lost in translation

We sat across from her, an arrangement of flowers and a small analog clock sitting on the table between us.  She was young, only a few years older than myself, pretty with a well-tailored black dress and an almost preposterously large diamond ring on her finger.  Her office overlooked part of a very famous street in Los Angeles where the wealthy spend ungodly amount of money on handbags and diamond-studded watches.  She was a psychologist or therapist, I can't remember which now, that we found via a referral from our OB after George died.  There were five names on that list and I picked hers from the lot solely because she was the only woman. I naively believed that her sex would somehow imbue her with special counseling superpowers.  I should have known better.

Sitting stiffly in the overstuffed couch, we told her all about how our life had gone from blissfully happy to utterly broken.  I did most of the talking (between wiping away tears and my runny nose) while Leif sat beside me and quietly held my hand.  I relayed the events leading to George's death and watched her reaction to it all with an observant eye.  She furrowed her brow at the right times and nodded sympathetically when I had difficulty maintaining my train of thought.  She said all the right things and reacted in all the right ways, yet something about the blankness in her eyes made me feel as if instead of talking about the death of a much loved baby we were discussing my disappointment over being passed over for a job promotion.  It took all of ten minutes to conclude that she was an experienced actor and that she had little empathy for the ugly circumstance which had brought us in to see her.  Forty minutes later it was over and I was writing a check to her for an absurd amount of money, thankful to be done with experience.  

Back in the car we agreed never to go back to see her.

After that miserable experience I threw out all the other counseling referrals we were given and turned to the Internet.  I tried every combination of words to find counselors who specialized in pregnancy and neonatal losses. Grief + infant + death + depression + counseling = the saddest collection of words I've ever Googled.  The results were abundant and spanned the spectrum of mental health workers: from family therapists to psychiatrists and even naturopaths.  I must have looked through those results dozens of times before gathering up enough courage to pick one and make the call to set up an appointment.   Given how badly our first experience went it still surprises me that I somehow mustered the bravery (desperation, more likely) to even make another attempt. 

Thus the Internet threw me a lifeline -like it has done for me on so many occasions since we lost George- and brought me Anne.

Anne was the antithesis of the first woman we had earlier met with.  Her warmness was as welcoming as the first therapist’s disingenuousness was off-putting.  Even their appearances were starkly contrasted.  Instead of an expensive black dress and hair slicked back in a tight ponytail, Anne wore casual white slacks, a pastel sweater and a string of understated pearls on her neck.  She smiled easily and it never felt inappropriate or forced.  From the moment we began talking it felt like a homecoming and for the next eighteen months it became my refuge.

When I first started seeing Her I felt alone in my grief.  As much as I had tried to convey to friends and family how lost I was or how deeply I missed my baby it was a language completely foreign to them.  It wasn’t as if they didn't try to understand but there was something fundamentally lacking in their ability to interpret my words and behaviors in the wake of George’s death.  Once I wrote in a blog post that it was incredibly painful for me to be faced with images of carefree pregnant women and a pregnant friend took deep offense.  It made me feel awful, both because I had hurt someone who had been a good friend, but also because it made so very clear to me how alien my experience was to those around me.  That was the last time I ever wrote or said anything of that nature outside of the safety of Anne’s office (and later the safety of private conversations with other baby loss people) for fear of offending someone who was not fluent in the language of loss and did not understand the consequences of post-traumatic stress.  After a time I learned to hold back my words for fear that they would be falsely translated into insults or that they would make the impression that I was more depressed then I actually was. 

It was incredibly isolating and not just a little discouraging. 

To Anne, when I told her how much I hated hearing about other women’s pregnancies or how deeply I burned with envy at seeing birth announcements, I was completely normal.  To a grief counselor I was just mourning the loss of my baby, my pregnancy, my previous life, and my self-image.  She understood my language and there was no need for me to make any effort to translate for her.  I did not have to soften the edges of my sharp and sometimes cutting thoughts.  Every week I saw her it was an emotional and physical relief just to sit with someone and not need to filter or mold every word out of my mouth to either A) convey how devastated I was or B) avoid making myself sound like a black-hearted monster. 

