the land on which i stand

I am an Incognito Disaster.
You can't see the mayhem only millimeters out, but it's there, inside.

You can't see my toes curl as I cringe when I re-live the day Silas was born.
Cars swerve around my thoughts as I drive.

You can't hear the breath
the deep, deep breath
when you trundle in, laden with newborn and bags and Hope.

The Hope smells like crushed pine needles and jasmine covered in maple syrup, honey and soy.  It makes me sick to my soul because I can't swallow that anymore.

Today:
Pregnant lady holding the door for a n00b mom with n00born and they passed a look that gutted my heart.
From one:  "Oh how cute! (you don't know what you're in for.)"
The other, laden within: "I can't wait to be on that side of this  (bloated mess.)"

Wife sick of her pregnancy, Mother sick of her kids.  Father and To-Be on either side unaware of their peril.

From nowhere in their realm, from no vantage of their many views could they see me frozen nearby.  They cannot see the land on which I stand.  They cannot taste the ashes of my dreams despite their sudden sneeze.  To them, my flesh does not sag with endless despair.

I gasped and turned, gutted, I let them pass and flashed into everything each of them promised.
I burned with how bad everything can go, in an instant.
In a day.
In a night of pain and labor.
In a life or three or many, many more.
They should never know any of this and I hate how much we've had to learn.

I'm sick of learning.  I'm sick of fortitude and strength.  I'm sick of wisdom and grace and getting by.
I want to swallow the sunlight.  I want to consume Hope for breakfast and shit rainbows of beauty and joy.

Instead:
Creases in my cheeks from the tears & tears.

Instead:
Holes in my heart that I stare into thinking, sinking.

I lead a double life.  There's this one here alone with Lu and the impossible one with Silas, too.
Both are true, both are me.

I will never let either of them go.

