Of Birds and Bees
We all bring a set of issues to the table of grief, whether it be a side-dish of marital problems, a salad of anxiety, or an appetizer laced with previous tragedies which this seems to compound. There's the bottle of money woes, the dash of low-esteem, and perhaps even (hidden under the napkin) the telltale odor of previous bouts with depression. All of these shade and color our experience, and shift our individual abilities to cope with babyloss. I'm not here to rate which are at least edible, and which could stand to be thrown into the compost, but I am going to discuss one particular problem many bring to the table and set down with a thunk, with the grace of an overcooked, 25 pound stuffed turkey.
That would be infertility.
Babyloss after -- during -- infertility is it's own peculiar injustice. For starts, infertility in and of itself can create it's own side excursions into mental trauma. As one avid reader here said to me in person recently, infertility is its own kind of grief. For starts, what comes naturally in the pickle commercials and to your friends who seem to just look at each other naked and procreate, for you is not meant to be. Frankly, that alone deserves some mourning. There's the monthly reminder of failure, which you try hard not to internalize, but it's hard to go through more than a year without getting a bit mopey about overall body image and capabilities. Add to this the strain on marriage, which you try and avoid by making sex fun! And unto itself! But seriously, you're both eyeballing the calendar and know and wonder when it will be fun again, and secretly debate who exactly is letting whom down. Meanwhile all of your friends are pregnant and having babies and wondering what in hell you're waiting for? Time's a ticking! You go to your thousandth baby shower with a stiff upper lip and cry on the way home.
You finally go to an RE (that's Reproductive Endocrinologist) who runs you through a pantheon of testing. If you're lucky, you've climbed online and read up on this stuff so you're prepared for the discomfort of mulitple blood draws on various days of the month, watching radioactive dye run through your fallopian tubes, or having your uterus filled with liquid and monitored via ultrasound, or an uncomfortable uterine biopsy. There's the indignity of going in on day two of your menstrual cycle for a vaginal ultrasound to check the status of your ovaries, and the ever-popular post-coital testing where you run into the office when you should be lounging naked with a glass of something and a cig, and have them take a sample of everything that you didn't leave on the mattress to see if sperm can indeed make it through the secretions that you produce. And don't get me started on the discussion with your husband, which starts with "Honey, I really want to have a baby" and ends with "And so you need to go into the office where they'll hand you a jar. If you're lucky, this office may even have some inspirational magazines for you as well."
And that's just to get a diagnosis. If there is one to be found. Like so many things medical, after all of this, the answer is often "unknown."
Because now we know, maybe, or at least have an idea, there might be surgery to rid of endometriosis or fibroids or a blocked tube. Or IUI (Intra-Uterine Insemination -- you know, the old fashioned way, except with a turkey baster). Or if your husband presents a problem in the equation, IVF with ICSI (Intracytoplasmic Sperm Injection. Say that 10 times fast). Drugs are dispensed, often to yourself with syringes and detailed instructions on what needs done intramuscularly. Sometimes you skip right to IVF (In Vitro Fertilization), and sometimes there's a mind-blowing discussion about dead or absent sperm or a lack of eggs or a misshapen uterus that ends with the RE telling you about gamete donors and/or surrogates. Sometimes there's the unexpected surprise that all of these miscarriages you've been having are caused by a genetic problem carried by you or your spouse. Sometimes there's simply a vial of pills, sometimes there's the fluke of luck while waiting for the next round of shots to start, and sometimes there's the hellish conclusion that this will not end the way you intended when you walked in.
I should pause here and remind people who are staring at this jumble of acronyms and procedures like hieroglyphics that much of this testing and prodding and medicating and inseminating is not covered by insurance. Unless you're lucky enough to live in a small handful of states (or countries) that have rightly deemed infertility a medical problem necessitating treatment and hence coverage (and you're lucky to have insurance to begin with!), you're paying for this out of pocket. According to Resolve, the average IUI runs $865, depending on the medication needed; IVF's average (that's average) $8,150K, NOT including medication (which runs, on average, an additional $3,000-5,000). (For the record, I just used some banal progesterone, apparently necessary to keep embryos attached to my uterus but not covered by my insurance. The cost per 4 weeks of a daily single dose was $800, and I needed 8 weeks. And I consider myself lucky that's all I needed this time around.)
I know people who took out second mortgages for ART (Assisted Reproductive Technology), and people who used inheritances, and people who drew out of their retirement accounts and/or borrowed from family. All to achieve what many can do after turning off the late night news and climbing under the covers.