One of the most valuable things I learned from our time together was how to accept that no matter how eloquent the words I used to describe my grief there was always going to be something lost in translation for those people who were fortunate enough to have so far been spared any real tragedy in their lives.  They would never ever totally understand (how could they) what I was feeling but the good ones worth keeping around would make an effort to try.   She assured me that there would be people that I would find walking the same long and arduous road that I was on and they would not need any translation.  There would be people who understood.  I just had to keep my eyes and my heart open along the way. 

Anne was the first person I came across after George died who gave me hope that I would not be alone in my grief forever. I found those other people she told me I would find, other souls who were slugging through the same muddy road as I was: other grieving souls who would become friends and for whom no translation was needed.  Hope is an amazing gift.

 

Have you seen a grief counselor?  Was it a positive experience?  Was there someone else who you felt understood your grief when no one else seemed to?  Has it been frustrating for you to have people not understand or misconstrue your words and/or behaviors in response to your child's or children's deaths?

Blank stares, crickets and tumbleweeds

Recently a friend of mine posted news announcing her third pregnancy on that social media site I sometimes wonder why I joined.  It was a witty, read-between-the-lines kind of announcement that is commonplace in the land of non-baby loss folk.  It is not announcement any of us who have ever had to make the other, darker kind of pregnancy announcement (The baby died.  I’m not pregnant anymore) are apt to make anymore for a subsequent pregnancy.  With my daughter I did not clue anyone into the fact that I was pregnant until I was about 18 weeks along.  There was no formal announcement I just sort of stopped denying what people already had suspected for awhile.  I waited that long not because I was afraid that she was going to die like her brother, although in fact I was pretty sure that was exactly what was going to happen.  Rather it was because I did not have the emotional capacity to deal with the proclamations of “This time everything is going to be fine,” or “Try not to worry, it isn’t good for the baby,” by well-meaning people.  Turns out I got them anyway so it ended up not really accomplishing anything. 

 

Had George been born with a healthy heart and not three months early he would roughly be the same age as that of my newly thrice-pregnant friend’s eldest child.  As much as I would love to say that after three years of navigating the world of baby-loss I’ve risen above comparing my life to others I can’t.  It is just not possible for me to look at this friend’s life and not draw comparisons to my own.  She has a three year old doing those things that three-year olds tend to do.  I have a baby; dead for three years, not doing those things three year olds tend to do.  She has a second baby and a third on the way.  I am struggling to get pregnant and stay that way long enough to bring home a second living baby.   I think about her and imagine that my life could have looked very similar to hers if only fate had favored me in the same way it had favored her.  I think about her and envy the relative confidence she likely possess that her current pregnancy will have the same result as her previous two did.  I don’t have any confidence that any future pregnancy I may or may not have will result in a living baby. 

 

A year ago I was in a place where her announcement wouldn’t have been much more than a tiny blip on my radar.  Back then it was fairly easy to have a conversation about pregnancy without white knuckling through the entire thing.  I had also mostly stopped mentally reprimanding pregnant women for complaining about trivial things like swollen ankles and nighttime trips to the bathroom.  If a friend wanted to tell me about her birth plan I was mostly fine with it.  Sure!  Let's do it!  Let's talk about playlists and birthing balls and the evils of medical intervention.  I was a champion!  I was a fortress! I was a pillar of support!  

 

Two miscarriages later and I’m not feeling so enthusiastic about being a champion or a fortress or a pillar of support anymore.   All I’ve been able to muster in words of encouragement for my friend on her most recent pregnancy is a simple “congrats” to add to the multitude of other congratulatory responses she’s received.   I wish her the best, I really do, I just don’t want to talk about or otherwise be around it, that’s all.   So should she ever want to talk to me about birth plans and swollen ankles and nighttime trips to the bathroom, for now it’s going to be nothing but blank stares, crickets and tumbleweeds. 