I am a Disaster in Disguise.
I am a Master of the Lies I have to tell to get through the day.
I'm so good at it now, I sometimes even almost fool myself into being a little bit okay.

~~~~~~~~~~~~

Can you describe an instant of recognition or insight that surprised you or caught you off-guard?  How many lives do you lead?  Do you ever feel okay?  And are you okay with feeling a little okay, sometimes?

Foreign Language

During our kitchen renovation last year, we moved one of our favorite paintings out of the way, but stupidly not off the floor. And when the reno was done, we clearly didn't hang it back up fast enough because one day we discovered the glass had shattered.

My husband had given me a bunch of old maps of our neighborhood for Christmas '06 -- two months before Maddy died -- and told me the map store guy recommended a small, "doesn't really have a storefront" framer. Said he was the best in town. Of course, I never took my maps in, they just sat and collected dust, but I dug up the name of the framer when I needed my picture fixed two years later.

I called the number, and was greeted with a recorded message: he was currently scaling back his hours due to his wife's death. He left an email on the message, so I sat down and composed what I thought was a fairly simple note: You were highly recommended; I have this painting with broken glass; and I'm so very sorry to hear of your wife's death. I may have added a sentence that I understood completely the need to scale back hours, and realizing that I was a new customer anyway, I would come in at his convenience.

He called back within hours, and after arranging a time to bring in my picture, he said "Thank you so much for your words about my wife." I said again how sorry I was to hear of his loss, and he went on to tell me it was after a struggle with cancer. I asked how old she was -- in her 50s. Ugh.

When I went into the store, he had a small picture of his wife up on his desk. We chatted again, I asked how he was doing ("You're very understanding," he said appreciatively at one point), we talked about her battle. And then the story spilled out: as it so happens my house, for a few decades in the mid-1900s, was a school of sorts. He saw my address, and confirmed which house was mine, and it turned out he went to this school. He eventually taught at this school. He met his wife at this school, in the building that was now my home.

My heart broke in two. I invited him to please come over some time -- we'd love for him to walk around and point out what was where as he remembered it, and place some of the ghosts in their appropriate rooms. But to think, if I had not been so engulfed in my own grief, I would've made this trip much earlier -- two years earlier -- and they both could've come over and relived something together. For some reason I felt miserable. (During this entire discussion I never once mentioned Maddy, though I may have alluded to "a personal tragedy.")  We spoke some more, he fixed the glass on my painting, and I have yet to take in my maps. I need to call him.

:::

My mom was really quiet on the other end of the line. I asked how she was doing, and she said, "I guess I'm just getting used to the idea that my mom isn't here anymore." For some reason, I blurted out, "Grief isn't linear."

Which sounded too pat. So I started gently explaining that in my opinion (trying desperately not to sound like I had written this a million times in a million venues), that perhaps you went through the stages, but not with any rhyme or reason. It wasn't better, better, better every day until suddenly . . . . all done! You went through a stage, sometimes really fast, but maybe you circled back around and did it again a few months later. I pulled out my traffic metaphor: sometimes you're in the express lane, sometimes you find yourself stuck in traffic. You can be humming along only to make a turn and find yourself lost, or in a dead end.

"That makes a world of sense," said my mother. "Thank you."

:::

I discovered a neighbor's father had died during August, my personal month from hell with the endless houseguests and my own grandmother dying. I ran over a card on which I wrote (after saying how sorry I was) that I was looking forward to hearing some stories about his father the next time we got together. And to please call if he needed anything.

:::

I have given up thinking that I am to find or gain something positive from Maddy's death. It was brutal and ugly and senseless, and I've decided I really don't need any "silver lining" in order to move forward. Maybe it will slowly hit me one day, maybe not, and I'm fine with that. I've stopped looking or caring, in any case.

But some things have certainly changed in my behavior and mind's eye, and some of those things I would venture to say for the better.

I can now talk about death. I am completely comfortable talking to people now about all things grim reaper.

There is no way I could've had any of the above conversations prior to three years ago -- I would've been tongue-tied, perhaps mumbled an "I'm sorry," and maybe listened, but probably in hopes they would soon change the subject so I wouldn't have to. I remember standing around a funeral for a father, a distant relative, and being so crushed for his wife and children, and having absolutely nothing to say. Nothing. Seeing the vacant miles of space behind his teenaged-children's eyes, and not knowing how to acknowledge that I saw it, too. Just standing arms akimbo, feeling very lost and removed.

Now, I'm right there with them. I listen attentively, as long as they need to talk. I ask questions. I don't state platitudes. I am not so bold as to say I am empathetic -- I don't know cancer, I have never lost a spouse, my parents are still alive. I only have the briefest of experiences with dementia, and second- and third-hand relationships with hospice. But I know grief. I know the contours, the expressions, the varieties -- each with a differently shaped leaf. I can sense now when to simply be quiet, when people don't want to talk, and when they need to dump. I am no longer fearful or awkward around graveyards, or DNR discussions. I am no longer afraid when people cry. I know this. This I can do, for them.

I can -- usually -- rather easily feel what other babyloss parents are feeling, even if the circumstances are wildly different and their reaction is polar opposite from my own. I know the language now, all those words about "loss" and "never," "why" and "beautiful," but mostly "sad," "crushed," "hopeless."   Certainly it hurts to read of new deaths in some respects, but I feel a sense of obligation to bear witness to the stories, to roll the name(s) off my tongue, and simply (virtually) sit with the parent for a few moments. A few moments -- that's all it hurts me any more, but I know for them the moments will stretch and multiply and crawl until it seems they're drowning. It's the least I can do now that I know I can do it.

