welcome

Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged, understood.

Many thanks to artist Stephanie Sicore for allowing us to feature her little bird in our banner.

subscribe
categories
search
Powered by Squarespace
« Change | Main | the inescapability of karma, maybe »
Monday
Feb012010

Still

Just before the turn on the year Angie asked for one word. One word from each, to make a community poem, to kick off the year of still life 365, the art blog by and for the community. I didn't have my word until it was too late, until the submission deadline was past. I had two, actually, but they were connected and I even knew which I would pick if I had to pick just the one. But deadline was past, and so the choosing was academic. Except that my next thought was that surely both of my words must've made it in by someone else's hand, being so obvious and all.

The poem came out beautiful and stunning, and heartbreaking. Just like you would hope it would. However, and this was a bit of a shock to me, my first choice word? It wasn't there.

The word was still. I meant it in terms of time, as in ongoing, continuous, in progress. Although, of course, the other meaning, the one the describes state of being, defined as "calm, motionless, quiet," didn't escape me either. I kinda liked the double meaning.

I miss him, still. I am not the same, still. It hurts, still. I am sad, still, at times. Of some things, I am less forgiving, still. Of others things-- more, now. I love him, always.

 

The week building up to A's third anniversary days was busy. And mostly normal. That was ok, comforting even. I thought, at times, that the busy was preventing me from getting ready in some sense I didn't fully understand myself and couldn't really articulate. At other times, though, I've thought that the busy was protecting me from really looking at what it was we were moving towards.

Three years gone. In its approach, it felt to me like an anniversary significant in a whole new way. It's not the first, the towering marker at end of that first overwhelming year, last of the firsts when you don't begin to know what to expect. It's not the second, the first after the first, when maybe you are starting to recognize the outlines of the thing. The third felt, if this makes sense, like the first of many. Like maybe I should have this figured out by now. And for most of the weekend it seemed like maybe I did. Until last night.

What took hold of me as I climed into bed last night wasn't gentle. It wasn't the missing, to which I cop freely any day of the week. It wasn't the sadness-- I know sadness and this wasn't it. No, the thing that made me cry the full-bodied cry like I haven't in long-long time, the thing that made me howl, the realization that felt physically like what I imagine getting kicked in the chest by a horse might feel, was unexpected and it was brutal. I realized, suddenly and inescapably, that I don't just love A, and I don't just miss him.

I realized that I want him, still.

It's not that I thought of him as unwanted until then. He was certainly wanted. It's just that in a universe governed by laws of physics continuing to want him now doesn't do one a whole lot of good. And it's not that I was suppressing this wanting, at least not in any way that I was aware of. I just didn't know that the wanting was in the picture, you know, still.

The realization did nothing to my perception of reality, by the way. That internalized understanding of the futility of my wanting is exactly what made me wail with impotent sorrow. Time is still unidirectional. And A is still gone, and always will be.

 

I knew exactly what I wanted to say, and it still took me the whole damn day to write this post. Processing, integrating, thinking, feeling. I woke up this morning feeling tender, like I went a couple of rounds with something much bigger than me. I guess I did.

 

How long has it been for you? What, if anything, has been surprising so far? If you've been at this for a while, how have the anniversaries treated you?  

PrintView Printer Friendly Version

EmailEmail Article to Friend

Reader Comments (30)

Nearly 18 months. And not much surprises me with this thing we call grief anymore. Like you said Julia, I still miss her. It still hurts. Nothing has changed there and I can't see that it will. Ever. I too can't believe we all managed to somehow miss this word out.
I thought of you a lot this week, and of course baby A.