 

How do you feel about your friends' pregnancies?  Has your opinion about thier pregnancies and/or your comfort level with them changed over time?  Do you feel guilty about the way they make you feel?  Have you been made to feel guilty about the way they make you feel?  

friend

I lost a few friends after George died.  Well, really, they were in the process of being lost during the five weeks that he was in the process of dying and that I was in the process of changing into something different than before.  For those weeks and the ones immediately following, phone calls went unanswered and emails went unreturned.  Our previously close relationships changed into something else, something not anything anymore. I was taken by surprise by the change but I probably shouldn’t have been.  

...

Melissa made the drive to the hospital from across town after work.  She brought a board game and we played scrabble on my hospital bed.  Our laughter temporarily filled the space that the thwump-thwump of his heart tones normally took up in our room.  Nurses, who were as constant as my shadow, mostly left us alone and for an entire hour I felt almost normal again.

...

I can look back at my life and divide it into discrete periods, each one associated with a different version of myself.  Each Brianna, similar in some ways and completely unique in others, was surrounded by a relatively distinctive set of friends.  Adolescent Brianna and Teenage Brianna had some friends in common but they mostly faded away once University Brianna made her first appearance.  University Brianna evolved into Adult Brianna and the story repeated itself; friends came and went.  Throughout all the versions of myself over the years there have been a few friends that have remained steady: veins of marble in the limestone of my life.  For the most part though, friends have come and gone with time. 

...

The necklace that often hangs from my neck is a secret between Jennie and me.  A delicate gold band imbedded with a single diamond, a gift she gave me immediately after George died.  “Your laughing star in the night sky,” she told me. “Remember the Little Prince.”

...

As I’ve changed -or maybe as my friends have changed- so have our relationships.  Sometimes we’ve stayed buoyed to each other and sometimes we’ve floated away, each pushed along by the tide of our own lives.  The friendships that have stuck and have followed me through my life despite all the changes, both theirs and mine, are the ones in which we’ve continued to find new places in our lives for each other. 

 ...

Natalie and Marc flew out for a long weekend after he died.  We went to the beach and to a karaoke bar.  We stayed up too late and drank too much red wine.  They ate Korean fried chicken with us even though they did not eat meat.  They listened.  We talked and cried.  They remember our son…still. 

...

I am not the same as I was four years ago and neither are all of my friendships.  There is no more animosity for the ones who could not stay but there is so much gratitude for the ones that did. 

 

 

 

Tell me about the people who stayed, the people who were there to abide with you.  Tell me about your Melissas, Jennies, Natalies, and Marcs.  I want to hear about the good hearts and the souls who have suffered right along with you.  Tell me about the ones who have continued to love you even as you’ve changed.

 

 

Double cherry

When we were

Eleven

I told on her

And another one of

Our friends for

Being slightly

Snide

About my

New blue blazer.

She was in my class

Very smart

Straight A’s

All the way.

Like me

She struggled

With her body image

Like me

She had a wild heart

That loved the wrong men

Like me

She was ambitious, strong

Worked long, rose high

Like me

Her baby died

And as I stood by her side

As she said goodbye

I wished that we were

Different.

Has anyone close to you also had a baby or babies that died? How did that affect you in your own grief?

The Ambassador

I had that call again.

A friend of a friend. Someone’s brother. A former colleague.

I shake my fist at Jimmy Stewart, because every time my phone rings an angel gets its wings, but it doesn’t seem so uplifting when the angel is a dead baby and you don’t believe in angels anyway.

I hope you don’t mind me getting in touch, I just didn’t know what to do and I thought of you immediately…

It reminds me that I am a denizen of a bruised nation with a missing population. We stand invisibly united under a knitted, never-used flag.

We did not choose to come here. We cannot leave, cannot flee. Yet we are dispersed. Grieving refugees. Missing a home we hardly built, earth we barely touched.

