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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged, understood.

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Thursday
Jan052012

reflections: five voices from the family

This month on Glow in the Woods, we are examining family relationships--both our family of origin and the one we create on our life's journey. We want to look at how those relationships change after the death of our child(ren)--how they grow, how they suffer, how our parents and siblings grieve, and how they bear witness to our suffering. Today, we asked the family members of our regular contributors to talk about their grief, the death of their grandchildren, nephew, and niece, and the experience of bearing witness to our grief. We are honored to have them sharing their voices here.

 

jess' father, tauny.

Debbie and I knew her birth date in advance.  We had no hesitation in enjoying another day cycling in the Pyrenees with our friends, secure in the knowledge that the day was already special.  The route up Port de Bales was challenging, exhausting but exciting, all the more so because of the impending delivery which we chatted and laughed about with our other cycling friends – “How old are you, Granddad?”  “Come on Granddad, keep up” – the usual banter.  

At the end of the afternoon, we were about to head down to the evening meal with the group when the anticipated call came... and our lives changed irrevocably.  Debbie took the call from Jessica, expecting happiness but instead receiving the worst possible news from our distraught daughter – Iris was a stillbirth.  We were stunned.  Telling our friends, packing the bikes, hastily arranging flights back to the UK and driving into hospital was a soft, grey canvass smeared by a casual hand stroke.  Meeting Iris and sharing our grief with Jessica, her husband David and rest of the family will remain a jagged and sharply etched memory.

It was not the first time I had experienced severe illness in children, death in childhood, or even still births.  As a paediatrician of twenty-five years, I had “been there, done that” many times in the role of a caring but detached health professional.  My role was to diagnose and treat children, to alleviate suffering, to prevent the consequences of illness and to counsel affected families with warm, wise words.  I was told I was good at my job, and prided myself in my knowledge, my skill and my empathy.  

My experience was no preparation for dealing with Iris.  Intellectually, I could comprehend her death, but emotionally, as a father and grandfather, I was raw, blind and helpless. It was not possible to reconcile professional and family roles and the conflict was devastating.  Even now, several years and many distressing discussions later, there has been little resolution and thoughts of Iris jangle discordantly at work and at home.   

There is a little hole in our lives, and I can’t heal it.


catherine w.'s mother, cynthia.

The consultant who delivered the twins described the survivor as ‘an innocent bystander’, for although she was intimately bound up with her twin sister and with her underwent their extremely premature birth, she did not play an active part in the events preceding and following their birth. Held in her own membrane and nourished by her own placenta, she simply slipped out after her slightly larger sister and in turn was scooped up and cared for by professionals. And at once she was a ‘bystander’ no longer, for all passivity and inaction were gone as she in turn embarked on her struggle to survive.

The dictionary definition of the word ‘bystander’ is as follows: ‘A person who is standing by; a passive witness; a spectator.’  All of which shows what an odd sort of word it is, because what is being described is in effect someone who simply happens to be present, someone who is not a participant but could give an account of what they have seen, and someone who has stayed to look on. A number of other words, some pejorative, could be used to describe such a one, for what right thinking person would choose to be a bystander? In normal circumstances I would certainly not stand by. If I could be of no help, I would leave so that others could get on with doing what they need to. And yet, when my daughter’s twin girls were born, I could not tear myself away even though I could do nothing more than stand by, and be a passive witness, a spectator. Hard as it was to see our tiny grandchildren fighting to stay alive, I would not have been anywhere else, and painful as the whole experience was, it was also a privilege to witness their struggle. Twin 1, as she was styled by the hospital, lived for four days. She fought so hard and rallied time and again, exceeding expectation time and again. Knowing that she would be left with less and less each time she refused to submit, I could not find it in me to exhort her to fight harder or to hope that her life could be prolonged beyond what she could bear, certainly not for our sake, the sake of the living.  

She died in the afternoon, in the arms of her mother and with her father by her. Unable to hold her until there was no hope for her, they gently tended to their little girl until she died and then prepared her little body for the morgue. Her life was so short and yet complete. She was brave and dignified. She certainly taught me as much in the few hours I had with her as those who have shared many years with me. I am deeply grateful for her life and for the kindness and generosity of my daughter and her husband for allowing their respective birth families to ‘stand by’. We could do so little to help and I for one was keenly aware that I was very much on the outside looking in as I witnessed my daughter and her husband go through something I had never experienced with courage, fortitude and dignity.


chris' brothers, mark and michael.

mark.