xo
February 2, 2010 | Unregistered CommenterSally
Not quite a year. Already pregnant again. EDD almost a month exactly before my son's due date.
It surprises me how the oddest things will catch me off-guard. How the times when I miss him most aren't when I relive the memories of holding him those short four hours, when I speak of how beautiful he was, and how the few pictures I have don't do any justice to how perfect. It's sudden, like it needs to sneak up on me- and then I cry. And it hurts- oh it hurts. I never imagined how much something could tear you apart inside. Yet I go on. Most of the time, I laugh, and am a happy upbeat person. Those who know, wonder how I can be so positive. Those who don't - envy my happiness. They don't see the cloud that eternally hangs over all- waiting to catch me when I least expect it.
February 2, 2010 | Unregistered CommenterPottyMouthMommy
It will be six years in April for me. It always seems that no one else remembers her anymore and only two other people (as far as I know) knew she was a she. No one remembers the date she left, but me, not even the first year. I went on to get pregnant again with my son the month she was to be born, and he has been such a light and presence in our family's life that thoughts of 'the one before' seemed to dim and fade. Once again, except in my thoughts.
I brought up how much I still miss her once with my DH in the past year or so, and he wanted me to move past it as he had. He's somewhat practical that way, he grieved her and misses her in his own way, I know this. So with that, I would say one surprising thing I have found in this is journey, and it's embarrassing to say, is jealousy. I am ashamed to admit, but I sometimes get jealous when I read how husbands, friends and/or family remember along with you. I feel so alone in this.
So, I am left to read here and other babyloss blogs at work and hide behind my cube wall and hope that no one comes around the corner until my tears dry up and the red eyes go away.
February 2, 2010 | Unregistered CommenterRory
Two months. The first month-anniversary was Christmas day. I was surprised at how little that bothered me. How normal Christmas was.

I was surprised when, six weeks after we found out the baby had died in utero, the grief suddenly hit, and I started to walk through a very dark place.

I was surprised at how insensitive some of my friends are, and how sensitive others are.

Rory, I am jealous of that too. I wish my husband was more willing to talk and to... just miss the baby. It hurts to feel I'm the only one to miss it, even 2 months in. Before it was even due to be born.
February 2, 2010 | Unregistered CommenterB
I'm moving through the second year dates so the next death date, in next November, will be 3 years. I am surprised that he is still so prominent in my daily life - I am still recovering. No subsequent baby and part of me is ok with never having a living child because I would still want my son anyway. That sounds kind of harsh and I don't mean that I wouldn't love to have a child but I know that a living baby wouldn't make wanting my son go away.

The first anniversaries were horribly painful, the second ones are much more peaceful so far. It's still just all so very sad.
February 2, 2010 | Unregistered CommenterAnna Marie
I confess I feel a little jealous when I read this post. It's been three years and a few months since I lost the twins and I've come to accept the fact that, while I miss them, I never really loved them. And I never will.
February 2, 2010 | Unregistered Commenterniobe
It will be two years in April since I delivered the boys stillborn. What surprises me the most is that it still hurts every single day. It still hurts as bad as it did a month after they were gone. I think, for me, it's compounded by the fact that I have been pregnant so many times since then and still have no baby. It's the idea that they were 23 weeks, more than half way there and they died. They were our first attempt and I haven't been able to get it right since them. Anniversaries have been what you would expect. I've been surprised at the number of people who remember and think of the boys. The anticipation is the worst though. The anxiety builds and then it's just another day. Nothing bad happens that day except for some tears with Hubby and friends...I keep hoping that one of these anniversaries will find me pregnant with another baby. I want to say, "look boys, you have a brother or sister" but the longer I try, the harder it is to stay positive.
February 2, 2010 | Unregistered CommenterMartha
I am approaching the 1 month mark in 1 week. As I read this it really touched me that someone else's words were able to describe me so well. My mom and I talked about the word still. Our twin boys were delivered stillborn at 19 weeks. The word stillborn really describe our boys birth, the room had soft light, there were silent baby boys that were born, they were so still.