Another family crosses our border and we do not bring them casseroles. Or, y’know, we may bring them a casserole, but really we’re giving them some kind of painfully extended metaphor for what the next weeks/ months/ years will be. There is no silver lining, so perhaps a free casserole is the best we can hope for.

I feel like I should stand on something and proclaim:

Friends, Mourners, Undiscovered Countrymen…

But no one here wants a rousing speech, or maybe you do. I don’t know. We do not speak a common language, or share common customs. We hold different politics, different faiths, different aesthetics. We are connected, but only nominally. In reality, babylost covers an extraordinary diversity of experience. There are so many ways for babies to die. It still shocks me.

The friend of a friend. Someone’s brother. The former colleague.

I do not know what they want. I barely know what I want, truthfully. I want to make some weak joke: …something something DIPLOMATIC IMMUNITY, am I right folks??!!

I am an undeserving emissary, chosen by default.

Yet I am your Ambassador.

And you are mine.

Have you encounterd a babylost ambassador? Someone who had walked the path before you and helped you navigate your grief? Who are they and what did they do that helped?

ghost town

I lost my daughter then I lost my friends. Not simply lost them. It was more like they drove me out into the country and told me to go run out in the woods for a while, they waited by the car.

"There, Angie, check out behind that big tree. A little further away. There is something shiny there. It is the internet and there are people on there whose babies died too."

"Over here? I don't see it."

"Just a little further. Go on now. Be good. I loved you once."

"Okay. I love you too."

And I watched their license plate become illegible in the distance. I walked back to town, determined to understand, only to find that they moved without a forwarding address. So, I suppose, they lost me.

 

photo by Denise ~*~.

 

Villages of friends were gone. I walk into the ghost towns of my past, sidle up to the bar. There is nothing left. I am not part of their tribe any longer. I slam the empty bottle of the long bar. They were drinking buddies, after all, not friends. For years, it made me angry. It made me angry that my daughter died and then I kept losing more and more and more until it was just me.

When it was just me, I saw you. And you. And you. And you. And you is beautiful and amazing. I told you all about the pain of losing friendships, and my daughter, and raising a daughter and every little thing about this experience. I listened to you talk about it too. We suddenly had a little boom town of the babylost. I felt normal.

Normal was all I ever wanted.

 

+++

 

Everything about my life changed after Lucia died, even though it looked exactly the same. And I feel attached to all those things I once was, like grape vines winding around the withered parts of me--my arrogance, my lightness of being, my inappropriate anger, my bravado, my aloofness, my old friendships, the confidence I had in my body. I cut the shoots, understanding that those bits of me are dead, but the tentacles grow back, clutching dearly again to something already gone. (I fear it takes the nutrients of my thriving, beautiful bits.)

In the weeks after, it became abundantly clear that I had no idea how to feel anything but anger and longing about her death. I was not emotionally equipped to handle the death of my daughter, except I had to handle it. It was awkward and painful. I clumsily talked to people, until I just couldn't do it anymore. I drank heavily. I watched the same safe comedies over and over. I was afraid to call friends and cry. I thought I would never stop--hysterical, uncontrolled tears. Keening. Misplaced anger. Blame. Fear. Blubbering. I heard the conversation before I uttered a word.

If I say I want to die now, you won't understand. You will think I am suicidal. You will call the authorities. You will take my only living child. I just don't know how to live this life without her. I don't know how to shop for groceries now that she is dead. I don't know how to make small talk. I don't know how to watch Law & Order. I don't know how to do anything.

And so, thinking they understood that about me, I expected them to call me. Surely someone calling a grieving mother would know what they signed up for if they called. It felt rude to call someone, even a very good friend, just to cry, even though, ironically, I longed for someone to call me in the early months and cry. I just wanted to be needed, not underestimated. I had once a month calls from a few friends, which were like tall cool glasses of water in a drought. I never cried during those conversations. I was almost maniacally positive about how fine I was doing. Then those petered away too. Mostly, it was silence broken by long, drunken tirade emails. 

