birthing a dying child
Janel Kragt Bakker is proud mother to Caritas, whose name means "self-giving love." Cara suffered from a debilitating brain tumor and massive hydrocephalus. She was born prematurely on October 16, 2009, and was removed from life support the following day after her condition was deemed untreatable. Janel, her husband Laryn, and their two-year-old daughter Alleia are learning how to live their "new normal" lives amidst their profound grief.
I discovered Janel quite by accident when she referenced my previous writing on a topic that continues to tangle and evade me: our perception of birth and how our notion of our bodies as vessels changes with loss. Janel wrote this piece to be featured in Catapult Magazine, a publication that explores Christian theology. Regardless of what beliefs we subscribe to, the philosophical prompts Janel offers are universal. She expands my hot-headed thinking with grace, and she was kind enough to allow us to share her reflections with you.
~ Kate
Immediately after a woman has birthed her baby, writes midwife Jan Verhaeghe,
Every cell in her body knows and shows her strength. At the end of hours of pain and emotions felt more intensely than at any other time in life, she is exultant. To know the exhilaration, euphoria, and power that comes with the exhaustion and pain of giving birth is truly empowering. After giving birth, a woman knows she can do anything, accomplish any goal.~ "The Empowerment of Birth." New Life Journal. December 2003.
Verhaughe is certainly not alone is her assessment of the birthing experience. Giving birth has long been associated with creativity and conquest. And among many contemporaries, especially proponents of “natural birth,” the experience of giving birth is perceived as the zenith of women’s empowerment. I do not share this perception. On October 16, 2009, I gave birth to a dying child. The experience was one of absolute helplessness.
Twenty-nine weeks into my pregnancy and two months after receiving the devastating news that Caritas Anne, our daughter in utero, suffered from a massive and likely fatal brain tumor, my body went into labor. Due to pregnancy complications caused by Cara’s condition, my labor could not be stopped. All night my uterus contracted and my cervix dilated. At the appropriate time, I began pushing. Cara’s head, swelled beyond the size of that of a full-term infant by spinal fluid and lesion, would not descend through the birth canal. After I was quickly wheeled into an operating room for a cesarean section, I stared at a partition while a team of health professionals wrested my ailing daughter from my body. She did not cry; she barely breathed. And there was nothing I could do to make things right. I couldn’t even touch my child. While another team of doctors worked to intubate and stabilize my daughter, I did what she could not do and the only thing I could do; I wailed.
As expectant parents dream up their their ideal “birth plans,” young mothers describe their birthing experiences around water coolers or playground equipment, and well-wishers congratulate new parents on Facebook walls, the birthing experience is often closely linked to merit. The fewer the interventions, the longer the unmedicated labor, the more (or less) dramatic the coping with labor pain, the bigger the baby, the higher the Apgar scores, and so on, the more heroic the birthing woman. Anyone who believes machismo is a strictly male phenomenon should listen to newly minted mothers swap their birthing stories. The natural birth movement in particular and the contemporary North American culture of parenthood in general deemphasize the unavoidable fact that no matter how much a woman takes care of her body, knows her body and trusts her body, the birthing experience may go horribly wrong.
As Kate Inglis, another mother of a baby who died, writes,
People anoint bodies in hospital beds with words like “fighter” and “miracle” and “goddess” because of the cultural urge to wrap up formative life events with neat little bows. But in doing so, they silently demote everyone else who dies. Or who screams for an epidural, or who falls apart at the incubator of a one-pound child.
We do not exist or fail to exist — or birth and "fail" to birth — because some are stamped with a rubber imprint of GOOD or STRONG or WORTHY and some are not.
~ The Passing-through of Necessary Spaces, Glow in the Woods.