And yes, they are still loved and we want them still.
February 2, 2010 | Unregistered Commenterjeanna
I read this article in the latest New Yorker and thought it was a much-needed look at the messy, cyclical process of grieving: http://www.newyorker.com/arts/critics/atlarge/2010/02/01/100201crat_atlarge_orourke?currentPage=all
February 2, 2010 | Unregistered CommenterRachel
Yep, exactly.
Still.
Always.
Thinking of you. Thinking of him.
Still.
Always.
xxoo
February 2, 2010 | Unregistered Commenterkalakly
Just three years out. Wow...thank you for writing this. You got it just exactly right. Exactly right. Thank you.
February 2, 2010 | Unregistered Commenteraimee
It's only been 2 and a half months and I'm surprised at how well I'm doing. I'm surprised at how easy it is to cry now and then put my sadness away when I'm done. I've become a pro at shaking it off when I need to and letting it overtake me when I want it to. I'm just so surprised at how resiliant we are as humans.

PottyMouthMommy really hit the nail on the head with me. I'm a very happy person to the innocent observer but the fact that I can make myself look a certain way says nothing about how I feel on the inside. Some of us are just chameleons that way, I guess. But it hurts sometimes when people assume all is well and that they don't need to ask anymore. Because I want them to ask because she really is always on my mind in one form or another.

Niobe - that struck a cord for me, also. How can I love someone I really never knew? We named her Olivia but I made it clear while I was pregnant that I would be calling her Olive. It was a big joke to everyone because hardly anyone agreed with me that Olive was the most wonderful name ever - though they did agree that it fit for a child of mine. It was perfect. But I don't call her that now. I just don't feel like I knew her well enough to call her by her nickname, which really sucks.
February 2, 2010 | Unregistered CommenterCaDaLily
Nearly eighteen months.
I'm surprised by how long it has taken me to grasp the fact that she isn't going to come back, that her life was complete in those three days.
I'm still surprised that she died. There is a part of me that doesn't quite believe it, not yet.
That she's still gone. Every morning when I wake up. Still gone.
And I still want her.

Thinking of you and A.
February 2, 2010 | Unregistered CommenterCatherine W
Six months in a couple of weeks. It's hard to believe it's been that long. I thought when it happened that I would be wallowing in grief now, and instead my life is pretty normal. Still worry about money, stress about work, we're ttc again with all that entails for us, we laugh and love each other and we sometimes raise a toast to the silent emptiness that we both feel in our lives.

I try not to live in should-haves, because it should all be quite different, but it isn't. It is how it is and no amount of wishing changes that. What catches me up is how suddenly I can be knifed through the heart, even now. How quickly I can go from joy to despairing, wailing sorrow, and how little I cry anymore. It's like those tears were put away, and they only come out on big, messy, can hardly breathe occasions. Otherwise, it's largely quiet and soft. An acknowledgement that he is missing and we miss him. I do find it a little harder right now, past his due date, knowing he ought to have been born, to avoid the should-haves. But I think that will get easier again with time.

Still and the duality - what a perfect word.
February 2, 2010 | Unregistered Commentereliza
Today I realized that it has been a little over three and a half years since losing the first baby, and coming up on two years for the second. Realized this while trying once again to figure out how to make some kind of marker for the babies and wondering how long a marriage can truly continue without collapsing when you are still petrified that you are some kind of baby death machine. I felt like I should leave the room today when one of the other mothers at my son's school was talking about being five months along with no cravings, bit my tongue not to scream, tried to avoid going near her.
February 2, 2010 | Unregistered Commenteranon
I just passed the two-year mark in December. My daughter was born six days before the first anniversary, so I was distracted in the days leading up to it. This year, I struggled to get through the month. Then I took a sigh of relief when January came. And a few days later, I found myself flailing again.

