After The Bear Hunt

The discussion boards for Glow in the Woods are truly that warm, welcoming campfire to so many of those who find us in the darkest of journeys. Throughout Glow's five years, the boards have grown tremendously. We are so grateful to how graciously our community continues to abide, listen, and support one another. Through our growth and feedback from our community, we felt it was time to expand and add another board--Parenting after Loss. Whether you were parenting children before your loss, or parenting a child born subsequently, Glow felt it was time to create a space to talk about the specific issues around parenting and grief.  We hope this space will be welcoming to those in all stages of grief and parenting. As always, if you have any suggestions or feedback on the community section of Glow in the Woods (the general board or the ttc/pregnancy/birth after loss board or our new board parenting after loss), please contact us here. We'd love to hear your thoughts. 

Today, we are thrilled to introduce Merry of Patches of Puddles as our new Board Moderator and a regular contributor. Merry's support and love permeates all the nooks and crannies of this community.  Merry's fifth child Freddie lived for eleven days in SCBU before dying of pneumonia. She is parenting Freddie's little brother and four older sisters in the UK. We are so lucky to have her keen eye, compassionate heart, and eloquent voice among ours. --Angie

 

“You can’t go over it, you can’t go under it…Oh no, you have to go through it.”

So say the words of a rhyme my children sing; lines that have played in my head since I stepped upon this grief path. The Bear Hunt; the long, difficult, fearsome journey.

I tried to find a way to scramble over grief, glide upon its surface and slither down over the other side of a glass dome that reached skyward, holding my baby and my pain inside it. I pledged to write him out of my mind and memory, believing I could escape the trite truisms of the steps of grief. With no intention of reaching acceptance, I relished denial. Busy, stretched beyond measure by the damaged children surviving Freddie alongside me, I pushed my tears to the quietest moments, the dead of night, the bathroom, lonely car journeys of the parent taxi trail. In the daylight, fear and pain on the faces of his sisters when I cried was too awful to behold. Keep it together, put on a brave smile, hold them when they cried. Just keep swimming. Just keep gliding.

Just keep scrabbling desperately to hold on to the life that had been ours, when we could count our children without confusion. When we could hold them all in our arms. When there was no space on the sofa, no space in our hearts, no empty spot between us all.

And then came despair. Choking, horrifying, utterly consuming and black as night and twice as bitter, despair. And I tried to go under it. I told the world and all her wives of my lost son, just to see the shock, see the horror, see the recoil from all the checkout women and frightened postmen who wished the crazy lady away. Begone, with your foul, mud soaked, horrifying grief. Get over it. Move on. Be on your way with your inappropriate love for a boy made of ashes. His loss rose up between us all, the husband and girls who went on and relearned a smile and the mother, woman, wife and now barren and broken part-human who tunnelled through days and wondered how to make another life. Month after month, I sunk beneath blood and anger and disbelief as a never birthday loomed and a life mourning a baby stretched impossibly - broken - in front of me.

You can’t go over it.

You can’t go under it.

Oh, no… you have to go through it.

Through the mud. Through the tears. Through the river that takes the feet from under you. Through the grass that sways above your head, disorientating, blocking the view, all you can see. And all the time dragging my broken children along with me, committed to the path I had chosen - the hunt I had wanted - which was punishing them so utterly.

The work and effort of grief, a journey, a slog, all to find a big black cave and a big black bear and turn tail and run for home, retracing steps, trying to find the place where once you were, trying to keep my other children safe as they bumped and scurried alongside.

And then… and then… lying on the bed, chest heaving from the chase, bones exhausted, tears all cried out and heart hammering. A memory of horror and fear and the jawed yaw of utter destruction, of unimaginable pain, right there, in your mind’s eye.

Slipping… sliding away.

A memory.

He was here. One of us. I do remember him. We did love him. I do love him. He was a person and he is – always - my boy. He was also a journey, one that broke me on every step and which brought me home, but not to the same place.

