After The Bear Hunt

The discussion boards for Glow in the Woods are truly that warm, welcoming campfire to so many of those who find us in the darkest of journeys. Throughout Glow's five years, the boards have grown tremendously. We are so grateful to how graciously our community continues to abide, listen, and support one another. Through our growth and feedback from our community, we felt it was time to expand and add another board--Parenting after Loss. Whether you were parenting children before your loss, or parenting a child born subsequently, Glow felt it was time to create a space to talk about the specific issues around parenting and grief.  We hope this space will be welcoming to those in all stages of grief and parenting. As always, if you have any suggestions or feedback on the community section of Glow in the Woods (the general board or the ttc/pregnancy/birth after loss board or our new board parenting after loss), please contact us here. We'd love to hear your thoughts. 

Today, we are thrilled to introduce Merry of Patches of Puddles as our new Board Moderator and a regular contributor. Merry's support and love permeates all the nooks and crannies of this community.  Merry's fifth child Freddie lived for eleven days in SCBU before dying of pneumonia. She is parenting Freddie's little brother and four older sisters in the UK. We are so lucky to have her keen eye, compassionate heart, and eloquent voice among ours. --Angie

“You can’t go over it, you can’t go under it…Oh no, you have to go through it.”

So say the words of a rhyme my children sing; lines that have played in my head since I stepped upon this grief path. The Bear Hunt; the long, difficult, fearsome journey.

I tried to find a way to scramble over grief, glide upon its surface and slither down over the other side of a glass dome that reached skyward, holding my baby and my pain inside it. I pledged to write him out of my mind and memory, believing I could escape the trite truisms of the steps of grief. With no intention of reaching acceptance, I relished denial. Busy, stretched beyond measure by the damaged children surviving Freddie alongside me, I pushed my tears to the quietest moments, the dead of night, the bathroom, lonely car journeys of the parent taxi trail. In the daylight, fear and pain on the faces of his sisters when I cried was too awful to behold. Keep it together, put on a brave smile, hold them when they cried. Just keep swimming. Just keep gliding.

Just keep scrabbling desperately to hold on to the life that had been ours, when we could count our children without confusion. When we could hold them all in our arms. When there was no space on the sofa, no space in our hearts, no empty spot between us all.

And then came despair. Choking, horrifying, utterly consuming and black as night and twice as bitter, despair. And I tried to go under it. I told the world and all her wives of my lost son, just to see the shock, see the horror, see the recoil from all the checkout women and frightened postmen who wished the crazy lady away. Begone, with your foul, mud soaked, horrifying grief. Get over it. Move on. Be on your way with your inappropriate love for a boy made of ashes. His loss rose up between us all, the husband and girls who went on and relearned a smile and the mother, woman, wife and now barren and broken part-human who tunnelled through days and wondered how to make another life. Month after month, I sunk beneath blood and anger and disbelief as a never birthday loomed and a life mourning a baby stretched impossibly - broken - in front of me.

You can’t go over it.

You can’t go under it.

Oh, no… you have to go through it.

Through the mud. Through the tears. Through the river that takes the feet from under you. Through the grass that sways above your head, disorientating, blocking the view, all you can see. And all the time dragging my broken children along with me, committed to the path I had chosen - the hunt I had wanted - which was punishing them so utterly.

The work and effort of grief, a journey, a slog, all to find a big black cave and a big black bear and turn tail and run for home, retracing steps, trying to find the place where once you were, trying to keep my other children safe as they bumped and scurried alongside.

And then… and then… lying on the bed, chest heaving from the chase, bones exhausted, tears all cried out and heart hammering. A memory of horror and fear and the jawed yaw of utter destruction, of unimaginable pain, right there, in your mind’s eye.

Slipping… sliding away.

A memory.

He was here. One of us. I do remember him. We did love him. I do love him. He was a person and he is – always - my boy. He was also a journey, one that broke me on every step and which brought me home, but not to the same place.

And, having gone through it, I tell you a truth now. Life goes on. Not the same life. Not the same person. Not scarred exactly but somewhat brutally reshaped.

The journey, now part of me, has the air of a badge of honour to it. I would not be without it. Here, in the unasked for afterglow of grief, I find myself, us, a family, with every decision we make infinitesimally altered by the knowledge that one of us can die.