The fact is that giving birth, like so many life experiences, is largely outside of our control. Giving birth is a powerful event, but the power is witnessed rather than manufactured by the mother, father, child or anyone else in the room. To give birth is to encounter beauty, mystery and transcendence, but to give birth is also to meet grave danger and to be laid bare before cosmic forces that we cannot control any more than we can understand.
portrait of surrender (not of the author), lovingly shared by mainemomma
Receptivity is a central motif in Mariology across Christian traditions. "Here I am, the servant of the Lord," says Mary in the first chapter of the Gospel of Luke as the birth of Jesus is foretold. "Let it be with me according to your word." Mary’s openness to the mysterious movement of God is her chief virtue and ours. But opening ourselves to that which is beyond ourselves is dangerous business. The possibility of parenthood is no exception. When a couple open themselves to reproduction, they also open themselves to the relentless pain of being unable to conceive, unable to give birth. A pregnant woman opens herself to being cruelly betrayed by her own body, to standing by helplessly while her child is betrayed by his or her own body. Opening oneself to giving birth is opening oneself to suffering and death-to managing debilitating handicaps, to burying one’s child, to being overcome with sadness at the mere sight of another parent doting on a healthy newborn. Opening oneself to giving birth is opening oneself to hell.
Of course, opening oneself to giving birth is also opening oneself to beauty and transcendence. When I gave birth to our firstborn daughter two years ago, it was indeed an experience of elation and wonder. My husband and I were brought into the presence of God in a unique and profound way as we marveled at the miracle of new life. The veil was also somehow lifted, though in a different way, as I gave birth to Cara. We encountered a God who knows what it is like to watch one’s own child die. And we strongly sensed that God suffered with us and with our daughter.
Some Old Testament scholars define "lament" as the reaction to a belief-shattering experience. Even though I knew better, before I carried and birthed my daughter Cara I believed that if I did what was right, I could expect positive outcomes. This is my lament. Metaphysically speaking, I do not know why bad things happen. I do not know whether God wills them, merely allows them, cannot stop them or something else entirely. What I do know is that I am not fully the master of my own destiny and that one day I will again witness the birth of something beautiful.
~ Janel Kragt Bakker
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Reflecting on birth, what do you feel you know? What do you feel you'll never know? What is your lament?


27 Comments
Reader Comments (27)
I am a week away from the birth of my fourth child - after my third child died during birth. At this point I have surrendered. "Opening oneself to giving birth is opening oneself to hell". YES. Oh yes. I understand this.
I do think back to that birth, it was powerful and beautiful, I did surrender myself and she died.
I feel betrayed sometimes by my "goddess sisters", by my own faith in nature and birthing. I believed and she died.
This is something I'm still trying to work out, work through....
As counter-intuitive as it sounds, Ben and Liam's birth was not so much a belief-shattering experience as it was a belief-creating experience. I entered into it in a complete void of faith. What *was* shattered, for me, was my obliviousness. I hadn't realized how deeply rooted that obliviousness had been, and god, how naked and exposed I felt when it was gone.
The belief that Liam's death created in me... it's tough to articulate. It affirmed for me, to my surprise, that we are accompanied by something bigger and more profound and more loving than what's in our line of sight. Something more ancient than all our human attempts at constraining and packaging it up.
The other belief that was formed in my loss is that my motherhood of Liam was worthwhile. Again, tough to articulate, but that's the word that springs up. Worthwhile. I can't know why he was born so injured, and why he died. I can only presume that he needed to grow inside me, and was meant to be my son exactly as he was. He made my heart bigger. Birthing him made it bigger. As did holding him as he died. Not that his purpose was to make me bigger... but he did.
Rambling. But that's how your post made me feel. Just pleasantly reflective and rambly. Thanks, Janel.
But my initial reaction, Yes yes yes.
I used to believe that if you did the right things, you could usually expect a good outcome. I mean, of course bad things still happened - and to me, not just to Them (whoever They are). But there was still a piece of me that fundamentally believed that in general, if you did the right things (took your vitamins, didn't drink in the first trimester, whatever) and were educated about pregnancy, the birth process, the things that can go wrong, etc, that you could make good decisions and have good outcomes.
Well, my baby boy died shortly after his premature birth, while plenty of the women who were far less educated than I, and far more likely to be simply reliant on their doctors and nurses and float through their pregnancies with no more troubling thoughts than what pattern to choose for the carseat and whether they wanted to attempt breastfeeding or not - well, they are cuddling their newborns now. How arrogant, and how foolish I was.