And, having gone through it, I tell you a truth now. Life goes on. Not the same life. Not the same person. Not scarred exactly but somewhat brutally reshaped.

The journey, now part of me, has the air of a badge of honour to it. I would not be without it. Here, in the unasked for afterglow of grief, I find myself, us, a family, with every decision we make infinitesimally altered by the knowledge that one of us can die.

The lens is different. Everything I do is tinted by the grief lens. My girls go out and I hope to see them safely back. The telephone rings and I hope to not hear of death. A baby is born and my head reels that people ask for weight and gender, not first breath safely taken. My child, admitted to hospital, makes it safely home. I am stunned by survival. The car breaks down, expensively. Nobody died. Our livelihood is precarious. Nobody died. The toddler ballpoint pens the expensive sofa. It’s just a thing. Nobody died.

This is my story, 3 years on. Mine is a journey complicated by my travelling companions; the living children I brought with me, guilt that they know grief, regret that they see fear in my face when illness strikes, sadness that they fumble answers to simple questions about brothers and sisters. Nothing has been the same for them since Freddie died. They do not have the same mother, or father, or family. Everything is a fight to weigh the knowledge of loss against the right to independence. They trod the terror of the subsequent baby path with us and their life is changed because of that.  And his life, the precious princeling who came after, is a kaleidoscope of the fragments of loss, love, longing and fear and joy and wonder that he has as yet no knowledge of and cannot change.

I am not the mother I was. I am twice the mother and half the mother, a patchwork of unwanted experience. I am surviving the hunt and the fear, but I will never be home, not quite.

 

Where are you on your grief journey? Have you tried to move under it? Over it? Tell us what it is like to move through it.

Not Gonna Panic (Part 1)

Something happened to me, physically, in the wake of holding my dead daughter, Roxy. I felt it happen that day, walking from the room where she was born back to our private hospital room where our family waited, wailing. See, one of the perks of having your baby die is that you get your own private room for a few days. They mark the door with a purple flower, which I assume is to warn nurses not to be cheery and congratulatory. I have wanted to stomp the life out of every purple flower since.

Where was I? Oh yes, the hallway walk. It may have been 20 feet, but in my memory it’s 3 football fields. I remember every zombie step, knowing that there was more horror fighting to get into me than could fit, so my veins felt crowded and noisy with electric, terrible blood. A time-release panic valve was installing itself, and I could feel it. A panic payment plan was set up inside of me. I think I know now, 5 plus years later, that I will not live long enough to pay the debt.

I fell through that day without completely dying of it, but I was different. Not just emotionally. Not just psychologically. I was different, physically. I started having panic attacks within the week. I assumed I was having heart attacks. I was certain I was dying. I went to the ER. I went to the clinic. I went through a battery of tests, wore a heart monitor for a month, etc. “No,” the doctor said, “your heart is fine. It may be post traumatic stress.” I’ve been on anti-anxiety meds for half a decade now. The panic attacks are fewer, but they still come. They can be triggered by adrenaline of any kind (roller coasters, sick kids, playing basketball, etc.) I’m a lifer, most likely. This song is about having one of these attacks. It is the self-talk. It is the darting, random thoughts as I try to keep it together long enough to escape my place of work before I collapse.

Whatever is wrong with you goes all the way
Through your awful last name in the dark
I wonder where that dog will run to?
I wonder how long that dog will run?
You can keep your hand to your chest
You can worship by the elevator, leaving
Calm down
Beating beating beating beating
A mannequin in a dress, an overpass
I hope I never get used to losing you
The sound of a car on a bridge
And the things you can’t take back
No matter how long you live
Calm down
Beating beating beating beating
I’m not gonna panic
I’m not gonna panic
I’m not gonna panic

Since your loss, does anxiety overwhelm you? How do you handle it?

This time, again

Those five weeks between when we found out he was sick and when he died exist outside of time.  They accordion out behind me as one infinitely long moment and then compress back to simply Before George and After George, the contents reduced to the width of a single piece of paper.  I alternate between being surrounded by memories, smells, tastes which bring me back to those weeks and real disbelief that The Horrible Thing actually happened at all.  

