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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged, understood.

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« Well, How Did I Get Here? | Main | birthing a dying child »
Monday
Jan182010

now that my heart is open, it can't be closed or broken

I was stirring something. Her voice struck me so intently I still don't remember what I stirred. CBC Radio rose from the background to rendering me incapable of registering anything else. My hand moved slower and slower until I just stood rapt at the stove, listening.

Listen first to her laugh. Then to her words, which yanked on me as the words of someone who knows sadness, yet sweetness.

As it turns out, Lhasa De Sela did indeed have intimacy with those two things, that exquisite pain. The beloved girl of Montreal died seventeen days ago, lost at my very age to breast cancer.

Do you ever see the face of a person that's died, or hear a voice, and feel it's just impossible and absurd and unbelievable that gone is gone? How can it be? She was here, a girl just like me. There she is, her imprint on video. Yet now, there's no other voice in the world that sounds like hers.

+++

Some Old Testament scholars, wrote Janel, define "lament" as the reaction to a belief-shattering experience. Bon's contemplations on this idea turned in the same direction as mine. In her comment she wrote my beliefs were vague enough so as to be enhanced rather than shattered by the experience. A void begs to be filled. That filling is my lament. I formed brand-new beliefs based on what I saw, felt, sensed in the NICU.

Does that mean I'm reconciled to what happens when we die? Good god, no. In the dedication to my book I had to find a tidy way of acknowledging that I have two boys but three, and it's a fantastical book about rampaging wood pirates, so I thought I'll just make up the truth and so I did.

For my three boys—one is all energy and marvel and curiosity, one is pure, sheer joy and wanderlust, and one lives high up in a blue sky, in a roofless, sheepskin-draped room with kind minstrels and acrobats that let him stay up late and eat chocolate by starlight.

I choose the bits and the pieces that muffle the ache. I try, so hard, to remember the presence in the room the day he died. Even if I don't understand our ends, I do my best to not lose the sensation of our means. It was with us, this energy, this palpable love. And when he stopped breathing, finally... that's the one moment that escapes words completely. Articulating the peace and the joy—of him, of the thing that took him—when I felt his weight lifted off my chest. I fumble with it. I stammer. I can never possibly.

What I heard on CBC yesterday in this ethereal, butterscotch voice was divine and sensible at the same time. It's the closest I've ever come to finding a shape for what I felt that day.

Because what I felt? It wasn't an ending. It made me wrack and sob because I couldn't go with him, but still. For him, it was another beginning.

+++

Boil some water. Make some tea. Sit down, and listen to Lhasa speak of her philosopher father and his storytelling of what happens when we die. And in your own way, send some love into the air for her. And then tell me: what do the words beginning and ending mean for you?

click to listen: Lhasa De Sela

 

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Reader Comments (25)

I've been thinking about letting go lately. The letting go that I've done and the letting go that I think I need to do. And with the letting go comes the ending and, yes, I suppose, the beginning. I am able to see the new beginning for him, for my baby boy who let go of a troubled body, fell free of tubes and wires that tethered him down.

He has known his baby sister before even I knew her. He has surrounded me in the stars. These things are not stories I tell myself to make myself feel better. They are simply things I have come to know, but so often that knowing comes in flashes and snatches. It doesn't settle in and stay with me. So the ending is easier to remember than the beginning. Letting go was clearly a new beginning for him. It was one for me too, and like many beginnings it is rocky and tricky, a challenge full of new turns. So I stumble through and get a flash here and there of how my boy is doing. I am glad he no longer endures what he did in the hospital, but, still, still, I wish he were here. Love remains, but longing too.
January 18, 2010 | Unregistered CommenterSara
"These things are not stories I tell myself to make myself feel better. They are simply things I have come to know, but so often that knowing comes in flashes and snatches. It doesn't settle in and stay with me."