And since then, birth has been a struggle for me. Giving up my ideals and my goals - I'm forever high risk now, requiring medications, extra monitoring and a cerclage to have a hope in the future; no homebirth or birth center or midwifery care for me ever again. MFMs and regular level II u/s for me now. Having to re-evaluate the things I once fundamentally believed - education will guide you, help you make the best choices so that you receive optimal care. I wasn't so idealistic that I didn't go to the hospital when I realized I was in labor, but I naively believed they'd help me, that they'd stop it. Instead, I was ignored and abandoned - even after being told I was too dilated and I would give birth, I was left alone and delivered my son in triage, while we yelled for a nurse or anyone, dear God, please.
I know now, firsthand and with bitterness on my tongue, that it boils down, in the end, to luck. I was unlucky, in a lot of unfortunate ways. And other women were lucky. I now have no more plans or goals or hopes or anything beyond 'Alive. Living. Close enough to term for a good prognosis. Please let us take the next one home.' Elective c-section? Sure, why not? Schedule my induction the day after my pregnancy is ruled intrauterine and viable? Okay, doc, why not? Stand on my head to keep pressure off my cervix? Not a problem if I can have a pillow please. I'll do anything, and I know everything I do may not be enough.
In many ways, I got the birth I'd wanted. I labored at home, when it became necessary, I went to the hospital and I labored without medication and gave birth in a relatively short time frame to a beautiful baby boy. But what a mockery of that dream it was - it came 19 weeks early.
I don't trust birth, I don't trust my body, I don't trust modern medicine and doctors (though I still rely on them, as they provide the best chance for a future pregnancy I can get). I just hope and sometimes pray. I still educate myself, so I can ask intelligent questions of my new doc and I still want to know the risks and make decisions, but I know now it's only to reassure myself I've made the best, most informed decisions I can, to lessen the guilt if it happens again.
I don't hate God through all of this. Over the past 8 years he/she and I have found a very different, yet closer, relationship than that I was taught in my Christian upbringing. And the verse that I cling to even now is my life mantra.
Yea, though I walk through the valley of the shadow of death I will fear no evil.
I'm there. I am IN that valley. Every day for the rest of my life I will either be in it, stumbling up the side, laying at the bottom of it sobbing or looking down into it as I walk along the edge. And yet I feel a peace and comfort that is so much bigger than me...a peace that passes ALL understanding.
Oh god, yes. The genes my child had, the only thing my husband and I gave it, led to its death. I know that nothing I did led to this, that there was never going to be a good outcome to this pregnancy - but it still hurts like hell.
"Opening oneself to giving birth is opening oneself to suffering and death-to managing debilitating handicaps, to burying one’s child, to being overcome with sadness at the mere sight of another parent doting on a healthy newborn. Opening oneself to giving birth is opening oneself to hell."
And everyone around me is pregnant right now, it seems. and all i want is one healthy baby. and i'm so terrified that i will never have that.
i did everything right. i did everything i could. and yet it wasn't enough. the women around me who drink and smoke have perfect babies, and i have nothing.
i long for the days when i believed without even realising it that bad things really can happen to good people. i believed it about rape, about cancer, about all manner of shitty life experiences. but i really believed that once i got past that magical 12th week of pregnancy, that as long as i did what i should, it was just a matter of time before i could take my baby home.
god, how naive i was.
Over three years later I still feel deeply the loss, wince with unwanted jealousy and longing when a healthy baby boy is born-always co-mingled with revrence and joy. I sit in awe of your words and your wisdom so early on-"What I do know is that I am not fully the master of my own destiny and that one day I will again witness the birth of something beautiful." And I too am still thankful - 3 years since baby taz was born and died- for this place you incredible women have created for us all to visit. And in this late night early morning I sit with and think of all the pain and sadness on this page-us mothers and our children.
Addison had a cord accident at 38-1/2 weeks, although we didn't realize it until 24 hours after she was born. Born--meaning cut from my womb in a repeat c-section (awake this time). I thought all I wanted was the chance to be AWAKE during my delivery the second time around. I guess I forgot to specify I also wanted a baby that wasn't brain dead.
Between my two babies I had a 10-week missed miscarriage. Even that didn't pass on its own--I opted for a D&C to do the work my body should have.
I'm the first in my family to have kids, but naively figured I would have no problems because my mom had 5 kids naturally, my aunt had no problem with her 3, I got knocked up right away--I figured I was MADE to do this (broad hips and all). But I guess it's good I was never the Birth Plan-writing type. My only plan was to get the baby out of me.