The more time that passes the more I seem to have difficulty grasping the core of what his death has really meant.  I tell myself that I can't regret what happened in the past because my present is filled with love for my daughter, who in a very honest sense only exists because her brother doesn't.  I fortify myself against the reality of his death rationalization by rationalization.   I am a master at trying to soften the edges of his death.
Then March comes around the corner, always unexpectedly, to knock the breath out of me.  The ether of emotions that normally fog my brain crystalize and it is all suddenly so simple again.  I gave birth to a baby in the cold sterility of a surgical suite.  I held his small sick and dying body, kissed his head, whispering to him I loved him and that I wished he could stay.  Then I simply waited for his tired heart to stop its battle to keep beating.  In March I can distill all the regrets and justifications and apologetics that I conjure up during the other eleven months of the year into a simple elixer of love and heartbreak.  
I am a mother to two children.  One who lives and thrives: a marvel in front of my eyes.  The other dead and gone: a shadow in the periphery of my vision.  But for a few weeks in March, when the world around me is waking up from its wintry slumber, that shadow feels a bit more substantive.  Almost as if I can reach out and hold him again, kiss his head, whisper him I love him, and that I wish he could have stayed.  
 
Do you rationalize the death of your baby to ease your pain?  When the anniversary of the death of your child approaches does it change your perspective on the past or make you feel closer to the one you lost?  How do you feel (or think you will feel) about milestones or anniversaries?  Are they intensely personal events or do you feel the need to share those important dates with people in your life?

quietly forward

I don't want to share her anymore.

Initials traced on sidewalks, birth date carved into wood.

MARGOT WAS HERE, inked on my forehead.

Dropping her name like rain, sprinkled over the city, in grocery stores and preschool and dinners with acquaintances.

Neighbors. Bartender. Old friends.

I have another daughter, I'd lament, with downward eyes, searching for a remedy.

It was like this in the beginning. Shouting, screaming, knees in the mud, heart on my sleeve, anything to feel some sort of connection to her.

For months and a year and more months, I wore her story around me like a cloak, heavy and tattered from the daily grind, dark material, drenched in sadness and anxiety. I didn't care how messy it all appeared. There was no choice to put on the cloak, or to share her, to sprinkle her around the city. Grief doesn't give you a choice. I woke up to life without her every day and that reality felt like all there was.

Somewhere along the ticker I’ve gone quiet. The pulse of my sorrow still beats, steadily, methodically, but sharing her so freely feels uncomfortable now, like it’s a violation of our intimacy.  

Shhhhhhh Daddy, I imagine her whispering, they don't need to know.

Suddenly I’m overcome with this urge for privacy, for things left unsaid, for the cloak to whither and fall, for the sidewalks to wash away, for the wood to rot. I want her all to myself. I want the ways she has changed me to be something that I alone know the extent of. I want my thoughts about her kept only for us, sacred secrets between a father and daughter. I want her ashes, the rocks from her river, the remnants from her brief existence to be tucked away, hidden from bystanders, hallowed ground reserved only for a few.

It’s now in the quiet where I find closeness with her, in the whisper of her name, in the privacy of my own thoughts, in the ways in which she has changed me.

 

 

Do you ever feel quiet? Do you feel like not sharing your children so much? If so, what brought that on for you? I wonder if some of you might feel somewhat off by the idea of being quiet, of not sharing your chlldren so freely?