The lens is different. Everything I do is tinted by the grief lens. My girls go out and I hope to see them safely back. The telephone rings and I hope to not hear of death. A baby is born and my head reels that people ask for weight and gender, not first breath safely taken. My child, admitted to hospital, makes it safely home. I am stunned by survival. The car breaks down, expensively. Nobody died. Our livelihood is precarious. Nobody died. The toddler ballpoint pens the expensive sofa. It’s just a thing. Nobody died.

This is my story, 3 years on. Mine is a journey complicated by my travelling companions; the living children I brought with me, guilt that they know grief, regret that they see fear in my face when illness strikes, sadness that they fumble answers to simple questions about brothers and sisters. Nothing has been the same for them since Freddie died. They do not have the same mother, or father, or family. Everything is a fight to weigh the knowledge of loss against the right to independence. They trod the terror of the subsequent baby path with us and their life is changed because of that.  And his life, the precious princeling who came after, is a kaleidoscope of the fragments of loss, love, longing and fear and joy and wonder that he has as yet no knowledge of and cannot change.

I am not the mother I was. I am twice the mother and half the mother, a patchwork of unwanted experience. I am surviving the hunt and the fear, but I will never be home, not quite.

Where are you on your grief journey? Have you tried to move under it? Over it? Tell us what it is like to move through it.

4 years gone

Tomorrow is Silas's birthday.  He would be four years old.  Imagining our four year old son cavorting through this house, the yard, our lives, is painfully impossible.  I can imagine what that Universe would look like from the outside, but not how it would feel in there.

It would have the same hint of crimson in the leaves and the same gorgeous fall breeze alight on a brilliant blue day.  There would be the same cool and colder nights and suddenly hot September afternoons.  But maybe I would not notice the touch of decay creeping into the shadows.  Certainly the first falling, orange leaf I witnessed would not carry the weight of death and despair like it always does now.   With my amazing son's fourth birthday helping to usher in autumn, I probably would not hate this time of year.

September makes me cringe.  With the flip of the calendar I know what is coming, but I have no idea how to deal with it.  I doubt I ever will.

Taking a quick inventory it appears that this year's emotions are: helplessness, fear, anger, disbelief, confusion and a deep and abiding despair.  In other words, same as it ever was.  In detail: I can't change the past.  I'm afraid of anything happening to Zeph, ever.  I'm still quite upset with the midwives, and at my foolish, naive trust in them.  That this is my life and that my firstborn son is dead remains impossible.  Four years now I still don't know how to properly prepare for and honor his birth/death day.  And of course, still, always and forever, I am profoundly sad I don't get to share my life with him and see what kind of man he would have grown into, and how he would have changed me.

I always feel all of that on some level, but this month and week and final days compress and tighten in my veins like my blood is being replaced with liquid concrete as my memory unfolds the events of that long night and longer day.

Growing up my mother would always recount the events leading up to my birth.  I loved hearing her tell me our beautiful, shared history.  But Silas's day is made of silence.  No one wants to hear that story and I can barely stand my own mind as it ticks off each milestone and moment.

The outpouring of love and support from friends and family as Sept 25 approaches yet again has been... nonexistent.  I'm shocked that is the case, frankly.  Maybe they are planning a surprise grief party, but I doubt it.

Our families had been incredibly supportive and understanding as Lu and I thrashed in agony in the first years after he was gone, and then they continued to handle us gently and kindly as time passed.  But maybe four years is enough for them.  They did their best, and now that's pretty much it.  New son in our life and new babies all around means new beginnings and big happiness for everyone and it's time to move on and let Silas drift into our past, as if his life was just something that happened, instead of something that is.

There will be a few friends that are conscious enough to make a call or send a text or email.  And I almost wish I could steal all knowledge of Silas from my amazing mother debilitated from MS and my incredible father taking care of her, if only just to save them from any more hardship and sadness, but I know they are crippled with despair over the loss of their grandson, and I know they know what is about to happen once again.  I wish I felt that same conscious understanding from others, but the fact is people are mostly wrapped up in themselves, and if you want anything from them you need to tell them clearly and loudly exactly what you want.

