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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged, understood.

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Thursday
Aug202009

handling the shattered nutcase

I'm not there yet. Still got a ways to go before the World can pass through me without pain.

Julia talked of toes mashed and unreasonable expectations of accommodating thoughtless acquaintances. Tash spoke of awful, awkward silences and evasions within her own family. It broke my heart to read their words. I've experienced shades of each in various circumstances. Facebook is a series of landmines of super-happy-family-ness I can barely handle. Farmer's markets bombard me with babies and moms and dads with kids on shoulders.

There is no way for them to know what it does when they tell me that he's ten months old, and he's keeping her up every night. I look the toddler in the eye and shatter, but you'd never know it by looking at me.

I'm shattered all the time. I don't have to hide it here.

Thankfully, family and friends have been extremely supportive and understanding. I don't feel rushed in my grief. I don't feel like a total nutcase that must be gently handled. They take us face front and let us tell them--as well as we can-- exactly how we feel and what we need.

Often what we need is space and compassion. But not too much space. If I don't get enough attention I start to freak out. Sometimes I feel the disappearing act I'm trying to pull on my grief is working too well.

And not too much compassion, cause seriously, what the fuck? I can handle it, whatever it is. Obviously I can handle anything because otherwise I'd be long gone by now.

Of course, I'm terrified of what else is out there that needs to be Handled, so be careful with me, okay?

Email, instant messages, txts, posts on messages boards, comments to our blogs, they give me strength. They give me a web of words and understanding that transcends time and space.

We Skyped into a birthday party for our friend out in SF. It was mesmerizing to see the faces of our friends that I can usually only hear in my mind as I read their various written missives or enjoy as their disembodied voices over the phone. This was their presence in a powerful, almost magical way.

Through the digital transformations and subtle human cues I was able to pick up that they loved us so much, and missed us a million times over. We toasted beers through the cameras, but the hugs didn't quite connect. Too many square edges on the MacBook.

It was amazing to be with our friends clear across the country, for even a few minutes. And to know how much they wanted us to be well and happy, it was heartfelt and true.

Should I feel lucky for that? There must be a better word. There should be a word for good-feelings-in-the-middle-of-disaster. Because it is that, still, every day in one way or another. The wrenching wrongness of everything we are not doing with Silas is a brutal and confusing burden to bear. We aim for grace, but like Kate said, sometimes fuck grace.

I just want to get by without breaking anything else.

My heart breaks easily. I feel it as a slice from my breastbone to the deep reaches of my gut where everything falls into nothing.

Baby carriage. Pregnant belly. Offhand baby-talk.

Slice, slip, drop.

I attempt to fall through the vacuum of his absence into a calm acceptance of whatever comes next.

The everyday awful, the sliced gut and bottomless stomach, sometimes it makes the good parts feel especially rare and fragile. When I feel happy I'm often doubly amazed. What's the word for that one? The knowing-it's-good-because-you've-had-it-so-bad?

I also know this post doesn't make much sense. But how am I supposed to make sense of the fact that it has been almost a year and... and... everything? All of this. Every word from here to a year before. Every day we've half-lived wondering what the fuck just happened to us?

But I'm not trying to understand why. What I am trying to understand is what his life and death means to me and to Lu, and how I will navigate the rest of my life with his absence in my heart.

So far, this year, all of the World has passed through that hole. There is no other way into me anymore. He is the lens through which my everything is sharpened and transformed.

