes up for the loss of my son Devyn, and the fact that i am experiencing what is called "secondary infertility" is not as serious as "primary infertility". that my pain is somehow lessor or not truly worthy of acknowledgement.

i hurts me that some compare me to, or think that i do not feel my son Devyn's loss as badly as others who may have no l/c. and the fact that i am suffering with infertility now really may not be true infertility in their eyes because of my l/c.

i lost my son a little over two years ago, and i still have days when it is as fresh as when it happened. it is particularly painful during this time of my continued failed infertility treatments, several failed iui's, failed IVFs, and most recently last months failed FET. insult to injury, salt in the wounds, a cold slap in the face.

i am forever changed by my son's death and it is unfortunate that some do not see this, and are expecting me to be who i was. that me is gone forever, and infertility continues to chip away the me who is left.

i fear my life will end with the memory of losing my son. i fear that i will never feel the warmth of a baby of my own in my arms again, and that frightens me to no end.

i want to scream, yes, please understand, infertility after loss, even with l/c, is extremely painful.
January 3, 2010 | Unregistered CommenterPaula
I just had my embryo transfer for IVF # 3 and have been perusing the internet for comfort. Thank you so much for this post. I have been a lurker in the babyloss & IF virtual worlds for the past 2 years and it's rare to find the intersection so explicitly illuminated. I have felt like a bit of an outsider everywhere because 1.) I got pregnant the first time I tried 2.) my babyloss (this first pregnancy) was, in some respect, a choice-- a medical termination at 20 weeks due to a severe heart defect 3.) my infertility hit as soon as I started trying again after the termination. It's such a mind f**k to be someone who so easily became pregnant and then become someone so unable to get pregnant/stay pregnant after facing such a horrendous decision...and to officially be diagnosed with secondary infertility but to not have a living child to show for it.

Yes, indeed, babyloss with infertility is a special kind of suffering. Recently, what makes me particularly angry is the fact that those of us who decide to pursue infertility treatment must then take on the possibility of a multiple pregnancy and all the risks inherent to this. After experiencing babyloss this is a particularly daunting proposition but one I reluctantly embraced a few days ago as multiple embryos were placed in my uterus. And now I will hope with all my heart that just one healthy one survives-- what a strange place of hope this is.
January 4, 2010 | Unregistered CommenterT
I can't believe I'm in a position to post a comment here. I linked to Tash's blog from an infertility blog I've read for years and from there to here. I don't know why, I hadn't lost a baby but my sister in law had. Only 5 days later my world crashed down and an aching hole was ripped in my chest when I first saw those black circles on my baby's brain. I thought I was so lucky. With 5 infertility causing problems I had a baby with no intervention and then got pregnant again on my first round of clomid. I thought I was so lucky. Until. Now I've reread this post with the knowledge that I truly belong here and the pain is just indescribable. I almost want to take it back. I want to go back and say one was enough and I just give up on my useless body - not take the clomid, not see that faint, faint line - not see those horrible black circles. To me there is something especially horrible in the fact that I tried so hard to make such a genetic train wreck of a baby. I feel such guilt, like I wasn't supposed to be pregnant so my punishment for forcing the issue was the death of my son. Right now I feel like I reached the end because the thought of going through this again is truly unbearable. But my grief is fresh - I think maybe the guilt will ease in time because I do know this wasn't my fault - I just have to convince my heart when I find it again. Thank you for this post. In the past two weeks (god, it feels like YEARS) I have thought that there was a reason I found this site before I needed it. I would not have known it was here otherwise, I wouldn't have known to look. I hope this post makes sense. I still feel like nothing connects.
January 13, 2010 | Unregistered Commenterjen
Oh Jen, I'm so so sorry. Of course nothing connects.

And this: "To me there is something especially horrible in the fact that I tried so hard to make such a genetic train wreck of a baby." I can completely relate to. It's like a really sick joke.

I'm glad you found us, and am sorry you need us now. Please come back if it feels right. Much love.
January 13, 2010 | Unregistered Commentertash
I've had 4 losses -- 2 very early (one was a blighted ovum, one was probably a low progesterone issue) and 2 that were incompetent cervix related. I've since had my cervix "fixed" with an abdominal cerclage, but we've been unable to achieve a pregnancy in nearly 3 years. I have PCOS and it wasn't easy before, but with 10 rounds of Clomid, 3 rounds of Femara, the PreSeed, the Vitex, 2 rounds of IVF with ICSI.... I do really feel that my 23 weeker that lived for 8 days was really my last and only real shot at all of this.

There's that video by a woman, I think, called Kellie Coffey called "I'd Die for That" that is so close to my heart.... I have a husband who loves me, we have a great life, a furry little cat, can go on great vacations..... but something is always missing,

I'm really bitter about the whole thing. Especially when I hear of people killing their children or when it's babies having babies... or women on welfare and crack pumping them out like it's no tomorrow. They have no idea.

My whole identity is wrapped up in this. How I feel about myself... how people feel about me.. how I feel about the world.... But I'm glad I'm not alone and that some of you can relate.
January 17, 2010 | Unregistered Commenterjules
Back again...one of my friends just sent me of her daughter's one year old photo shoot. This is the same friend who told me that she got pregnant because she was able to take advantage of our 6 month maternity leave. Same friend who got a CVS test done and told me she didn't care about the miscarriage risk because she didn't want to have a "retarded" baby. Same friend who blabbed to everyone at the office about her pregnancy before she was even 6 weeks pregnancy. It was then that I knew she would not suffer a loss. I don't know what it is about those people - you know the ones who have CVS tests and amnios and almost brag about the fact they would abort their babies. It just occurred to me that you guys may not know these kinds of wierdos. In law firms, they are apparently a rampant breed. Everything must be perfect.

I was reading another post somewhere about how fertility declines in your late 20s and how I would seriously like to find my ob-gyn from when I was in my mid-20s and married and impale him. Why in the world didn't he tell me that? Has feminism made docs so PC that they can't tell us this stuff? My mom said that I know everything else so I should have known that, but sadly, I didn't. She had me at 30-31. My grandmas both had babies in their early 30s - although these were last children and my aunt had twins at 34, so I just thought everyone had babies in their 30s. All of my friends did.

I think I will be mad about it forever...I think Generation X really got screwed on this. Although I am at the last/first year between X and Y - I still feel screwed. I hear my 20-something friends now though that are married saying they are going to wait also though because of same reasons--career, grad school, etc. So dumb...

Yet, part of me kind of doesn't want them to know. Just like I want to strangle the girl that brags about the CVS test and her planned abortion, it's just not fair. I guess that I should have taken drugs, drank caffeine, and done everything wrong.
June 23, 2010 | Unregistered Commenterjen

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