 

 



The Answer

The intersection of grief, creativity, and writing remains a place of such deep beauty and personal horror, I stand in awe of people getting their hands and souls dirty in it, exploring it with art, music, and writing. Kenny is a songwriter and musician from Bloomington, IN, whose band Gentleman Caller, has just released their fourth record, Wake (Mariel Recording Company). This record meditates on the loss of his daughter, Roxy Jean, who was stillborn at thirty-eight weeks on August 1, 2007. His music breaks me wide open in such an important way. I learn more about my own grief. Kenny agreed to join us at Glow as a regular contributor where he will be exploring his grief with his wise insights, brutal honesty, and dark humor, and of course through his music and words.  —Angie

In the year following Roxy’s death, I was just hunched, squinting and holding on.  I tried to outrun my thoughts, but they were in every hiding place I ran to.  I self-medicated with booze for a few weeks.  Became an expert on panic attacks. Sometimes I just waited, counting days away from the day she died. There was more comfort in math than hugs. I held on and flailed, as quietly as possible, inside my hollowed-out flesh-cage. I went to therapy, took anxiety meds and tried to get to know and understand my new, messed up self. 

During that god-forsaken year, 3 friends also died early, tragic deaths.  One by house fire.  One by drowning.  One by aneurysm.  All three under the age of 40. It seemed unreal and impossible at first… then, inevitable.  Remember, in The Empire Strikes Back, when Han Solo snaps “NEVER TELL ME THE ODDS!” before successfully flying through an asteroid field?  My life, the lives of my friends and family… ours had become the exact opposite of that.  We weren’t beating the odds, but being destroyed by them, and those odds were giggling.  

Hollowed out by losing my beautiful, dark-haired daughter, and managing my anxiety with medication (prescription and other), I was sliding down and increasingly absent of hope. I started recognizing patterns in the memorial services I was attending. The hollow, crying eyes of the mother, the trembling, shaking hand of the father, all while speakers talked about what the deceased loved, how they loved and who they were… and there was always a song. I was so embittered by all the loss, and death just seemed right around the corner for everyone I loved. I was certain I would not live to be an old man. I felt that no one I knew would. 

So, I decided to write my own funeral song.

I wanted a song that would just tell the bleak truths of my life… a song that wouldn’t put a bow on the end of my life, but a thudding and appropriate period. Somehow, it felt like the bravest thing I could do.

It happened immediately upon returning home after the last memorial service I would attend that year. It took literally the amount of time to write that it does to sing it. It remains, easily, the quickest I’ve ever written a song. It also remains the most cathartic:

THE ANSWER

I did not find the answer in church
I did not find the answer in church
I did not want a god that would not spare the rod
I did not find the answer in church
I did not find the answer in my home
I did not find the answer in my home
I was a stranger to my kin
I was a stranger to them
I did not find the answer in my home
I did not find the answer in school
I did not find the answer in school
I was sucker-punched and thin
I was not like the other kids
I did not find the answer in school
I did not find the answer at the bar
I did not find the answer at the bar
Beneath the stale embrace
I was always out of place
I did not find the answer at the bar
I did not find the answer in prescription drugs
I did not find the answer in prescription drugs
I took every pill they make
But I was still awake
I did not find the answer in prescription drugs
I did not find the answer in your eyes
I did not find the answer in your eyes
Not your hands and not your lips
We were always passing ships
I did not find the answer in your eyes

 What songs, if any, have been a comfort to you since your loss?  What songs can you no longer listen to? What would be your funeral song?

comfort

There are the nightmares. It had been so long. I almost forgot them. My children kidnapped, shot. I stand in front of the masked men, offer myself up, belly first, like a fertility sacrifice. I wake in a start. I tap into the collective consciousness, the collective anxiety. I tap into the anxiety that is always there. That anxiety resides right in my chest in the place where, when Lucia died, a dragon woke. He coughs little impotent puffs of smoke. 

You can never protect your babies. Not really, his raspy voice whispers. I will wake in you, breathe fire, swoop in low, carry them off. I will fight until your death for them, but only if I can see. So much I cannot see.

Vulnerability seeps out my pores. I dampen shirts with it. The dragon thinks there is real danger, so I dampen him too. I wrap my children in bubble wrap, place them on a low shelf. They tear through my packing tape, giggling and stir-crazy.

WE CAN'T SIT STILL, MAMAAAAAAAAAAA! WE WANT TO RUN!