It's interesting to hear outside perspectives on labor and delivery. When I was VERY pregnant with Addison, my husband's childless uncle made a reference to "women who took a break from their work in the fields, leaned against a tree, pushed a baby out, then went back to the fields." I told him I am NOT one of those women, thank you very much.
I am no less of a woman because my body betrays me. Every time. But perhaps if I get pregnant again, I will write my birth plan out to the last detail--down to what type of scented candle will be in the OR room (because let's face it--my "Natural Delivery" ship sailed long ago). I will shoot for the stars, knowing in my heart that I will be happy just to take home a healthy baby.
Thank you too, Janel and well said.
The staring at a partition especially hit a nerve with me - those visual impacts are there, burned into your mind. The first baby, I remember seeing the blood on the floor, swirling where I'd stumbled across the hospital room to the toilet, swiped away quickly by one of the staff members. My living son, I remember the disconnect because I couldn't see anything as they took me for the unwanted caesarean, this screaming purple blob waved across a blue sheet then whisked away. Very disconnected, so strange. My daughter Aeryn, it was actually slightly better because the nurses forced the doctor to let us have her near, my husband holding her. She died with me holding her in the recovery room - what a tough little girl she was, an hour and nineteen minutes when we were warned to expect only fifteen to twenty at most. But I thought I wasn't even going to get to touch her while she was alive.
But those blue paper sheets - I'm wondering how bad a flashback might happen when I hit clinicals, but we'll see.
There is this strange jealous pain every time I hear about "miracle babies," even though I am so glad those children live, I can't help but think "But why not my children?" That, and the pain with my living son - I feel guilty when I'm not the perfect mother for him, I was and still somewhat am disconnected from him because I'm terrified that if I love him too much something will happen. I'm overprotective of him and I know it, a side effect of the sister that should be beginning the fits and tantrums right about now that is simply missing. My son asking whether a friend getting married will have a baby and let us have it. His joyful reaction on getting a big bed, followed by him asking whether we can get a "new baby" now since his little bed was empty. How do I explain to a three year old, no matter how clever, that if I ever do conceive again, something I'm terrified of at present, it will require blood thinners and constant monitoring as well as an early caesarean?
I end up trying to see what this life is supposed to be teaching me, and honestly, I'm not sure I'm ready for the lessons.
I have a lot of thoughts, and I can't even articulate them all here.
Reflecting on birth, what do you feel you know?
I feel I know that labor does not always mean a baby. Sometimes I feel like hitting people who are trying to be encouraging about giving birth who say, "And when it's all over, you'll have a baby." Like a baby is a prize. I got news for you: sometimes, you labor and you don't get a baby. Or you face labor knowing that you're not getting a baby. What the hell carries you through then?
What do you feel you'll never know?
I will never know what is it like to go into natural labor. And I feel cheated on that, I really do. The birth stories that talk about "and then my contractions started, and my water broke, and I almost gave birth in the car!" could not be further from my experience. Even the live babies I have birthed were very medically helped along (although I haven't had a c-section). We scheduled inductions, cervadil, pitocin, the whole nine yards. One I didn't have an epidural, the other I did. And, as I did come away with live babies on these two occasions, I guess I wouldn't change anything.
What is your lament?
My lament. I am afraid to leave my lament here. Lest someone doesn't think I don't love my daughters with my whole being. Lest someone blast me for a 'shallow' lament. I am surprised by this fear.
I am surprised by a lot of the feelings this post stirs in me.
peace to you all.
Finn's birth, though under dire circumstances, still filled me with euphoria and power...it was actually with my second, surviving son, a year later, that i suffered birth more as PTSD and then realized what a gift Finn's birth and my own naivete had been. but his death, shortly after birth, opened a lament that i am only now beginning to put my finger on. as Kate says, the experience of having him die and of processing the loss and my connection to him was quite spiritual for me, and my beliefs were vague enough on that front so as to be enhanced rather than shattered by the experience. but something was shattered, and i think it was my sense of agency, my sense that i had the capacity to impact anything in my life positively at all. it was a powerful loss, and one only the kindness of time and happenstance and subsequent luck has eased. but it was a foundational break on a fragile fault, and i am grateful to you for helping me name it and see it.
Caritas is a beautiful name.