I remember the day I drove home from work shouting and screaming with tears running down my face.  I remember the mad dash to get things in order and get down to Connecticut.  

A deep, profound sadness cut into me and spread like cancer the day Silas died.  I also remember seeing the small divide between my older brother me that had slowly transformed into a canyon as days and weeks turned into month and years start to diminish. The tragic event that transformed all of us also built an unbreakable bridge between two disconnected brothers. It draws us closer to each other every day.  

I'll never say anything good has come from all of this, but I will say ONE thing has changed for the better.

michael.

This horrific situation brought us closer together as brothers.  I stayed at the house for a couple weeks after the tragic event and although it was horrible to deal with such raw emotions, I knew I needed to be there. It reinforced how strong our brotherly bond truly was.  

Unfortunately, I have a lot of experience with difficult family situations having dealt with a mother battling MS my entire life.  It seemed very natural to just drop everything and be there in any and all ways I could for as long as I was needed.  As time passed, however, it became more difficult to know exactly how much support I should be giving and how much support my brother needed.  I tried to make sure I was there as a shoulder to lean on, but sometimes felt like maybe I was coming up short.  

As years passed, I was able to make some peace with the situation, but I knew those emotions were still very raw for my brother and sister-in-law.  It was very difficult to see my brother in such anguish and not be able to do anything to help him.  The only silver lining in this situation is that Silas has brought us closer together and has made me appreciate how great it is to have the brothers that I have.

 

angie's twin sister, kellyann.

I held on to my niece as I cried.  She was already asleep, and snoring in that way that little children do.  She just lost her sister, her “almost” twin, and she had no idea of what she has even lost.  This is not happening.  It’s a mistake.  Some stupid horrible mistake that we will never think is funny.  I walked down the stairs of my sister’s house, staring at their beautiful life; and then my eyes stopped at the Christmas tree.  This is a just a bad dream.  I’m going to wake up and it’ll all be gone.

People often ask me what it’s like to be a twin, which is a hard question to answer when it’s all you’ve ever been.  I can tell you that when I wake up in the morning she is the first person I call, and when I have news about anything, she is the first and sometimes only person I tell.  She celebrates with me when I am triumphant; she holds me when I am sad; and she tells me I am being an ass when I am being an ass.  My children call her their “other Mama”.  She brings me coffee, love, crafts, stories and joy in the middle of the afternoon for no reason at all.  She is quite simply my very best friend of thirty-seven years.

The next morning I arrived at the hospital, and quickly found my sister and her husband.  They looked tired, puffy-eyed, and both forced a smile.  I hugged them and cried, and my natural instinct to make sad people happy starting wrestling against my tears.  Wake up, Kelly.  Wake the hell up.  I still remember turning on the tv to some inane comedy thing just to help us forget where we were, why we were there and what this means for our family.

I not only lost a niece that day, but also my very best friend lost her daughter in the cruelest way I could imagine.  My niece lost her sister.  My children lost their cousin.  My mother and father lost their granddaughter.  My brother-in-law, who is like a brother, also lost his daughter.  My husband lost his niece.  And when she was born, she was perfect, beautiful.  She looked just like Snow White with her red lips and pale skin, dark hair and delicate features.  She looked just like we imagined.  

We.  It has always been the two of us.  It’s hard to always think of yourself as two sometimes.  Especially when the pain overwhelmed me.  Us.   And so in that way, I felt my uterus contracting as I watched my sister cry and labor Lucy in a darkened, nearly silent room, where the only sounds were her cries and our sniffles.  And for the months after Lucy’s birth and death, I felt my sister’s heartbreak in small and big ways whenever someone asked about the baby, whenever someone didn’t and even when she watched our girls play together.  I listened to her rage and her sadness and her guilt.  She said aloud the things I felt as I looked into her eyes, as I held her hands and drank coffee with her.  