I am surprised how the loss can still come out of nowhere and take my breath away, make me weak, make me weep. Sometimes there is a clear trigger, but sometimes it is out of the blue. It is not so often now, but when it comes, it hits hard. And again and again I learn what I already know: that this is forever, that there is no getting past it, no reaching a point where it goes away, but forever is too much to take in all at once so I take it in in short gasps. And then go on feeling almost normal, until it hits again, out of the blue.
February 2, 2010 | Unregistered CommenterSara
Tomorrow will be 3 months exactly since she left us. I've been surprised by the kindness of strangers. I've been surprised by my anger. I've been surprised that none of my feelings--strange as they seem--are apparently textbook for losing a baby. I'm surprised I've been able to sometimes put my pride aside and ask for help. I'm surprised I continue to breathe in and out every day. All day long. Even when sometimes I wish I didn't.
February 3, 2010 | Unregistered CommenterRebecca
Err....

I'm surprised how much of my brain has been lost recently. I meant to say that I'm surprised that all of my strange feelings are textbook.
February 3, 2010 | Unregistered CommenterRebecca
25 days until the 1 year anniversary. I feel distracted, tired. I expected to feel worse than I do. I think it's true that time heals - not that I am healed but that things are different. I didn't really believe that could be possible, but it is. I feel more resilient now - much more than I did even 2 months ago.

I am thinking about her, wondering what to do on her day. But it no longer knocks the wind out of me. The absolute dailyness of living without her has fully settled in - I am not wailing at the moon or sobbing in the shower any more. I am just lonely, quiet, feeling beat down, afraid to ask too much of life.

I've been feeling a little bad about not feeling worse this month. Christmas was the worst. November 19th was the worst. Maybe I'm done for now? Maybe I just do not want to go there - do not want to rehash for myself once again the terror, the physical pain, the indescribable, you know, that comes after.

But I've definitely learned this: the grief will get me again in it's own time. I don't have to schedule time to be overwhelmed with pain. It will just wash over me when it wants to. It will recede when it wants to. So now I just go about my days without her and take care of the things in life that need taking care of. And trust that I'll get knocked off my feet again when the time is right.

I miss her still.

Thinking of you and A.
February 3, 2010 | Unregistered CommenterJenni
Three months since she died yesterday and three months and 4 days since she was born yesterday. Like CaDaLily I'm surprised about how already I can keep it down when I need to now. In the beginning I wore sunglasses everywhere because I couldn't stop the tears running down my cheeks all the time. It's not like that anymore and I really thought it would still be like that. And I sort of feel bad about that, I think my Matilda deserves more tears. Having said that when they do hit me (which is daily still) they knock me off my feet. Often I get back into the car after holding them back and cry heaving sobs.

Also like CaDaLily, I think over and over that I'm surprised at the resilience of the human spirit. We saw a social worker when I was 29 weeks pregnant and we thought we'd be raising a child with health issues related to the syndrome and she said to us 'you'll be surprised at the strength of the human spirit'.

Part of what scares me about this grief is the 'still' nature of it. It's going to be here forever. Every year they'll be a birthday for my child that isn't with it. I'll still be missing her and I'll still be wondering what she would have been doing for the rest of my life. I try not to think about this - it makes me anxious.

How quickly my emotions swing has surprised me. In the beginning I thought it would be good days and bad days but now I find I can be laughing one minute and crying heaving sobs the next and back the other way.

How little effort some people make to understand what this could possibly be like surprises me. And the fact others just seem to even though they haven't been here.

That's there's a whole community of us surprised me and the fact I find more support from this community than most other sources.

Maddie x
February 3, 2010 | Unregistered CommenterMaddie
This is beautiful, Julia. I've been almost exactly 18 months (in 3 days) without Tikva, and I want her still. I have a sneaking suspicion that I always will. Somehow, lately, I want her more now than I did maybe 6 months ago. I feel like I want her still like I did in the early months after she died. I want to hold her and feel her and look into her eyes and have her look back into mine. I want the hope that was ahead when we didn't know how her story would unfold.

I want, I want, I want...