But that's the problem.  I can't say, "Hey it's going to be Silas's birthday in a few days and it is still really really tough, so I need you all to just say his name to me and tell me you miss him and show me that you remember."  Because if you have to remind someone to remember something, they're not really remembering at all, are they?  They are just responding to your clearly spoken need without any of the actual remembering or forethought.  And that fucking hurts.  It's that same expectation game all over again, but I don't really give a shit.  They should remember.  They should tell me that.  They should reach out and grab me as the calendar winds up to Sept 25 and launches me to the edge of the Abyss once again.

Instead we'll do it ourselves, and take care of each other as we always have.  We are going to Silas's tree tomorrow. This will be the first year we have a living, breathing child in our lives and it definitely makes it far better than it has ever been before. Of course as we sit there around his older brother's memorial tree I am not going to be able to stop thinking about the fact that someday I will have to share this deep sadness with this gorgeous, innocent child.  And that, of course, is awful.  I don't have any idea how I'm going to handle that or how his understanding of this awful history will affect him as he grows up.  I already feel terrible that we will have to break his heart someday.

Me, Lu and Zeph are going to Silas's tree tomorrow, and we're going to plant tulips and have a little lunch picnic and cry our fucking eyes out and laugh at our amazing son who loves to play with sticks more than toys and enjoys eating rocks as much as fruit.  He loves both of us so vividly he almost can't handle it sometimes.  He's a wonderfully wild and alive little child and I wish with every cell of my being he had an older brother to torment and grab and run with and learn from and squeeze just as hard as he yanks on us.

I'm not working at all tomorrow.  I'm just spending the day with Zephyr, as I always do on Tuesdays.  It should be his older brother's birthday party.  Instead it is something else I wish no one would ever have to endure.  With silence all around and everyone consumed by their own lives, we will embrace each other hard and make this awful day slightly less unbearable just by doing it together.