But let's say you get lucky, and get pregnant.
Worth it, right?
And now let's say your baby dies.
:::
Back up for a moment to what this reader said to me: Infertility is it's own kind of grief. It's a monthly dash of hopes, a monthly reminder of promises gone down the drain, often with the checking account. It's the thought when an embryo is tucked safely inside you that this is it! This is life! This is our life. This blob will be my child! Only to be greeted by one line and blinding white two weeks later. Multiply this over, and over again. Possibly for years. Possibly having set your limit -- your emotional and financial finish line on the next attempt: this one is the last one. This one works, or we grieve never having children of our own, and move on to something else. Hope and faith and trust and marital communication may have left the building long before the death of a baby. You may have been desperate, on that last attempt, bargaining, wondering if anything would work.
In that regard, the death of a baby is part of this winding vine already invading your life. It's another loss, another dash of hopes, but this time on a much larger scale because . . . well obviously, it's different to hold a dead child than to stare at a negative pregnancy test, but there's also the thought that That might have been it.
Because you can't simply wake up one morning and say, Let's try again. As hard as that discussion is to have another baby after the death of the last, if you're infertile it's more complicated. There isn't the subconscious knowledge that Well of course this will work again like it's supposed to. You need to pick up the phone and explain to people what happened, and what you'd like to do next. You need to go through a lot of the rigamrole again. You may need to alter how many embryos you transfer, or depending on why your child died, move to gamete donation or surrogacy. Perhaps you need to now fork out for PGD (Pre Implantation Genetic Diagnosis) (Incidentally, another average of $3,500 on top of your IVF expenses) to make sure any genetic problems aren't being passed along. You need to set to set a new limit, a new finish line, and further deplete your bank account. And each month that passes with an HCG (Human Chorionic Gonadtropin) test of two or less, you sink further into a bleak place. Perhaps that child was it. The only time this would work.
And sometimes, that is it. There are people here in this community, who read here, who reached the end. The end of the line. The money tree dried up, their emotions were frayed after years of trying and failure, and they needed to stop and move on. Move on with another life than the one they originally envisioned when they simply set out to have a baby of their own making. And that, putting behind not only a dead child but the attempt to have another of your own, is it's own crucible of grief. Inextricably wound up with the death of a baby that we're all familiar with, but branching out and encircling so many other parts of your conscious and marriage and identity and being. And like any loss, this deserves its own moment of grief, too.
Did you seek Infertility treatments in order to get pregnant with your child(ren)? Are you having to with a subsequent child? For you, how does your babyloss fit in with infertility -- does it stand alone, or has it become a chapter or branch within a greater struggle? Do you have limits? Have you met them already?


35 Comments
Reader Comments (35)
I personally am in that gray area known as recurrent miscarriage/repeat pregnancy loss/different kind of fertility issue. I did all my bloodwork last month and my shg this morning with my OB practice's RE. I found out I have a heterozygous MTHFR mutation, and a cervix damaged at the internal os by my cervical pregnancy. Which leaves us far more fortunate than probably 97% of people going through IF and a lot less fortunate than most normal couples. For us, it's again that gray area of no real issues between sperm and egg meeting, but problems occurring once they've hooked up - not quite infertile, not quite subfertile, but nowhere near normal, either.
I'm lucky to have a recurrent miscarriage diagnosis that insurance doesn't balk at paying for, and to live in a state where IF testing coverage by insurance companies is mandated, though treatments aren't (and would be out of pocket if we were required to go that route). I'm lucky that a lot of women who have dealt with the heartbreak of IF have developed protocols that leech over into testing and treatment for me, the habitual aborter with the crazy pregnancy history.
I think it's a special kind of pain to have gone through so much to get pregnant and to lose your child. (Just as it is a special kind of pain to go through so much to keep a pregnancy and lose your child. Or to know there is a defect which may take your child's life and have to make those choices.) An extra twist of the knife in losing a child after infertility or dealing with infertility after losing a child. Something that I can sort of understand and that tugs at my heartstrings just a little more, I guess. Maybe I shouldn't respond at all, since I'm not really in that group. But I guess I would want to reach out to anyone there and offer an extra squeeze or pat on the arm or hug.
For me, IF before and after loss has been soul crushing. Especially as my IF got worse post stillibirth complications and left us with only IVF left. Here I am, with this big gaping wound from the loss of my son that everyone can see and I suffer silently month in and month out afterwards. Having people look at me and wonder when we are going to "try again" not knowing that we have spent tens of thousands of dollars doing exactly that. Having people say, I hate to ask, but...