I wonder if that will ever change. I wonder if there is a way to ever feel whole and true. I wonder if I want to.

~~~~~~~~~~~~~~~

Do you?

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Reader Comments (20)

I read this today and I remembered your statement that there should be a word for good-feelings-in-the-middle-of-disaster.

Here's what I read, and it's from the 45th Psalm: I will give you the treasures of darkness,
riches stored in secret places...

Treasures of darkness seems like a good phrase for what we experience. Thanks for writing; I always find treasures of darkness in what you write.

(Here's the blog I was reading, to give credit where credit is due: http://mothergrievinglossofchild.blogspot.com
August 20, 2009 | Unregistered CommenterEmily
Short answer: NO. I don't expect that I will ever feel whole and true again.

I grew and birthed and buried two children. First one, my girl Freyja, and then the second, my son Kees. How will I ever feel whole and true again when significant parts of me are missing? When there are holes in my heart which nothing can fill? I don't expect that I shall feel whole and true again.

But maybe I will learn to live with it -- that's what I'm hoping for now.
August 20, 2009 | Unregistered Commentermirne
Abiding with you both as you come up to the one year anniversary. Sending much love.
August 20, 2009 | Unregistered CommenterMonique
Your post makes all the sense in the world. Have you seen the quote on Joanne Cacciatore's blog (pasted here)? I think it speaks to our (or society's) struggle to just "be" (or let us be) in the place we've landed. I do feel that I am able to see a special, technicolor sort of beauty because of my son's death... as much as I'd prefer the plain beauty that others see in order to have him here with us.

Canons of Becoming
The soul still sings in the darkness telling of the beauty she found there; and daring us not to think that because she passed through such tortures of anguish, doubt, dread, and horror, as has been said, she ran any the more danger of being lost in the night. Nay, in the darkness did she, rather, find herself.

--St. John, Dark Night of the Soul

I know I won't ever feel whole again. I don't think it's possible and I'm okay with that for the most part.
August 20, 2009 | Unregistered CommenterGretchen
I'm completely stuck between wanting to feel better, be hopeful, and fighting with my life against the very idea that I am supposed to heal from such loss, somehow move forward. As hard and lonely as it is, this deep darkness right now is also the place where grief and possibility, birth and death can all dwell together--something that's simply not allowed up in the bright, daytime, everyday air.

I'm fighting, too, against the idea of wholeness on the other side. With each loss I've had (two miscarriages, and recently, the death and birth of my son at 22 weeks with severe fetal brain anomaly), I've felt less whole, less a part of the social world. Stronger, maybe, but in the way of one exhausted by wounds knowing enough that not to move at all is to risk further injury.

-C
August 20, 2009 | Unregistered CommenterC
"He is the lens through which my everything is sharpened and transformed." Wow, well put. Yes, absolutely. This was a beautiful post Chris. Made sense to me.

Do I ever want to feel whole and true? Ah that's a toughy. To be whole would involve having my missing child be here with me... to be true involves experiencing her death. A terrible conundrum.

There are days, moments when I would give absolutely anything to feel that naivety/ignorance and innocence of the non-babylost. The reality though is that this was my experience with Jordan, was her, and I would rather have her in my life this way, than not at all.
August 20, 2009 | Unregistered CommenterSophie
Oh Chris - your words always strike to the heart of the issue. You are so amazing.

No is my truest answer. But I can say that I have been more 'whole' than ever this last year by taking action. Doing something in her name, with her as the inspiration, helped. A woman said to me today about starting the group, "You should be so proud". I said, "No, no pride here...it is my job. It is how I get to be Emma's mother. They (my other two) need me to take them swimming. She (Emma) needs me to reach out and comfort people."

It helps me at least. We are coming up an a big day too. Remembering with you.
August 20, 2009 | Unregistered Commentercara
"Every day we've half-lived wondering what the fuck just happened to us?" Yes! Exactly... I wonder if that will ever go away completely...
August 20, 2009 | Registered Commentergal
What an eloquant description. Do I want to feel whole again? For myself, no. Part of me (well, 2 parts, actually) are gone forever. To feel whole again would, to me, be a betrayal to my baby girls. I will not be whole again, ever. There are times though, when I wish I could be, that perhaps my missing pieces are evident to my son, who is too young to understand what happened this year. For him, perhaps, I would like to be whole again. But this new, incomplete me is who I am now, and who I'll always be, even if I am lucky enough to add another piece someday. A new piece will never fit into the exisiting spaces.
August 20, 2009 | Unregistered CommenterHeather
I was just thinking the other day about how far I have come. No more pain, no more unbearable sadness. We are visiting my parents this week. As I was buckling my 19-month old daughter into her carseat so we could head to the beach, I looked across the street and saw the neighbor outside with her five-year-old granddaughter. And it hit. The neighbor's daughter and I were pregnant at the same time. She has a five-year-old, and I don't. I didn't feel that old pain, but a sense of regret, loss, what-could-have-been. A feeling that I should be buckling in two children instead of one. But I pushed it aside because I can't change it, and my daughter has brought me more happiness than I ever thought possible. But it never goes completely away.
August 20, 2009 | Unregistered CommenterPaula