They run wild, climb walls, jump and twirl and become trapeze artists, skydivers, lion tamers, lumberjacks. And they want to go to school. And I can only see them sitting there while madmen shoot into locked doors. They will always seek freedom and independence the more I seek isolation and protection. I know because I was once them.

Twenty children died on Friday in Connecticut. Another twenty-two children were attacked in China by a knife-wielding man. It happened in a primary school as well. None were killed. As the news came in on Friday, I sat in my daughter's elementary school auditorium, my cell phone video recorder pointed at the stage, watching class after class of children walk onto stage singing holiday songs. It was terrible knowing the news, but I hadn't heard any of the details. I could only think of how small each of them looked, even the big ones. So much smaller than I remember being. When I arrived home, I read that one full class at Sandy Hook had been massacred. I shudder. I visualize one whole class from my town. I just sat in front of six classes of students ages 5-10--their parents hopeful, proud, delighted, enchanted, trusting. It is too much to think about. I turn away, ashamed that I cannot stare at the grief, not completely at first. It takes me a few hours to turn fully toward the young lives, to read the names of the dead, to see their faces. And when I do, the grief steamrolls me, the anxiety overtakes me, the dragon wants blood.

photo by pirindao.

I face east, like Maoi, waiting for answers. The spring moves in, damp and alive, reminding me of tomorrow. I ask the dragon, but he's reeling too. "Nothing to be done," he grumbles. Then south, the deserts offer me a dry breeze, thorns and poison and the elements of survival. The west offers me a damp cloth, and a sip of tea. "Catch your breath, child. I have no answers either." Finally north. I plant my feet firmly on earth, bellow a guttural, throaty noise, more animal than human. The earth opens, slowly I sink until just my eyes stand above ground. No more questions. There are no answers in the snow and frost. Not in the cold. Not in the desert. Not in the sea. Not in the quarters, not in the elements. They understand nothing of humans. The murders are senseless.  I grapple with my footing again. Four years later. The silence cruel and unnerving.

You must look within, the wind creaks. You must look within. You must look for the place that weeps, the place that hides, and ask it to release you. You must answer the question yourself. You must face that grief, because it is another expression of love. There is great beauty in this world. Look at it longer than the murders. Look at the people holding one another. Look at them longer than the murderer.

I weep for the mothers and fathers, the siblings, the grandparents, for the humans who miss everything now, who have to rebuild themselves, who have to find a reason to get out of bed, who have to go through a first year, who have to come to December, like me, and mourn their children. I tear up thinking of the journey they will lead, the peace that will never come. My own loss seems so small, so meaningless. And that is okay. It is. But it was seismic to me, catastrophic even. 

Lucia is dead four years on Friday. All of these losses coexist and don't battle for dominance. My grief and their grief and the grief of a nation, the world. I have to sit with undeniable truths. In this world, babies die. Twenty innocent children die together in the place that everyone considered safest for them. All this mingles together, jumbles up, and I forget for whom I am mourning. And it doesn't matter. Perhaps I should have always been mourning for all the children who die before they've lived, who die by the hands of violence, who die by the random placement of umbilical cords in wombs, who die by knives on the other side of the world. And I was.

My husband and I held each other and cried. Blubbered, even. It has been a long time since we have done that. We talked about the school shootings. "I can't imagine losing a five year old. I couldn't handle it, Angie. I couldn't." 

I know. I couldn't either, except I would have to, and so would you. Because before she died, we said the same, and then we did.

There is nothing left of comfort. It is meaningless, and besides, we need something more than comfort. We need hope, a sheer idiotic belief in something. I take Mr. Roger's advice to look for the helpers, the assistants, the compassion, the grief, the expressions of love, the people throwing themselves in front of bullets, so children don't die. And I think of this babylost community, who holds each other in the face of grief, lights candles, abides when people no longer will. Compassion is all that is left of good.

 

Please use this space to share the ways in which the news of the murders in Connecticut have affected you, your family, and your grief.