My own grief was often pushed aside to sit with hers.  I think I swallowed it down so I could answer the questions when someone asked about Angie.  I still don’t resent it, if that is what you are wondering.  It helped me function.  I cried when I sat with her.  And watching her so open with her grief taught me so much.  That we all grieve in our own ways.  For me it was crying as I sewed, as I sang along to Nick Drake and washed the dishes, as I held my own children and let them ask me those painfully honest questions that only children can ask.  One of my sister’s favorite quotes is from some bicyclist that I can’t remember, but I do remember the quote.  “It doesn’t get easier, you just get faster.”  And I feel the same way with my grief, it doesn’t get easier, you just get better at dealing with it.

It took me months to accept that it had really happened.  I remember calling Angie and crying.  “I can’t believe this happened to us.”

“I know, sister, I know.”



If you are a family member to a grieving mother or father, what has your grief looked like? What is the experience of bearing witness to your child's or sister/brother's grief?

If your child or children have died, what was it like to bear witness to the grief of your immediate family? What do you think their grief experience was like? Did it draw you closer, or push you further apart?

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Reader Comments (18)

My god. These posts made me cry. I am always so touched by those who bear witness to our grief and mourn our children with us. Sometimes, I get so wrapped up in what happened to ME, that I have to pause and remember that others were affected too. This was a beautiful reminder.

My son's death brought my father and I closer together. He was the only one who could sit with my formidable anger; he was also one of the few who didn't try and fix anything. No platitudes, no "you should...", or "don't be so...".

In almost opposite fashion, my relationship with my mother suffered as a result of her reaction to my grief. She has done lots of touching things to remember Sam and I know she ached to see me in so much pain, but she wanted to make it better and gave me lots of unwanted advice. I resented it and there's a part of me that still does.

My twin brother was lovely. He stood by me in a way that I needed. Rides to appointments - no problem. Invites to come play Rock Band, for lunch, dinner, drinks - and if I cried the whole time, that was okay. He made me feel normal when I felt anything but.
January 5, 2012 | Unregistered CommenterMonique
I just want to say that I love this post. Hearing the other voices has touched me in a way that I'm not sure any other post ever has before. Now there are tears rolling down my face at work, but that is well worth the price I have paid.
January 5, 2012 | Unregistered CommenterWiley
This is the prettiest, most appreciated discordant jangle I've ever seen. Thank you so much, to all of you. Those who contributed writing and those quietly reading, who stood with us: do you know how much you're worth, in the middle of the horrible? So much. I hope you know it.
January 5, 2012 | Unregistered Commentersweetsalty kate
Painful and beautiful to read these words here. Thank you, Dad.

Profoundly grateful to you all.
January 5, 2012 | Unregistered CommenterJess
This was a beautiful thing to read. Thank you all so much for sharing these.
January 5, 2012 | Unregistered CommenterHereWeGoAJen
This is amazing - these words, these families, this generous and thoughtful and courageous sharing. I'm so grateful to everyone who shared their words and stories here. (I'm also gulping back tears and had better stop typing and go get a new box of tissues.)
January 5, 2012 | Unregistered CommenterErica
What a beautiful idea. These stories were so lovely and heartbreaking. I'd love to read my sister's and mum's contributions. It has never occurred to me to ask them to write something like this.
Thank you, lovely Glow people.
xo
January 5, 2012 | Unregistered CommenterSally
Thanks so much for these words. It breaks my heart all the ripples of sadness that echo out from the death of a baby. But I know that for myself I would be in much worse a state had it not been for the love and support of family and dear friends bearing witness to our pain - prepared, like Chris' brothers, to experience our raw emotion. And we are closer as a result - losing our daughter is a wound, but the shared grief is also a strong stitch in the bond between us.
January 5, 2012 | Unregistered CommenterHanen
I'm glad I'm not the only one to be reduced to tears and amazed at these sad, beautiful words.

In a world where it sometimes feels like everyone forgets our poor lost babies as soon as they can, it's so deep-down reassuring to know that they mattered, they made a difference, they are missed, they are loved.

I've always thought that my own family were far more worried about me than the loss of my baby. However, I missed my husband's grief - it took over a year before he let me see a tiny glimpse - and maybe I was too busy grieving (and they were too busy hiding it from me) to notice that they were grieving too.
January 6, 2012 | Unregistered CommenterB
The power of love seeps through every word of these pieces. I read a lot of pieces about grief and loss, but the line, "There is a little hole in our lives, and I can't heal it." broke me down. I needed that, so thank you, Tauny. And reading my own sister's words does not fail to choke me up. As she said, she abided, selflessly. Our families can be such a source of strength.