The concrete fills my veins drop by drop as this day approaches, until I am immobilized by sadness, and my soul shatters with every step I take through his birthday, his deathday, his impossibly brief life.  I will settle into bed as dust tomorrow night and I will dream of his stars and wish his younger brother had Silas in his life.

~~~~~~~~~~~~~~~

How has the day of your child's birth and death changed over the years?  How many years have gone by since you lost them?  What has changed about how you deal with that day?  How have the people around your responded (or not) to that anniversary?

tattered and faint

The plastic hospital fork felt slippery in my latex-covered hand as I fed my mother unpleasant mashed potatoes.  She hated the taste and that she had to be fed and I hated having to do it, but neither of us had a choice in the matter.  MS is a brutal disease and this most recent trip to the hospital was as enraging and scary for her as it was brutally sad and awful for me.  But my presence made her feel better, and I would do anything I could to help her heal enough to get back home.

I ate alone that afternoon before I went in to see her and I could feel my sadness as a physical presence in my body.  Silas's death was not an inoculation from grief.  I learned many things from that experience but one of the most important was that the only way through it is straight ahead.  I also learned that silence and aloneness and grief are utterly tied together for me.

Sitting in that restaurant yesterday it felt like an old familiar poison coursing through my veins. I felt more than just alone.  I felt a complete Otherness, like an alien in my own skin, totally cut off and unlike anyone else in the establishment.  I also knew I appeared absolutely normal and that no one there would ever suspect my blood had turned sluggish and thick, that my guts had a hole in them bored straight to Hell, that my heart was clenched like an angry, angry fist and that my soul was tattered and faint once again.

Silas's death was sudden and impossible.  That perfect pregnancy shattered in an instant and I felt cut to pieces.  My mother's sickness is a slow grind of failings and infections but the shock of a loved one in the hospital and in mortal peril is equally devastating in much the same way.  I guess that is what happens when hope is revealed to be nothing more than a wish, and that health and life are revealed as fleeting and delicate.

My mother may yet heal enough to go back home, but she won't walk out of the hospital.  She has not been able to walk in years.  She may battle off this latest infection and be granted a few more years but it is impossible to know.  It is terrible, but I cannot help but look at her and know that someday, someday sooner rather than later, she won't be here anymore.  It turns out that despite the years of crying after losing Silas, that I have not used up my life's allotment of tears.

Sometimes my grief is all-encompassing, transforming the world around me into a pale, featureless void that echoes the endless blackness within.  Sometimes it compresses into that angry knot gripping my heart so that I can breath and eat and live but only with great effort.  Every now and then when things are particularly good, that sadness is reduced to a tiny, dense speck that I can almost overlook except that it is so small and compacted and ridiculously heavy that nothing can move it from the core of my being.

I can't make it be anything else than what it is, though, and the only way to endure is to breath as deeply as I can, let the pain wash through me as tears and shit and rage, and try to force another tasteless bite of food into my body before I go and help my mother do the same.  Her incredible strength and will to live has kept her going for thirty-eight long years with MS.  Her example was what gave me the strength to battle through the worst of my pain when Silas died, and now I have to be strong for her, too.  I know I can do it because I've already done it, because she showed me how.  I just hope I have enough for all of us.

How has the loss of your child or children altered your sense of sadness and grief?  Have you had to deal with losing other people in your life since you lost your child?  How was that grief different or similar?  What does your grief feel like in your body?

The Older Sister

Sometime this weekend, while she is playing, or reading, or sleeping, or eating, or attending that second live concert in one weekend, or having tea with a real live writer (her aunt knows the coolest people), or working hard at improving her full turn or her free hip or her tuck, sometime in this weekend packed with so.much.fun she will cross a threshold she is not aware of, but I am. Sometime this weekend my daughter will have lived more than half of her life as a bereaved sister. I could calculate it exactly, down to the minute, really. But I don't let myself. I don't want to know that precisely.

This is a kind of thing my mind gets hung up on. I remember coming up on living (then) half my life in this country, and it seemed a big deal. My sister, who's eight years younger than me, and so reached the same point that much earlier just sort of shrugged-- she was so far past that place herself that it was no longer a thing for her at all. Thinking about that I wonder whether this will ever seem like a big deal to Monkey. I know she is not thinking about it now, and I don't know whether she ever will. She is, by nature, a storyteller, not a mathematician or scientist. And so it is not clear to me that even looking back from any place in her hopefully long and eventful life this invisible line will matter a diddly to her. She was so very marked by her brother's death itself that it might never matter to her that there was a time before it, or how much time that was.

She grieved. Oh, she grieved. Out loud and quietly. In her first language, the one we speak at home, and then, as she started school and her English improved and they started learning Hebrew, in two more. Like all of us, she is no longer in that acute all-encompassing phase of early grief. But neither has she dispensed with it. Which is, of course, as it should be. And, at the same time, as everything about this, it's too fucked up for words-- the kid's not yet ten, and she's lived with grief for half her life.