I abide.

Some would say this is a skill, or even a gift, that I didn't possess before, and I suppose I should be thankful and consider it a positive consequence to my own journey through hell. But there are days I wish I didn't have it, this ability to sit and be with death, and that I still felt fear, awkwardness, and taciturn bewilderment. Because it would mean none of this ever happened.

Have you experienced a death or another person's grief (outside of babyloss blogs) since the loss of your child(ren)? How did you handle it? How did it make you feel? Is it easier or harder or unchanged the way you acknowledge others' loss?

after the transformation

Oh, ppphhhhhh… 

What do I do now?

She’s been gone longer than she was here, even counting the time she was inside me.

I’ve passed all of the first anniversaries: her ultrasound, the day she was born, the day she died on both the Jewish and Gregorian calendars.

We’ve anticipated her arrival.

Hoped deeply.

Said hello, welcomed our second child to the big world.

Loved unconditionally.

Taken her outside to breathe fresh real air.

Said goodbye.

Buried her fragile little body in a tiny coffin in the ground.

Her box of memories is full, her photo album is made. Her special soft things in jars, still smelling a little bit like her. Everything put away in the trunk that sits next to me in the sunroom, keeping me company.

Her quilt is coming along, something I am not in a hurry to finish… When I work on it, I feel close to her.

I still haven’t framed and hung her photos, but I will… soon.

Her headstone has been made, set and unveiled. Flowers planted with her placenta. Her DNA and ours stored at the hospital for research. Her birth and death certificate are in a safe place with other family documents, confirming that she really did exist, always a part of our family.

We’ve moved away and settled into our new home across the country.

Our new chapter has begun.

Now what?

*****

Today I watched as two cicadas completely left their exoskeletons and began a new chapter in their new skins, so bright green they were almost turquoise. They hung there from the branches of a tree, clinging still to their old shells, transparent wings spread, contemplating new destinations, new purpose.

It was stunning… I’ve never seen anything like it. For three weeks now I’ve been listening to them singing their songs outside, surrounding me with constant tropical melodies. I’ve just never seen a cicada before, not even in a photo.

Everything changes, nothing stays the same.

Impermanence... I see it when I look in the mirror. I look different than I did last summer. I look different than I did two summers ago. I think I look different than I did a few months ago. I’ve reluctantly left my exoskeleton, sometimes hesitating to leave it completely behind. Longing for it, for simpler times.

My old shell consists of all the mes I’ve left behind, said goodbye to, willingly or not.

It’s this next place I’m not so sure about. This after the transformation place. I can so easily tell you how changed I am from the person I was before I knew Tikva. I can describe in vivid detail how she transformed me, and for the better. But I’m not exactly sure what that means for me now… now that I’ve been transformed by knowing, loving and losing my child. Now that I’ve undergone a change I never in a million years would have chosen. Now that I’ve gotten kind of used to this new person that I am.

*****

How many children did you bring with you to Cincinnati? he asks my husband.

We have two children, but only one living. We’re here after a year off, since we lost our second child last summer, my husband answers.

I say nothing, look away even, let my husband tell him. Then I look at this new acquaintance and see the sadness and searching in his eyes as he looks at me then quickly looks down. I know what he wants to say. After a year, I am so aware of the sadness I’ve held in other people when they look at me after learning about Tikva. Some days I can take it better than others. This time I just notice it, allow the compassion to flow in silence. Nothing needs to be said.

*****

I hoped to be carrying another child by now, but I’m not yet. Still, I can feel that child’s spirit close, waiting. Sometimes I can’t distinguish it from Tikva’s spirit. I don’t think that matters. Baby spirit energy is one and the same. I think it comes from one big well.

I watch my older daughter and feel how powerful is her desire to be a big sister to a living sibling.

I wish I had a sister to play with who wasn’t a spirit, she says.

Me too, I answer. Me too.

She would have a sibling who would be almost two right now, if I hadn’t miscarried in between her and Tikva. Then there would never have been a Tikva… Strange.

Tikva would be 14 months now, would probably be walking. She would be so beautiful, that I just know for sure.

For two and a half years we have wanted to give Dahlia a sibling… One who can play with her.

We still do.

*****

It’s almost the new year on the Jewish calendar. The biggest time of the year. This is supposed to be a time of reflection, of going inwards, of making amends, making peace. I always find this time tumultuous inside, unsettling, unsettled. I guess that’s the point. I don’t know if I’m ready for a big time right now. I’m feeling especially un-Jewish right now, which is ironic as the wife of a future rabbi. Really, I just feel like climbing under the covers and not coming out until October. Until the new year, a new season.

Last year at High Holy Day services, less than two months after Tikva died, I alternated between sitting next to Dave in the sanctuary, crying, and running outside to cry alone. I resented everyone dancing in the aisles all around me. I felt no joy, no peace, no serenity. I felt isolated, empty, lost. Dave wrote angry messages to God in his journal. I did not fast on Yom Kippur. Dave and I got into a fight about something, I can’t even remember what. Afterwards I went with a friend to a candlelight vigil for babies who had died. It was one of the saddest days of those first few months after losing my Baby Girl.

I don’t feel especially compelled to fast this year either. I don’t feel especially inspired to do much that is Jewish, to be honest. Keeping kosher – in the limited way we’ve been doing so for several years – feels kind of trivial after what I’ve lived the past almost two years. That is not how I connect to something bigger, by eating my meat and my dairy separately… by fasting on Yom Kippur.

*****

There is a new layer of sadness churning deeply in me right now, a layer I’m not quite ready to shed. A space I just need to exist in for a while. I’m not entirely sure what it’s all about, but I do know that it’s less tidy, more raw than I’ve felt in many months.