Sara, yes. Exactly. Oh my goodness you just phrased that so well. Storytelling, I think, is just how we find the shape of the truths that we know. And for me, the book dedication became an exercise in figuring out how to acknowledge death without my son being nothing more than an ending, you know? It might not be my literal truth (as much as I'd like to think that wherever he is, there is chocolate) but it is absolutely what I believe: that there is magic and intention and purpose and ... just the sense that there is more than we can see.

Letting this truth breathe and exist when cynicism and despair constantly push up against it? That takes work, and I'm not always successful, but I keep trying.
January 18, 2010 | Unregistered Commentersweetsalty kate
I meant to add this - the song Lhasa introduces in the audio clip (Soon This Space Will Be Too Small) is the most beautiful poetry. I could only find the lyrics online, but the whole Lhasa show, including the song, is on CBC's A Propos website if anyone would like to hear it. The whole thing is stunning. http://www.cbc.ca/apropos/

SOON THIS SPACE WILL BE TOO SMALL

Soon this space will be too small
and I'll go outside
to the huge hillside
where the wild wilds blow
and the cold stars shine

I'll put my foot
on the living road
and be carried from here
to the heart of the world

I'll be strong as a ship
and wise as a whale
and I'll say three words
that will save us all
and I'll say three words
that will save us all

Soon this space will be too small
and I'll laugh so hard
that the walls cave in

Then I'll die three times
and be born again
in a little box
with a golden key
and a flying fish
will set me free

and I'll go outside

Soon this space will be too small
all my veins and bones
will be burnt to dust
you can throw me into
a black iron pot
and my dust will tell
what my flesh would not

Soon this space will be too small
and I'll go outside
and I'll go outside
January 18, 2010 | Unregistered Commentersweetsalty kate
Thank you once again-- you've buoyed me on this Monday morning. I just bought "Love came here" on itunes and made it one of my Bridget songs. It is amazing how many love songs can apply to the love for a child-- and how songs about breakups can take on new meaning. Thank you for introducing your readers to this talented and wonderful artist who really "gets it".
January 18, 2010 | Unregistered CommenterKim
I keep remembering to add more and more... but I didn't want to clutter up the post too much. If you like Lhasa's voice, watch this as well. It's bewitching. I'm still trying to unpack how it makes me feel, but what I do know for sure is that I like the task of unpacking.

Lhasa De Sela - 'Rising'

http://www.youtube.com/watch?v=ESwQYGvnJz4
January 18, 2010 | Unregistered Commentersweetsalty kate
we are edging toward it again around my world these days, that facing down of the absurd goneness that every death of someone you love deeply brings. this time all is in order, right with the world: he is ninety and has had a good life. that makes the hole he will leave no less big, but it eases so much, at the same time.

like i said in commenting on the lament post, i did not experience my lament for Finn on the religious level. rather, it left me spiritually open, for a time, in a way i had not been in many years. and as i walk closely with someone else towards dying again, i feel traces of that opening again, that wonder, and i am in the strangest way grateful for the fearlessness the experience of mothering Finn through his death has left me with, in relation to all deaths...except those, i suppose, of my other children. those are doors i now keep slammed shut, hoping the angels pass over.

i realized after i finished commenting the other day what it was i couldn't put my finger ON, though - the lament that i DID experience for my son. it was not spiritual, but philosophical. and it ripped me open at the level of my fabric, and i am only beginning to sew myself together. but this death of my grandfather will not touch that: that, i think, is the difference. for me.
January 18, 2010 | Unregistered CommenterBon
My first time at this blog. No words come to me yet, but it was a nice place for me to visit today to read and hear.
January 18, 2010 | Unregistered CommenterNeil
I'm glad, Neil. Love to you... my grandmother is in palliative care right now as well. I think in a few months you, Bon and I should hang out at the Dairy Queen in Charlottetown. Cause it doesn't matter if they're 94. It still, strangely, comes as a shock, doesn't it?