Left to my own devices, I behaved badly. Oh, I behaved graciously here and there, but mostly I was angry, chaotic, impulsive, and afraid, lashing out at unsuspecting strangers in markets and yoga studios. The crying stopped eventually. The misplaced anger at other people slowed. I quit drinking. I figured out how to shop, and chitchat, and watch crime dramas. I learned how to feel all the emotions of grief, not just the loudest ones. I went to baby showers, and parties, and stopped expecting, or wanting, anything Lucia-related to be discussed. That took time, but it happened. The grief fog lifted. 

Being the me I was and grieving was fucking torture. So I changed stuff about me, like who I trust and when I trust and what I trust and how much I trust. I changed what I give and what I take and what I give personally and what I take personally. I changed what I complain about and what I don't.

I couldn't call those old friends after I changed. I didn't know what to say to them anymore. I wasn't over her death. I would never be over her death. But I learned to live with it. Time had moved forward. I moved forward. They moved forward. I missed so much, and they missed so much. Not many people stepped up. Those that did, stepped away eventually. I never called them to ask about the thing I should have been asking about--birthdays, illnesses, new jobs, old jobs, pets, boyfriends, girlfriends, new babies. When I came to fully understand that my daughter was never coming back, I came to understand that neither were my friends. I don't blame them anymore. I was a terrible friend--grieving and overly sensitive, impetuous and distant. I didn't and still do not understand how I could have been any better. I did the absolute best I could with who I was. Emotionally, I was stunted and small. And maybe they were too.

+++

I wrote because I didn't know what else to do with this ache in me. I couldn't speak it to my closest friends, so I wrote her birth story. I posted it on the internet. I thought that was everything I knew about her. I put it on a blog. Maybe someone will read it, maybe someone will understand. It was a flare shot into the night. Or a campfire, as we say around here.

Then I wrote about going to the market. Suddenly, people were there. Other grieving parents. I read about tears in the produce department. I wrote about my fears and anxieties and loves and revelations. I wrote like no one but babylost folk were reading, and sometimes, I wrote like they weren't even reading. I wrote with a kind of freedom that is both naive and slightly endearing. I found myself in the community I longed for since birth--supportive, honest, loving, compassionate. I made friends who appreciated my dark side, as well as the other parts of me. And I theirs. I had found normal.

Writing publicly about grief and pain and the darker parts of losing your child remains both incredibly comforting and absolutely terrifying. In most of my friendships that ended, the complaints centered around my blog and writing. My friends didn't like grieving, complaining, sad, disappointed Angie. 

You wrote about the friends! How unforgivable! You made it sound like we are terrible people! You write about your dead baby every week! That's too much! You make art and sell it! It is about the death of your baby! How terrible! How gauche! Everyone is sick of everything BABYLOST! It is unhealthy! It is wrong! We can't have it!

I never expected any friends to read my blog. It had nothing to offer them. It certainly had nothing to offer me for them to read my innermost, ugliest thoughts about the death of my daughter. I never imagined they would read, but they did.

I wrote because I had no idea what else to do. I wrote because my friends didn't call, and I couldn't call them. I wrote because I needed a community, to feel normal, to feel worthy of compassion. But it came with a steep price. 

Because I lost Lucia, I found something of myself tangled in the tumbleweeds of my emotional and physical defects. After everyone left, something dark and ego-filled, sensitive and critical, drunk and capable of sobriety, redemption, and forgiveness emerged. I forgive those friends, not because they have made amends, but because I have. I had to forgive my humanness. In doing that, I had to forgive theirs. I was grieving the death of my daughter. I did the best I could, and so did they. I sit with who I am now, a human being worthy of compassion. You taught me that. Thank you.

 

How have your friendships been affected since the death of your baby(ies)? Do you have a blog, or on-line presence? Do your before-friends know about your on-line community of babylost? Do they read your blog, or participate in your forums? How do they feel about it? How have you felt about being public, or not so public? Anonymous?