That I was too afraid of the pain it might cause him to carry my son a little longer. I missed any chance I might have had to hold him while he was still alive. I think about this every minute of every day.
I also want to go back and kick the me that complained bitterly of the two hours of agonizing pushing that brought my healthy daughter into the world. How much harder were those three easy pushes that brought my dead son into the world.
So now I've trumped the ex-wife and been trumped by the ex-wife. I can't cook - barely at all. I'm no Stepford wife. But when they pronounced my baby dead, stuck some chemical-soaked piece of string inside me and sent me home to soften up, I embarked on a very sick mission indeed. I went to the supermarket (it's beyond my ability to throw something together from whatever's in the fridge, and I did not want to be helped) and I cooked tea, to prove my worth in childbirth. And then I began my pathetic little labour pains and (only kind of) pushed out our dead child - which I bet was a good deal scarier for my husband.
I remember looking for a mucus plug, signs of waters breaking - but I had no water, apparently, and I didn't see a plug. I even feel bad that his head was small and I didn't feel the appropriate amount of pain in childbirth. All in all, not a proper pregnancy, and it embarrasses me, trying to wear the big shoes of the woman who made my husband a father.
My sister, though, saved my self-esteem and my sanity - she has two children, but hasn't had a vaginal birth. She stayed with me in the delivery room. She mentioned she was curious about vaginal births. And since I can't remember one single person ever asking me about my labour, she blessed me with the chance to be interesting.
What I know about birth: what I seem to have always known, for some reason. I'm not sure about the concept of destiny, but I suspect this may always have been mine. As a teenager I had dreams about a shameful pregnancy that disappeared without explanation. As a young woman I joked about wanting to be pregnant but not so much wanting the baby. And I'd say I wanted to care for a girl baby first, but I'd like her to have an older brother. I wanted to have a baby by 35 - I was due exactly one month before my 35th birthday. I didn't really want a career, but I wanted a taste of my dream job before I turned my attention to motherhood. After years of striving, I got my dream job six months before my unexpected pregnancy. Despite never having been pregnant before, I expected to miscarry all the way up until I had a baby carseat fitted, when I finally became content and excited, a matter of days before he died at 33 weeks. What the fuck is it that I knew? Did I make this happen? My palm, apparently, says there'll be three babies. I was expecting to stop at one, and here I am, actually trying to fall pregnant for a second time. Guess I've got a miscarriage to go yet.
What I'll never know: Unqualified joy, holding a newborn.
My lament: I think I began to learn it years earlier when my mother died. Being level-headed, pure in deed and thought, prudent, patient, conscientious, optimistic, believing that statistical likelihoods apply - none of these virtues ensure that life will gradually improve over time. If I want to be happy I must selfishly hunt for it however I can - and break some of the rules I always took as read. I've learned there is no 'they' - the unspecified group of people I must impress, and who will always take a keen interest in my fate. I think 'they' was really my mum. I'm digressing - but the point is that my experience of motherhood confirms everything. Sadly.
As for God or a higher power...I am coming to grips with all of it. Surprisingly, losing our son is slowly pushing me back toward a spirituality that I abadoned long ago. I MUST believe that there is more than death...that somehow, somewhere, my son's beautiful little spirit lives on.
Anyway...thank you for sharing...and thank you all for this space that we can come and be understood and understand others.
Tricia
When I was pregnant with my son, I had a pregnancy journal. I sporadically filled it in. I dated it ahead occasionally, so that I would be ready to record his birth.
For some reason, I only got up to June 6; he died June 4 (in utero).
I say this is answer to your cry, "Did I make this happen?"
No, dear. No you didn't.
I am so sorry for your loss. For all of our losses. As this post makes evident, we didn't just lose a baby.
peace, rpm
Thank you, all of you.
The births of my children who died are every bit as heroic as every other person's birth. But because they died, their efforts and strong wills don't count. If I could only convey how hard our son fought to beat that infection, or how driven our daughter Imogen was to live - you could see the curiousity in her eyes - or how dignified our littlest one was. She did not survive her birth but that does not make her weak or 'destined', 'not meant to be'. She'd be here now if my stupid cervix wasn't a piece of crap.
I guess one of my laments is how sorry I am that they don't get the credit they deserve for their efforts, and my efforts.