It's a hard thing to want, knowing that I can't have. But still...
February 4, 2010 | Registered Commentergal
It will be seven years this June. He still travels with me — with my family — he is still present. The rawness has faded; the grief is different. Still (that word again) present. His birthday (?) June 8 will always mean something to me. I will never escape it; I don't really want to. Except of course if I could choose it not to have happened. If I could choose him to live. Ah, well, that hasn't changed in seven years, I don't expect it to. The anniversaries treat me gently, now.
February 4, 2010 | Unregistered Commenterred pen mama
"I miss him, still. I am not the same, still. It hurts, still. I am sad, still, at times. Of some things, I am less forgiving, still. Of others things-- more, now. I love him, always."

Yes, to all of those. Nearly four years since Freyja died. Just 2 years since Kees was born, and nearly 2 years since he died. Only 5 months since Jet died. And I miss them. I love them. I grieve for them. I am filled with pain anew every day. I am angry. I am hurt. I am unforgiving.

Still.

And I suspect that this won't change in the immediate future.
February 4, 2010 | Unregistered Commentermirne
It has been 9 months and a few weeks for B, and 9 months and a few days since A. I am surprized that I dont seem to know the exact amount of time anymore...A's 9 mo angelversary passed, and I remembered first that it was the 10-yr anniversary of my Grandfather's death, and then the date hit me. And I felt guilty, horrible, unworthy. I remember my 4th grade friends' birthdays, ppl I haven't spoken to in 20 yrs, I have a thing for remembering dates...maybe my subconscious is proecting me. I also feel surprized at how I feel nothing sometimes, like Im still in denial, in disbeleif that this happened, that I burried two babies less than a year ago...and then it hits me and I become hysterical and inconsolable. What I am most surprized by is my anger, quite uncharacteristic of me, it is big and ugly, and does not discriminate.
As someone before me said, I am also surprized by the support I feel from this community-Ive never been one much for the internet, really. Yet here is where I come to find understanding and to not feel so alone. Surprized there are so many of us, too.
I have found so far that the anticipation of significant dates has been harder than the dates themselves, but one year is looming over me, and I think it will be the toughest.
I wasn't around for the one word project, but Im going to check it out and see if my word is there, it would've been LOST.
February 4, 2010 | Unregistered CommenterHeather
It will be 12 (!!) years this summer for us. Anniversaries are always sad, and those "milestone" ones (like #10) are still hard, but they have become less difficult as the years have passed.

I used to find it surprising how grief could rise up out of the blue to overwhelm me. The situations I plan & prepare for usually turn out fine, but there's always those unexpected moments I haven't planned for or couldn't anticipate that will catch me off guard. It's not a surprise to me anymore that they happen, but the how/when/why often still is.

P.S. Somewhat off topic -- the Commodores/Lionel Richie song "Still" was one of my favourites back in high school!
February 5, 2010 | Unregistered Commenterloribeth
It will be 5 years this April since our daughter Delilah was born and died. Her birthday is 4/4 and she died on 4/29, so the anniversaries pretty much span the whole month of April. Her first birthday was excruciating - I had just had a miscarriage, we planted a plum tree for her in the pouring rain, and then my partner, sister in law and I sobbed over the cake while trying to sing happy birthday. The second year was a little easier, as I was finally pregnant again. The third and 4th year were infinitely better since we had our healthy son with us.

Our family traditions for Delilah's birthday include folding origami cranes (one for each year) and hanging them on her plum tree in our backyard and the memorial tree we had planted for her in a local park; picnicking in a lovely nearby town; and, of course, cake (I am a baker). This year, since our son will be 2 1/2, it will be interesting to see how much of it he understands. I'm quite sure by next year we will be having conversations with him about his sister, especially since (as long as the universe cooperates this time) we should have a 7 month old baby by then.