And Bon, it's the same for me, though some people read me as speaking of religion. I'm not... not literally, I guess. My religion is philosophy. It doesn't have a building or a book attached to it - at least not yet. It's just that openness, that lens. And grasping for it like a starving thing. xo
January 18, 2010 | Unregistered Commentersweetsalty kate
i often struggle with the trying to find the words to convey the depth of meaning of finding my partner in life on our livingroom floor, gone to a place i could not follow ...and the feeling that reeled through my body when i realized his soul had left and his shell was all that remained. and i too look at photos and watch videos and try to grasp the concept that he no longer lingers on this earth. how is that possible when all his belongings and pictures and clothing still remain here? it doesn't make sense. i leave it up to a Higher Understanding I hope to some day have.
January 18, 2010 | Unregistered CommenterSarah
"Even if I don't understand our ends, I do my best to not lose the sensation of our means." kate

"These things are not stories I tell myself to make myself feel better. They are simply things I have come to know, but so often that knowing comes in flashes and snatches. It doesn't settle in and stay with me." sara

Thank you for these. They really mean something to me today.
January 18, 2010 | Unregistered Commenterexcavator
I sometimes come here to simply reflect on loss. I have suffered loss, yet I am not a baby lost mother. I used to feel strange visiting this site at the beginning, I felt like I was somehow eavesdropping on a personal conversation which was not meant for me. I still sometimes do...but it now feels different, it feels like I can come here and at least listen, I can at least try to understand, I can at least try to contextualize feelings that I know exist in my immediate community and among my dear friends. I can at least learn how to be a better friend.

I don't pretend to know what losing a child is like, and hope to never have to learn. Please know however that your stories and histories break my heart every time and yet these same stories somehow instill me with confidence that life does indeed go on and that people can find the will to live through situations that seem impossible. And that this can be done with grace...even through tears and anger.

The thing with loss..in general...is that it creates holes that are hard to fill...I'm not sure they ever get re-mended, but this space does go a long way towards finding the right fabric to begin the process. I always come away from this space feeling just a little more whole than I was prior to visiting.

Thank you for creating this space...I hope to never be a part of this community...but I am glad it exists and draw strength and grace from those who are in it.
January 18, 2010 | Unregistered CommenterNatalie
What powerful words Kate. Thanks for inviting me here to hear them.
January 18, 2010 | Unregistered CommenterMegsie
Your tribute is so beautiful -- I had never heard of this beautiful woman and her art, so I thank you for letting us know about her. The way that you tied her life into yours was so powerful and generous. Thank you.
January 18, 2010 | Unregistered Commenterelizabeth
Natalie has said it all for me, what I have been trying to say. My mother is a babyllost mama but I am not. I don't feel quite right being on this site but Kate said to come on over. I am glad I did to discover the amazing talent of Lhasa de Sela and to read more of your magical words.
January 18, 2010 | Unregistered CommenterAlison, Brighton
This is such a timely post for me, I wrote about this very thing last week.

I adore Lhasa's story. It's a beautiful thought, beautifully expressed.

I am an atheist, I don't consider myself to be spiritual, I don't feel that Iris has a presence beyond the memories of the people she touched. My grief is not so raw as it once was, so I can't rely on that to summon her to me, so I write and make and read aloud so that she will continue to be. And others honour her in their own way too and in some way that truly is enough for me. I don't feel like that's a limiting thought. I feel that's an immense thing, to be remembered here, in the now.
January 18, 2010 | Unregistered Commenterafteriris
Beautiful beyond words, beyond measure.