There are things about her that are undoubtedly shaped by her experience as a bereaved sister. It's not that she is somehow an expert at other's grief. But she has a fine sense of what is and isn't about her. She understands the shades of sad. When a beloved teacher in the school died suddenly and unexpectedly in December, she was sad, but she also understood with piercing clarity that hers was a sadness from a distance. She and a couple of classmates spent some time that afternoon writing letters to dead people, including the teacher. She let me read her letters.

She wrote four letters total-- one to the teacher who died, one to her brother, one to my grandfather who died before she was born and in whose honor she is named, and one to my grandmother who died in May and whose funeral was the very first Monkey ever attended. There is no sentimentality in any of these. There is no cuteness. There is no mixing of her issues in with the sadness of others. And that is why these letters (I kept them) get me still. She is not even ten, and she has this understanding that we all wish more adults around us had.

To her brother she says that she misses him still and loves him. She notes the age he would've been, and how she thinks her younger brother would've liked to have an older brother too. And, still, still, still, she says she wishes she could see him. Me too, kid, me too.

To my grandmother she says that she didn't really know her (true-- dementia is a horrible thing, and by the time Monkey could remember things well, my grandmother wasn't herself anymore; they did have a lot of fun earlier in Monkey's life, though, and for that I am glad), but that she knows how much her daughters miss her.

To my grandfather, and I must say that it surprised me that she wrote this one, she says that she is named after him and tells him that though it is very sad, his wife has died recently, and also that he is still very missed.

To the teacher she says that she is now very sorry she never really knew her. She was a middle school teacher, but she also had been involved in many things at the school. It was remarkable to me that Monkey understood the difference between how she knew the teacher and how the teacher's students knew the teacher. Monkey says that she is sure her daughters miss her (of course), but then she doesn't say that about the students. She describes, instead, what is happening near the teacher's room in the school-- there is a bathroom across the hall, and Monkey writes that the lower school kids are not allowed to use it because her students are in there-- they are crying and washing their faces, and crying, and washing, and on and on. I cried when I read that. I have tears coming up now as I write about reading that.

The mindfuck of this is that it's not that she is naturally fearless in the face of pain. She is sweet and she's always been kind, and she has a good deal of empathy. But she is not, and I know it is strange to say about a kid who hurls herself at the vault table and flies to execute her bar dismount, she is not naturally the most courageous person you've ever met. She is cautious and risk averse. And as we all know, death is a scary thing, and raw pain of a grieving person is perhaps scarier still. So the fact that Monkey is better than most at handling other people's grief is mostly about her own biography, her own story. It sucks. I am glad she is the way she is. I hate that she is that way because her brother died.

I heard it said about the senior rabbi of our congregation that because his father died when he was very young, he is drawn to comfort the grieving. Like a proverbial firefighter, he runs towards the grieving family when others are tempted to run away. Monkey is not like that. She doesn't run towards the grief. She might even hesitate, as she did about whether to attend my grandmother's funeral or about whether to visit her kindergarten teacher recently as she mourned the loss of her own elderly mother. (This was the teacher who helped Monkey find her voice in both English and Hebrew, the latter because at the time she was saying kaddish, Jewish mourning prayer, in the classroom every school day for her father, and entirely without prompting and without telling us Monkey joined the ritual.) But even in those cases, it takes but a short conversation, a few sentences really, for her to change her mind and be there for the grieving.

On the way back from the visit with the kindergarten teacher Monkey asked why the teacher'd said that visiting the grieving was one of the most important and difficult mitzvot (good deeds). As I think about the conversation that followed now, we focused mostly on the "important" part, discussing how visiting with the grieving lets them tell you about the person they are missing and about how that itself brings comfort. We kinda skipped the whole "difficult" part of the statement. I guess we both know there are harder things than that.

If you were lucky enough to have older children when your baby died, have you marked any significant grief-related milestones in their lives since? Do you see them as bereaved siblings? Do they see themselves that way? If you have younger children, are there things about them that you see as grief-marked? Are there other children in your life that are connected to your baby who died for you? How do you see their milestones?

the laundry

There is a craggy shore jutting around the beach. Just off  the edge of a sloping ramp, he parked over tumbled ocean rocks. My father sits in his wheelchair facing the sea. He always loved the sea. He turns and smiles at me. I stand in front of him, holding my arms out to him for leverage, but he waves me away. He stands and walks, navigating the rocks. He can walk. I can't believe it. He is healed. At night, I dream that my father can walk and that my daughter is alive. They are impossible dreams. Dreams borne of half-awake prayers that start as grounding but end in cures and resurrections and healing. He walks past me toward the wild sea, all white caps and the thunderous booms of water falling to earth. He stands before the ocean, glancing back at me before walking into the water, fully clothed, but free.

photo by RachelCreative.