Thank you so much to the contributors for their generous contributions and insights.
January 6, 2012 | Unregistered CommenterAngie
I honestly get angry when I see how the loss of my beautiful boys hits my husband and children, our parents, and close, close friends. I hate that I went through all this, and I hate even more that they have to walk this walk also. Knowing the guilt my husband has felt, the pain and longing my oldest son feels, and the helplessness my dad has felt, it kills me at times.

Thank you for this post, though. It's always nice to get honest thoughts and words about loss from others' family members. As we all know, it's hard to get those from our own.
January 7, 2012 | Unregistered CommenterCarrie
I can relate to the stories and the comments listed. My own feelings of inadequacy and pain are also depicted in their stories.

It seems like I can do or say nothing right when trying to console my "almost daughter". The words I chose, brought pain instead of healing. Now, even after over a year, I don't know what to say or do. If I speak, I say the wrong thing, if I remain silent, I feel like I am ignoring her pain. Either way I hurt the one I love instead of offering solace. I know that the death of our dear Simone was a tragic and awful blow, unfair and undeserved, but I know that our God will find a way to bring another child, equally loved and beautiful to my dear Branwen. Simone will not be forgotten. She will always be in our hearts. And more importantly she is with the Father and we will see her again: Beautiful and pure, sweet and innocent.
January 7, 2012 | Unregistered CommenterCB
Thank you for this post. I forwarded it on to a few friends and family who were there either for a very important day, moment, or as a constant presence. Tauny your whole letter is an amazing testament to your love for your daughter and grandaughter. Thanks for reminding us that the mom's are not the only ones with a little hole that can't heal. All the posts brought on a flood gate of tears that were very cathartic for me. A friend wrote back when I forwarded the post..."Bawling now. Thanks for sharing , Lara.
Beautiful words amidst such sad stories...wow.
Hard to move on to other things. Just want to go hug Roan(her daughter) now, so I think I
will....
XOXOXOX
January 7, 2012 | Unregistered CommenterLara
Three years ago when my daughter's first baby died quietly in her womb from an infection at 38 weeks, my grief was enormous, and it is still present most days, particularly as she is now struggling with fertility issues. At the time, I used to snap awake at around 3.30 am and not be able to get back to sleep. I wanted to write poetry to express my feelings, but I am no poet. However, this small piece of doggerel conveys some of my emotions:

Grandma’s Grief

When my daughter had a stillborn son,
I wanted to wrap her in a cuddly blanket,
Stroke her hair and wipe away her tears;
Put a bandage on the hurt place
And tell her not to fear;
Protect her with a mother’s love ...
But in my heartI knew -
When Sarah lost her innocent babe
I lost mine too.

PS I have found this site enormously helpful over the years. Thank you for all the profound writing which has given me many insights into how my daughter may be feeling, and what is helpful for me to say and do and what is not.
January 8, 2012 | Unregistered CommenterNZ Grandma
NZ Grandma - Oh, oh, oh. That poem. So beautiful.
January 9, 2012 | Registered Commenterjess
Thank you for this post. I read it for the first time on my son's 3rd birthday. Today I am reading it again, and I'm even more moved. This post and the comments are a gift.
January 9, 2012 | Unregistered Commenter-V.
I postponed reading this for a few days, because I knew I would it make me cry. I was right. Thank you to all the writers for sharing your stories. Thinking about my own family's grief, their support & acts of kindness in the days & weeks & years after our daughter's stillbirth still chokes me up now, 13 years later.
January 10, 2012 | Unregistered Commenterloribeth
I'm only just coming to this series now, after a self imposed blog hiatus. I'm glad I waited until I was in a still and quiet place so I could absorb this completely. I needed to be reminded that Emma's death is not something only I grieve - that the ripples are deep and profound and endless.

I have only hazy memories of my daughter's funeral but there are a few precise images etched into my mind. One is of my father carrying her tiny, white casket into the church. Another is my father-in-law carrying her out. They carried our child when we weren't sure we could and I love them both for it.
January 23, 2012 | Unregistered CommenterJill (Fireflyforever)

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