I grieve in silence, in anonymity, for the son I lost. Thank you for giving me a quiet space to reflect.
January 18, 2010 | Unregistered CommenterTitanium
How heart wrenchingly joyful. What a way to say it and I needed to hear it and I don't think I have thanked this space for helping the friend of a babylost mama. From stopping lactation to what to do about our already scheduled baby shower I referenced this site and it helped so much. Someone had said a girls weekend away would be the perfect gift for her and we decided this would be true of our friend and are headed to see Bon Jovi in April and spend two nights just being girls. Thank you glow in the woods mamas and thank you Kate for once again finding words for something impossible to say :)
January 18, 2010 | Unregistered Commenterjen
Ahhhh, her voice and words are an exhale beyond measure. So glad you found and shared.
I have always felt this way - that birth must be like death to a baby in the womb. I think of twins, like yours Kate, and wonder about that process: how to one twin, it must seem as if suddenly their sibling is being pulled into an abyss and then they are gone. GONE. There one moment and then GONE. Surely, it must be death to them, no? Gone to where? What a mystery. And then, minutes later, they too are experiencing birth/death.
The link to birth/death is one of the many reasons I hold the process so sacredly, and in the moment that I - out on outside - witness birth, I am awed and humbled that this being has come across the threshold of some kind of certain death. It is a simultaneous moment of mourning and joy.
And so I believe that we too must obviously be born somewhere into death. I have no clue where. But what a journey it must be.
Love,
Leigh
January 18, 2010 | Unregistered CommenterMereMortal
I felt so open in that moment Tikva left her body. Maybe it was shock, but I believe it was more. Connection. Beginning and ending as one moment when energy just merged - no separation between Tikva and me and Dave and God and the doctors and nurses and the wind on our faces.

Almost a year and a half since that ending/beginning, I'm not exactly sure of this place where I find myself now. The ending of it feels far away already. The beginning feels far too. Right now is just right now, present. Sometimes it feels anticlimactic, foreign. I have moments of feeling that connection, but they are fleeting.

I too formed brand new beliefs from what I experienced in 2 months with her in the NICU. Now that it's far from that time, I'm trying to tap into what I knew so deeply and completely then and in the months immediately following. Lately my brain gets in the way.
January 18, 2010 | Registered Commentergal
i rarely comment hear as i am not a baby lost mama, but this post is ripping at me a bit tonight. about one year ago, my friend lost her little girl, tuesday, to cancer. 26 months old and survived by her twin. in the last year, her mama and i have found small ways of touching...music, a knit, i keep sending them her way in this effort to do something. and there are days, like yesterday, when i look at pictures of her and find myself falling apart.

it is hard because i never met tuesday, nor her mama yet, but there she is, captured in posts and beauty smiling out of every ounce of her. i do not know why this little girl struck me so to the core...much like your writing does.

beginnings and ends...i do not know exactly what they mean to me at this moment, but this post meant so much. thank you.
January 18, 2010 | Unregistered Commentermamie
"I just bought 'Love came here' on itunes and made it one of my Bridget songs." - Kim

How I love knowing that I'm not alone in collecting songs for the ever-growing soundtrack to my daughter's life. (Thank you, Kate, for bringing Lhasa's voice and spirit forth.)

And I noticed your acknowledgement as soon as I opened your book. It brought me to tears. I treasured your hopes and I hope that Sarah peeks in on the fun at least once in a while. I have a feeling she is there with toeshoes on.
January 19, 2010 | Unregistered CommenterAnna
Oh, I desperately desperately want to listen to this but I can't get it to play. Is there some link I can go to?

I love Lhasa de Sela's voice. I love her singing. It has meant so much to me, so many times.

She was so young. She protected and guarded her gift. I think that's hard for us who wanted so much more of her. Yet, I admire it. There has to be some explanation for the wonder of her singing.

It is hard to think of such beings as those we love as transient creatures, gone without a trace in the future. I guess if time is an illusion they exist perpetually in the present. But for me, that's not good enough. I want them for all time.

But mostly I don't want separation. I have to see them again. That's all I think. I have to see them again. It simply cannot be that I won't see them again.
January 21, 2010 | Unregistered Commenterozma
Ozma - yes, you must listen to it... it's beautiful. The whole radio show that I heard is on CBC's A Propos website - http://www.cbc.ca/apropos/ ... the show was from January 16th and 17th, and right now it's second from the top (I wish I could send you a direct link, but alas... just scroll down a bit)

The whole show is more that worth listening to, but the storytelling about her father is approximately 2/3rds of the way through, or just past halfway. It's the only continuous talking in the show, I believe, so if you want to skip through you should be able to find it pretty quickly.

Hope that works for you.
January 21, 2010 | Unregistered Commentersweetsalty kate
Thank you, lady.
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