I’m not sure if my father remembers that my second daughter died in my belly. But whenever I talk about how my baby died, my father cries. His sickness envelopes his body, wrenching his hand into a limp, unusable limb, seating him forever in a wheelchair. It took decades of slow torture, losing his abilities one at a time. His legs shake involuntarily like phantom remembrances of walking.

His emotions run closer to the surface now. He expresses, emotes, leaks tears despite himself. I hadn't seen my father cry until I was in my twenties, long after he was diagnosed with Multiple Sclerosis, then it seemed his crying wouldn't stop. I used to avoid making him cry. I turned away from him. It embarrassed me. I cracked a joke. But these days, it comforts me to see his humanity. It reminds me that this man is my father and I am his safe space, even though the crying is so unlike him.

He doesn't remember her name, or at least, he has never spoken her name aloud. He never has spoken of her. He has never asked me about the grief. He has never asked me how I am coping. He asks me how my new house is, even though I have been here for five years. But when I mention Lucy, he weeps. It is like he suddenly remembers. Or perhaps it is as though he is hearing it for the first time all over again. It is so sad that our baby died. He forgets, but when he hears about it, he knows it is sad.

The day after I returned from the hospital, after birthing my stillborn daughter, I called my father. I wanted him to hear my voice, to know that I was okay. I was obliterated, destroyed, yes, but I was alive and talking. When I told him the baby died, he cried. We cried together on the phone. A few minutes later, he asked me when I was coming to see him. He wanted to know when I was bringing his laundry to him.

I hung up and wept into my hands.

Birth, dead child, hemorrhoids, unused engorged breasts, no flowers, no funeral. My father still needed his clean clothes. He still needed his clothes. I didn't even begrudge him that. Even in our worst moments, we still need food, water, air, clothes. I just couldn't give him any of those things in those first weeks, particularly not clean clothes. I wept not because I was hurt, but I wept because I miss my father. I miss his health, his paternal advice. I miss all that he could have said to comfort me.

Resentment for the friends and acquaintances who said nothing was a wild, suffocating vine winding around my heart, squeezing out my compassion, clinging to my fear, bearing a bitter, inedible melon. Yet I have a vast well of patience and acceptance of my father. I suppose it is easy to have compassion for someone who is sick. To be forgiving and loving and compassionate to someone whose disease robs him of his memory, paternal instincts, and empathy. I sit cross-legged and send him compassion every day, even though twenty years ago, I wanted nothing like compassion for him. I wanted my anger. I liked my anger. But it softened after a few years, and transformed into a patient, unconditional love. That is what he gives me, unconditional love, given and received.

Last week, I heard a speaker talking about spiritual suffering. He asked the group, "If you are standing in line in a convenience store and a boy in a wheelchair cuts in front of us, would you lose your temper? Would you have words? Would you ask him to step outside? Or would you graciously give him a moment, gesture for him to take your place?" He remarked that most of us would be forgiving, compassionate, generous to the boy in the wheelchair. We all nodded. Then he asked why we don't treat everyone else in the world with the same compassion. What if you could see everyone as a spiritually sick? All the people who stepped in front of me in line, or cut me off in traffic, or berated me for one thing or another. Or those who couldn't manage a simple "I'm sorry" after the death of my daughter. What if I could see those people as spiritually helpless? Spiritually sick? Emotionally handicapped? What if I could treat everyone else as I treat my father?

After three years, I am only now getting to the point where my anger and unrelenting expectations of other's capability has softened. So much of my emotional forgiveness was spent on my father some days, I thought it sapped my reserve, as though tolerance and compassion were finite resources, quantifiable and conditioned. I wrapped myself in intolerance for people I deemed well enough to know better. Righteous indignation was my woobie, my excuse for not allowing people into my grief, to bear witness to my vulnerability, my weakness, my need for friendship and compassion.

I understand now that my father's gift to me after Lucia's death was needing me. He needed me to do his laundry. To get up and have someone to be accountable to, someone who was able to cry about how sad it was that my daughter died, but who still needed me to get up. He didn't see me as weak, absent, lacking, intolerant. He saw me as his strong, able daughter, bearing the brunt of daughter-death and father-caring. Or maybe he didn't remember her death, but perhaps that was a gift too.

Do you have different standards for support from your friends than your family? Do you expect more from your friends or family? Do you have anyone in your life who receives your patience and forgiveness despite their approach to your child(ren)'s death? What makes them different than others? 

Family Assortment

If I had noticed them, standing there, standing by, I would have felt sorry for them. But I only had eyes for my girl. I should have felt sorry because, being my family, they couldn't run away. They couldn't pull that conjuring trick of disappearing for six months, a year. Then coming back with a forced smile and pretending that none of this had ever happened. That there was no other baby. Vanishing her with a slick sleight of hand. A grandchild, a niece. Here and then gone in a puff of smoke.

When I did finally look up, they were still standing there. Three decades of looking to them for succor, for consolation, for aid and I felt as though I had taken a hammer to them, smashed their bones, set a snare or a pit fall trap. "Come with me," I'd whispered in their ears. Luring them towards a place where they could only be hurt. Coaxing them along with me to a place of death and illness with false promises of chubby babies and matching outfits.