Even though they do get easier, anniversaries are always hard. This week was the 21st anniversary of my mom's death (she died when I was a teen) and I still miss her as much as ever. I expect the same will be true for my daughter, for as long as I live.
February 5, 2010 | Unregistered Commentermama Jen
Coming up on three years here as well. Sometimes I realize that underneath it all - pain, sadness, missing, love - I still have some lurking idea that if I do this right - all of it, every bit of grieving and living too - then she'll come back. Knocks me back every time.

Thanks, Julia - this is a beautiful post.
February 7, 2010 | Unregistered Commenterelizabeth
I just found this blog and it is wonderful and overwhelming at the same time.

It has been 3 years, 2 months and 29 days since our son Ian was born. April 12, 2007. He had died in utero at 21 weeks because of an undiagnosed genetic blood disorder I have that had not been diagnosed - anti-phospholipd syndrome. If my extended family had discussed things more, maybe I would have insisted on more testing.

Maybe... what if... if only.

I had a mother's intuition for weeks before we actually knew that Ian was gone - when my OB was ignoring the signs, ignoring my crying voice mails where I was yelling for her to listen to me. I sat my husband down the night before our visit to a specialist and told him what I was expecting to happen the next day, tried to warn my dad and step-mom who just told me I was overreacting and that God had assured them that it was all going to work out fine. The last thing my OB tried to tell me was that she thought my son was malformed - that his intestines had formed outside of his body.

When I was induced and delivered Ian, the hospital room was so quiet except for tears - not mine. I was just numb, I couldn't look at my son. My husband, my mother-in-law, my aunt - all assured me he was perfect. Absolutely perfect - no deformities at all. Extended family came in over the next day - all took the time to see Ian in the back room of the nursery. I held him briefly, couldn't do it for long - I was afraid I would crush him. I am glad now that we took the steps to name him, hold a memorial and burial service.

Afterward, when I was diagnosed and told that factually, my condition had been to blame, I gave my husband the "divorce" option. I told him that he could leave me and I wouldn't be upset. He never considered it for a second. I wish I could clone my husband's feelings and support for those of you who have husbands who have been less than ideally supportive.

Now, for the anniversaries, we go to his grave - it's in a cemetary out in the country, by a small pond, there are a few trees around the Angel Baby section. We've hung wind chimes in the tree, we spend time with Ian and then go to recognize and mourn new grave markers.

I still have moments when I lose control. We've had 7 confirmed miscarriages since we lost Ian. My husband I think has always been more externally emotional. I am the quiet griever. We now have an instinct, an unspoken arrangement, that when one of us is taking a downward turn, the other remains strong. We alternate our grief. When we had family here taking care of the house and supporting us in the weeks following his death, we could afford to have simultaneous breakdowns.

We are beginning to talk about adoption. I'm 36 and my team of doctors may never be able to mix up the right cocktails of medicine to trick my body into allowing a pregnancy to go full term. I'm coming to terms with that - slowly.

You all are strong, wonderful women. Thank you for sharing!!
July 10, 2010 | Unregistered CommenterDeborah
10 years 8months and 14 days. STILL covers everything. I still hurt, I still want, I still love, I still miss, I still ache and I still need her. STILL.
July 30, 2010 | Unregistered CommenterHermommy
Thank you for sharing that awful moment of realizing that....still....and, unfortunately, probably....always....the missing, the sorrow, the pain, the want....still.
And ...still...and ....always...the joy. It's all ours, personally, individually, as a family, and as a community. It just is.
Thank you, too, for allowing us to 'share' this on facebook and elsewhere....maybe some people who think mothers 'should just get over it in 6 weeks' [grrrr] will read it and understand a bit more, hopefully.
Blessings in the joy and in the sorrow.
September 7, 2010 | Unregistered Commenterg

PostPost a New Comment

Enter your information below to add a new comment.
Author Email (optional):
Author URL (optional):
Post:
 
All HTML will be escaped. Hyperlinks will be created for URLs automatically.