When we came to this last cycle, our final IVF and it failed (or we were told it failed, but that's a whole other story), I stumbled back into that dark, dark place I was in two years ago. I used to say thank goodness for that Joy of Pregnancy experience we had. It really was lovely. But now, I think maybe that was naive. Maybe the door should have slammed shut way back when, it might have been easier to deal with rather than this IF, stillbirth, IF, Tubal, IF, Miscarriage, IF, Miscarriage, IF Failure.
I'm not a better person after all this. Sure, I have more empathy for others and I am generally calmer. But I am deeply, deeply wounded.
Since losing out twins, I am really hoping that insurance will someday cover IVF so that people can afford to transfer just one embryo. This should result in a decrease in NICU costs and infant mortality due to complications associated with multiple gestation pregnancies.
Anyway, after the death of my babies, IF seems like a much smaller problem in comparison, but it is still real. When I first experienced IF, it was the end of my world. I just didn't realize things could get worse. And, if you're having trouble conceiving after losing a child, that is just so unfair.
In an effort to find support from those who've walked in similar shoes I turned to the internet and found many blogs that I could kind of relate to. Not many covered infertility AND loss of children. Not only do people that suffer from both of these grieve the loss of our children, but we also grieve the time, energy, money, hopes and dreams that we had been planning and praying for that, with are children, are now dead. And now, after our children have died, we have to make the choice of whether or not we will again stand at the back of the line, hoping that someday, after we wait long enough we get to ride the pregnancy train again. But next time, we won't enjoy the ride as much.
We hope to adopt in the future. My experience with loss seems to be preparing me for the realities that face a birth family more than the average infertile mother. They're not the same, but I can relate in ways that I wouldn't have had we not lost our sweet girl. But still. If we bring home someone else's baby, s/he will never be OURS and ours alone. Even if a birth family wants a closed adoption. Our child will always have another family, will always come from somewhere else. Will always be missing that part of him/her and naturally be curious and grieve that fact. And I am willing to take this on whole-heartedly, as I need so badly to parent another baby. But the concessions? They're overwhelming sometimes.
Do I want to feel as though everybody and their brother has gotten a look at my nether regions, and beyond? The, "We have a student here today..." followed by my feigned jolly response with just a touch of self-depricating sarcasm, "Sure, the more the merrier!" Do I want tofeel like a science project surrounded by labcoats during a time that should be, in a perfect world, one of intimacy and love between my husband and I alone?
I too, wish "trying again" were just that simple. Instead it is a calculation, pros and cons, percentages, profit vs. cost. I know hubby doesn't want me to take all those meds again. I know I don't want another multiples pregnancy. I know my body isn't up for that challenge again. What it will take to be the end of the road for me, I'm not sure. I do know I want another baby. My little boy reminds me of what Im missing out on with my girls every day. It is ironic that he has been both my saving grace and some salt in my wounds in that way. And I know, for certain, that he was worth it.
Interesting to note though, is that so many times during those years I said "I quit" - whether from exhaustion of heartache and heartbreak or just all the gyrations of trying to conceive and yet, just when time would start drawing to the point of too late for that potential cycle, I'd dive back in again. But, that last time - right in the middle of a cycle of injectables and literally right in the middle of AN injection, I was done. I knew it, I felt it - I wasn't just throwing a fit, I was really, truly done. That was my last injectables cycle. Even now - almost 8 years after the fact, I cannot think about drawing up another syringe without feeling sick.
After the birth of our son, we eventually returned to treatment. It was hard, but not as hard. And it was so much easier to draw the line, to say "enough is enough" and be the parents of an only child.
For those of you who had to move on without a child, my heart aches for each of you. I wish for you peace and healing.
It pisses me off that everyone (my family & some friends) dismissed the fact that we could actually have problems ttc, and I feel a heap of emotions around this, because it's not happening as easy as they said it would. It wasn't like I believed or didn't believe them, it's just that they would dismiss our loss and say "oh well you're both very fertile, you shouldn't have any problems..." I feel almost as if their words were and have been a curse.
I pray every day to make me give up this desire for a baby. I don't pray any more for babies, I can't stand the heart-ache.
Thanks so much for this post..I was wondering where in all of this do I belong. I don't know if I do or don' but being able to see where others are coming from is something that I need right now.