Until the day Georgina died I hadn't hit my younger sister for at least two decades. Our days of tussling and hair pulling long behind us. But that day, I felt as though I had delivered a sucker punch to that face, so dear to me. When I handed her the dead body of her niece with such maternal pride, I ripped at her flesh, pinched and pulled and bruised. In one fell swoop, I took all her security, all her potential pleasure and joy in her own pregnancies and babies, all her calm, all her peace and crumpled them up. I only hope that she has managed to smooth them out again and, whilst they will never be as they were, that they are still usable, that they will serve. And I am so sorry, more sorry than I can say. I was supposed to protect her, to show her that this was easy and lovely.  

But she didn't run, she didn't fall silent, she didn't refuse that body, its smallness, its deadness. She didn't flinch or look disgusted. And, if it were possible, that made me even sadder that my daughter had lost her own sister. And she'll likely never have another.

***** 

I sometimes feel that I was the bystander, the observer. As I watched my daughter's twin sister die. Because it is not in my generation that her absence will echo longest. After all, I managed to live nearly thirty years without her. I expected her to carry on living, long after I had died. But her siblings, they could have had a relationship with Georgina that lasted throughout the entire course of their lives, it could have been their longest connection, their most lengthy friendship. And nobody might have known Jessica better than her twin, kindled into being alongside one another, nervous systems and heart forming together. Georgina could have been a confidant, a supporter, a source of worry or trouble, a mortal enemy? I'll never know and Jessica will never know either. With luck I expected to fade out of Georgina's life at the half way point. But Jessica, she lost the potential of a lifelong companion. And sometimes that seems so much worse, so far greater a loss, than my own.

***** 

I have always been easily hurt. When I was a child, my father tried to toughen me up. It didn't work. I am, I have concluded, un-toughen-up-able. I am still what the kind would call sensitive and the unkind, a wuss. When Georgina died I felt as though all of my skin had been flayed off. That there was only the thinnest line of defence between the outside world and my churning, flinching internal organs. A couple of lines of cells perhaps. Not much of a shield. 

And then those words come. Those words. You don't need me to spell them out because you've all heard them already. People have said them to you, about your baby or your babies, about your grief, about how this all makes sense only you can't see it, about how you are too angry or too sad, about how you need to be like this or like that, about your self pity or self-absorption.

Like needles, piercing my onion skin remnants as I tried to clutch them around me, stabbing straight into my guts. When these words come from a nobody, a passerby, the needle jabs in and comes straight out again, a clean strike. But when they come from somebody close, someone you love, the needle can go in and explode. Like a dirty bomb. Spinning out fragments that scratch and remain. Thin pieces of metal that can encourage infection or which linger, healed over but never entirely integrated. Irritating your flesh. 

And I began to understand how family feuds begin, how people can chop those they once loved off like a diseased tree limb, never to be spoken of again, fit only for burning. Some of those words are not easy to forget. Sometimes I question whether, by forgiving them, I have somehow allowed my daughter to be set aside, considered less. Because I am afraid to make a fuss, to call them out, to say "no, you may not speak about her in that way. Do not dare." 

Photo by wwarby

But then I remember. All those other words, the words that wrapped me and my little girls up so tightly. That told me that she mattered. The dead one. The tiny, broken one. That I mattered. That what had happened was sad but that it was not my fault. The hands that held me and washed me and smoothed my hair. That cooked my meals and filled my car up with petrol and made sure that the mortgage got paid. And those binding, wrapping words, those kindly hands, are so much more important to me. 

It doesn't matter that the hurtful and the helpful often came from different individuals, some consistently jabbing at me with exploding needles, others always handing out tea and scones. Because it is easier to deal with being wounded with someone's arm slung around your neck. And, having lost one, I didn't want to lose anyone else, even those wielding pointy needles. Or perhaps I was just too much of a coward to risk making a scene. 

But here's the thing about family, be they the family you call your own by blood or the family that chooses you and that you choose in return, when others run away, they might just stay. If you're lucky. When others are silent, they might continue talking. When I was walking around like an open sore. When there were no right words because the only words I wanted to hear were something along the lines of, "oh this has all been some major administrative error and obviously should never have occurred. Our apologies and please do reclaim your daughter. Just fill in this form." When they had to talk on a subject that was painful and uncomfortable to them for hours and hours because I would not countenance anything else? Well it's inevitable that somebody's feelings are going to get hurt. It's hard to talk about grief and death at length, especially with someone who is as easily jabbed as I am. 

I found this quote on the internet a while ago, my sources tell me it's a Swedish proverb. These words remind me of my family.

'Love me when I least deserve it because that is when I really need it.'

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And your family? Your friends? Did they run? Did they flinch? Did they say the right things? Or the wrong things? Or nothing at all?

If they hurt you, did you manage to resolve it? Did you cut any family members or close friends off entirely? And how do you feel about that now? Regretful, remorseful? Or glad and relieved?