I loved this post, and share in many of these thoughts. I dont believe it is possible to feel whole and true, how can we be whole when such a huge part of us has gone with our children. we try to get by as best we can, we adjust and go on living, but the pain is never far from our hearts. i too think facebook is a landmine. it makes me feel so... how did you put it... everyword from here through last year? i span the dictionary from anger to jealousy when i see the happy faces of schoolmates who at my age, 29, are on their third or fourth. i too spend a lot of tme reeling in the "what the fuck just happened" each day i wonder how this became our life, losing our child, our newborn, to leukemia. each day i why us, why her, why me everything into the ground. i wish it was possible to stop asking those questions, but its not possible. for these reasons, for the utter and unrelenting grief of losing our children, our former life, ourselves when they left, i think it is impossible to return to what we felt was true before.
August 21, 2009 | Unregistered CommenterOnce A Mother
Your post makes total sense to me. Our emotions are not one or the other but a mangled blob stuck together in an unrecognizable pattern. Like you I need comfort and compassion but not too much. I need space but not too much. How are people supposed to know all this? I don't know but it is what I need so figure it out.

Getting through this life is difficult and alot of work. Happiness is worked for now and not taken for granted. We do lack a proper vocabulary for our experiences though.
August 21, 2009 | Unregistered CommenterAmy
thanks for this post, chris. i've been thinking about a lot of this lately. i think my answer is, yes, i do want to feel and true someday. and then i feel guilty for feeling that. a lot of the times when i weep i weep for myself - wtf has happened to my life?? - and not for my baby. bad mommy. guilt guilt.

but i do i wish felt better. i wish i could wend my way out of this painful and shattered place and do something creative, proactive - that would honor her, that would be my way of parenting her, of giving both our lives some meaning in the middle of all this horror.

instead i am mostly just getting through my days, crushed, seething. i am told the first year is the worst. i am praying to heaven that this is true and that later, later, some energy and inspiration will emerge... i don't think wholeness and truth AFTER will look anything like wholeness and truth BEFORE though. every day she is changing the whole shape of my future.

love to your family as your anniversary approaches...
August 21, 2009 | Unregistered CommenterJenni
As others said, you make so much sense to me Chris. Whether I want to feel whole again or not, I know I never will. Not sure whether this is one of those man/woman differences, but I know having carried and birthed her, part of me will forever be missing. But for you Dads out there, I know that is still true as well. I can see the huge chunk of Simon that is missing. We're both so damaged from all of this.
Just passed her birthday, out the other side now and yep, still wondering what the fuck just happened there. Just still can't believe it.
I wish none of it was true. For us, for you guys, for all of us.
Keeping you, Lani and Silas in my thoughts as you head in to September.
August 22, 2009 | Unregistered CommenterSally
Chris,

I don't know what to tell you about feeling whole. I suspect that I'll feel whole when Rosemary and all of the other missing babies come back. Regarding true, I look at your post and the comments below and it all looks true to me. Sad but true as the saying goes. To stare it down and describe it to others--so courageous. Thinking of you, Lani, and Silas,
August 22, 2009 | Unregistered CommenterTracyOC
Whole, no - never again - But True, yes.

I feel I could write so much about this but as usual I am reading at 2:30am and I can't make a lot of sense at this hour. Thank you for writing Chris.

Thinking of you Lani and precious Silas x
August 23, 2009 | Unregistered CommenterCarly
Not sure if I want to feel whole. But I do.

Pretty sure I don't feel true. And never did. Not even, y'know, before.
August 24, 2009 | Unregistered Commenterniobe
I don't necessarily know what whole is in the <i>after</i>. I certainly feel A's absence, and I, still, filter much of the world through that. But true? Yes. Though I think that, too, is different now. I think of myself as having successfully integrated my son and his absence into my new true me. Which, now that I think about it, might be exactly why it pisses me off when people act as if he was never here, as if he is an unpleasant little incident we should try not to mention in polite company. Because, I am thinking now, that denies a huge part of this newly true me. And if they don't want the real me, perhaps I don't want them either.

Thinking of you and yours as you approach the anniversary. And yes, fuck grace. It's all normal, you know? All of it.
August 25, 2009 | Registered Commenterjulia
It's too new - a week ago only. Or a lifetime. Gabriel's lifetime, many times over - for me to know what whole is. A piece of me, and my old life, died a week ago when my son died in our arms. I'm still working out how to get out of bed everyday and not sure why I bother. For my husband, I think, who cannot handle losing both his son and his wife.

I do not know if I will ever be whole again, what normal will be in a year or two or three.

True? What does that mean? Already, I am fiercely protective of Gabriel and anything associated with him. There were times I wished my other pregnancies had never happened, and that is not true of Gabriel. Even with this end, this horror, this half-life, I would not deny his existence or alter the time we had. There is a terrible truth that is in me, which I am only beginning to explore.
August 31, 2009 | Unregistered Commentereliza
Eliza, that terrible truth? I know it too. I had a very difficult and painful (for him) six weeks with Liam before he died, and it's a strange thing to reflect on him and feel no regret that the world saw fit to deem me his mother. I feel there's an honour in it, that he chose me to fulfill whatever his journey was, just as it was.

A reader had passed this song on to me that dances around this strange state of thanks.
http://www.youtube.com/watch?v=FG0-cncMpt8

My heart goes to you. It's all still so new and I hope we can embrace you here in a way that helps you to feel unrushed and normal and accompanied.
xo
September 1, 2009 | Unregistered Commentersweetsalty kate

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