I am lucky enough to have one of those subsequent IVF cycles work again, and I am pregnant. But it doesn't feel like the victory that my first pregnancy was. Now it just feels like I'm halfway there, teetering on the edge of insanity once again. And we know that if this one dies, too, that we're done, we're at the end of our road.
2009 has brougt me 3 pregnancies ( all medicated with femera/ IUI): lost at 10 weeks, 4.5 weeks, and I'm currently at 14 weeks and going well. My state of mind is another thing. After the 10 week loss, I was distraught. I could not believe that I could have gone through so many cycles only to loose a pregnancy. That miscarriage left me raw and brought anxiety and fear issues I've had all my life to the surface. The 4.5 week loss was a confirmation of the long road I saw before me.
Then with our 14th cycle, I was pregnant again. Four ultrasounds in the first 12 weeks and using my home doppler once a day have yet to convince me that this baby is sticking around. My losses have been early but this anxiety will be with me all 40 weeks. I'm trying to cope but the "dead baby dreams" are still around about once a week.
Infertility tried my patience. It tested my trust in God/ universe. Miscarriage all but destroyed that. Now I trying to recover some sense of trust, faith. Maybe then, I can follow with joy with this pregnancy. Enjoy the gift I've been given.
thank you for this post.
In three years I have had three early losses. I've only ovulated literally a handful of times, and don't ever ovulate without intervention. We're not even sure what the exact cause was for our losses, which adds another faucet to the whole ordeal. Wondering, if we do try again, will we just keep losing babies... We're now on a long break trying to regroup after our last loss.
It weighs heavy on me, knowing we've struggled for so long and spent so much energy and money into this dream- to have it dashed repeatedly in one form or another. We've truly reached our limits, emotionally and financially. Constantly mourning what almost was, what may never be, some days it's too much to bear. I've lost faith in my body, in science, in pregnancy, in what should have been the simplest thing. All the would-have-beens and could-have-beens are haunting. Finding the strength to go on came harder with each passing month, each let down- each loss was almost debilitating. Yet somehow I kept putting one foot in front of the other. And now, I'm resting, waiting to figure out where that next step should be. Knowing I should have already been out of here with my babies I wanted more than anything, but I'm not.
now, 15 months later, we're still at it for baby #2. we did 3 cycles of clomid/iui that did not work. i've been doing all the natural methods you can think of. most likely next month we start the ivf.
to see all these other babylost mom's who lost their babies the same time as me go on to get pregnant and have their subsequent babies is so hard. i'm so happy for all of them, but it makes it that much more difficult for me to keep going.
i have to believe it will happen- it did once before and with no intervention. just not sure why its taking so long this time. i'm losing my patience.
the other day a friend said to me (in response about plans for the day i think)
"you have to plan when you have sex?"
umm, yeah, not all of us get pregnant without even friggin trying (she who has 3 unplanned babies). i snapped- i was so frusterated. what a dumb question to ask someone who you know has been trying to get pregnant after a loss for as long as we have. i set her straight.
so weird that others haven't a clue how hard it could be.
It's another grief on top of deepest grief for those of us struggling with an fighting against infertility, and your acknowledgement of that "peculiar injustice" is so important here, so thanks.
C.
I've struggled for a long time with the labels that come with this experience. Miscarriage. Bereaved. Multiple losses. Neonatal death. Genetic condition. Stillbirth. Infertile. HSG. IVF. ICSI. FET. How to integrate? Is it a separate cloak or is it woven in with the rest of life. Sometimes it's both. Our FET is now a 5 year old boy so for that I am so grateful and also incredibly amazed - it seems like our own personal miracle - and at the same time, perplexed. Why did it happen this way? What about the other children. With Magnus, we have another label to try to understand - only child. This one makes me mad but I can deal with it. It's troubling how easily it is for strangers to make assumptions, or for those who know us to forget the road we've traveled.
It's been a few years now that we've known that we can have no more children of our own making. We are in the process of adoption but it's a long process with no end within our sight. I simply say, "We will see." I always cling to hope no matter what. Hope is what carries us through life, no matter how small it may seem. My life is being put together in other ways now.
--and, instead of being able to revel in the deliciousness of a surprise, nearly-full term subsequent child, having to deal with the near-constant comparisons to his older brother?
the son we lost nearly 4 years ago was the closest we ever came to having a living biological child. I've about the convergence of my various forms of grief here:
http://lifefromhere.wordpress.com/2008/10/18/convergence/
thanks for this, tash.
Katie was stillborn six months into my pregnancy, when I was 37. And I did have that thought, "That might have been it -- our one shot at parenthood." And I was right.
We tried for another year on our own after that, aided by "Taking Charge of Your Fertility," OPKs, saliva monitors, you name it...) & then began fertility testing with my ob-gyn. I was referred to an RE shortly after my 39th birthday, & over the next year & a half did several timed cycles with clomid & then three IUIs with injectables before throwing in the towel. I did not pursue treatments to the extent that many women have, but for me, it was enough. I was a physical & emotional wreck, & the financial costs were starting to add up. We took a good hard look at our odds for success with further treatment at our ages with the factors we were dealing with & knew they were not very high. We decided adoption was not for us, and so resolved to continue to live childless/free. I continued to chart for a while longer, and to hope for a miracle pregnancy for some time after my last IUI, but Ithat hope faded as I headed into my mid-40s.
I hate playing the "pain Olympics," and my heart goes out to anyone who has lost a baby -- but infertility just heaps insult upon injury. I knew it was time to step down from facilitating our pregnancy loss support group last year when I found myself gritting my teeth while listening to a couple of younger bereaved moms (both of whom had other children already) moaning that they STILL weren't pregnant again, and they'd been trying for FOUR WHOLE MONTHS.
the hurt that I feel is of people assuming that because i have l/c that it makes up for the loss of my son Devyn, and the fact that i am experiencing what is called "secondary infertility" is not as serious as "primary infertility". that my pain is somehow lessor or not truly worthy of acknowledgement.
i hurts me that some compare me to, or think that i do not feel my son Devyn's loss as badly as others who may have no l/c. and the fact that i am suffering with infertility now really may not be true infertility in their eyes because of my l/c.
i lost my son a little over two years ago, and i still have days when it is as fresh as when it happened. it is particularly painful during this time of my continued failed infertility treatments, several failed iui's, failed IVFs, and most recently last months failed FET. insult to injury, salt in the wounds, a cold slap in the face.
i am forever changed by my son's death and it is unfortunate that some do not see this, and are expecting me to be who i was. that me is gone forever, and infertility continues to chip away the me who is left.
i fear my life will end with the memory of losing my son. i fear that i will never feel the warmth of a baby of my own in my arms again, and that frightens me to no end.
i want to scream, yes, please understand, infertility after loss, even with l/c, is extremely painful.
Yes, indeed, babyloss with infertility is a special kind of suffering. Recently, what makes me particularly angry is the fact that those of us who decide to pursue infertility treatment must then take on the possibility of a multiple pregnancy and all the risks inherent to this. After experiencing babyloss this is a particularly daunting proposition but one I reluctantly embraced a few days ago as multiple embryos were placed in my uterus. And now I will hope with all my heart that just one healthy one survives-- what a strange place of hope this is.
And this: "To me there is something especially horrible in the fact that I tried so hard to make such a genetic train wreck of a baby." I can completely relate to. It's like a really sick joke.
I'm glad you found us, and am sorry you need us now. Please come back if it feels right. Much love.
There's that video by a woman, I think, called Kellie Coffey called "I'd Die for That" that is so close to my heart.... I have a husband who loves me, we have a great life, a furry little cat, can go on great vacations..... but something is always missing,
I'm really bitter about the whole thing. Especially when I hear of people killing their children or when it's babies having babies... or women on welfare and crack pumping them out like it's no tomorrow. They have no idea.
My whole identity is wrapped up in this. How I feel about myself... how people feel about me.. how I feel about the world.... But I'm glad I'm not alone and that some of you can relate.
I was reading another post somewhere about how fertility declines in your late 20s and how I would seriously like to find my ob-gyn from when I was in my mid-20s and married and impale him. Why in the world didn't he tell me that? Has feminism made docs so PC that they can't tell us this stuff? My mom said that I know everything else so I should have known that, but sadly, I didn't. She had me at 30-31. My grandmas both had babies in their early 30s - although these were last children and my aunt had twins at 34, so I just thought everyone had babies in their 30s. All of my friends did.
I think I will be mad about it forever...I think Generation X really got screwed on this. Although I am at the last/first year between X and Y - I still feel screwed. I hear my 20-something friends now though that are married saying they are going to wait also though because of same reasons--career, grad school, etc. So dumb...
Yet, part of me kind of doesn't want them to know. Just like I want to strangle the girl that brags about the CVS test and her planned abortion, it's just not fair. I guess that I should have taken drugs, drank caffeine, and done everything wrong.