It’s not the part of me that wondered how I would ever survive losing my child, terrified at the thought of forever having to hold that experience. I’ve survived, relatively intact. But I’m not settled. In fact, I’m feeling rather unsettled right now. In a new kind of limbo, an in between place.

Now what?

Now life goes on. Now life continues.

That’s it? It just continues? Just goes on, business as usual, except that I’m completely transformed in the middle of a world that hasn’t really changed much at all?

Yup.

How come I have to adjust to the same old world around me, and no one has to adjust to me?

Because you’re not the majority.

I’m not? I know and know of so many parents who have lost babies, our numbers grow every day, and we’re still just a minority? But this is all I know. What am I supposed to do with the transformation I just went through? With this new self I am sort of used to and still getting acquainted with?

*****

Tikva? Are you there? Are you still close? Is that you in the giant yellow and black butterfly I saw yesterday? In the turquoise under the transparent wings of the cicada? In the tiny bird eating an Oreo cookie outside the ice cream store yesterday?

What do I do now… still without you?

I will let myself cry for as long as I need. There are no rules around how long is enough before being done with the sorrow. You are never really done, are you? Here in this place, we know better than to create those kinds of boundaries. Here we feel what we need, when we need, how we need to.

I miss you, Tikva. I miss you differently now. But oh how I miss you still, my Tiny Love.

.::.

Where do you find yourself now? Are you comfortable here? Is it still new for you? Unsettling? Do you feel like an old hat? Transformed, for better or worse? What do things look like now, here, for you?

I heard the news today, oh boy

My baby died.

Our lives entered some state of suspension, bits of grief floating in gelatin, still, timeless.

Everyone else, though, rushed -- and rushes -- on. Breathless. And there is news.

I suppose in the old state, there was good news and bad news, but filtered through the prism of Maddy, the news onslaught all seems painfully blinding. The good reminds me of what I am not, what I lack, what I was. The bad piles on, pours salt in the wound, kicks me while down. All news hurts because it means time progresses, the earth continues it's orbit, while ours sits stagnant. Others actually have news while our news remains the same, day after day, week after week, month after month. My baby died. Our child died. There is nothing else to report.

Anonymous events filter in: typhoons, random accidents turned fatal, economic shit storms, another soldier killed by a roadside bomb. This celebrity is pregnant, that celebrity had twins, yet another lost all her pregnancy weight in two months. A great new movie, a shiny new car, a championship won, a true love uncovered. Headlines can be scanned and papers recycled, televisions muted, and websites clicked off.

But the news of family and friends is not so easily negated with a remote. There are pregnancies and births, weddings and divorces. Someone discovers cancer, someone wins a three-week vacation. An elderly relative dies, a friend adopts a puppy. Someone loses a job, someone crashes a car, and lo! Someone lands on their feet -- walks away unscathed, and starts the employment of a lifetime with a corner office a week later.

Somehow, it's all a punch in the gut.

Herein lies the conundrum: if all news hurts to some extent, do I want to hear about it? And if so, how exactly do I want to hear about it? And what does my current state of griefdom mean to the messenger?

Because unlike black and white type on paper or a stately correspondent talking in a flat voice, this type of news is typically told to us, orally or in writing, directly from someone else -- someone with a link to us, someone who knows. I wonder, how hard is it for someone else, someone not in our immediate situation, to tell us their news? To tell us of someone else's news? Because we're not the same anymore -- we're different. There's a fine line somewhere in there between "Please don't forget my child, please be gentle when you tell me" and "Please don't treat me like I'm fucking batshit." And perhaps I should give people more slack in the line when they're hemming and hawing and running through how exactly to word what it is they're about to say given our new status, but part of me thinks . . . is it really so hard?

Because sometimes instead of just coming out with it, people decide it's easier not to tell you at all. It's easier for them. There is no awkward moment, no watching you break down into tears. No need to remember that horrible awful thing that happened or even bring it up peripherally. And I suppose to convince themselves of their righteousness on this point, they assume that you're fragile, weak, sensitive, outright crazyloco. Can't handle it. Maybe they think they're doing you a favor by not saying anything! This is helpful! Aren't they being wonderfully in touch with your needs!

What news are you being deprived of? Are you sure you know everything that's going on? Are you being apprised?

Because in the end, we found out. And discovered that everyone had run circles around us for the better part of a year. And now it's not the news itself that hurts me -- oh no. It's the realization that everyone thinks I'm bananas, and can't deal with other people's lives. It's also the realization that people around me don't care enough about me or the reason behind the new me to be uncomfortable for a few minutes. To take a risk that I might sniffle and need a kleenex. That I won't heed the warning not to harm the messenger. It's the understanding that Maddy is an inconvenience to them -- that I am an inconvenience to them, and why would I want to continue in their presence if they feel they can't freely speak about their news? The way their time is flying by and events are occurring at breakneck speed? None of it is possible if I'm in the room with my big technicolor elephant at my side.

How hard is it really, to just begin a sentence: "I need to tell you something. It may hurt to hear it, and for that I'm sorry, and I understand how it could -- but I didn't want you not to know."

We found out about the pregnancy, after the birth. And truth be told, the idea of a healthy newborn doesn't hit me nearly as hard (if it does at all, anymore) as the idea that I am a pariah, a leper, a fragile freak. Maddy is nothing more than an annoyance, my grief a nuisance in the daily ongoing of hands moving around the clock. It is easier, not to speak with me, not to bring It (capital I) up. Two and half years later, I am once again alone, sitting arms akimbo in my still pool of gelatin, while time whizzes by -- this time laughing, pointing, and gawking at me.

Have you discovered family and friends hiding news from you after your loss? How did it make you feel, and how did you deal with it? When family and friends delivered significant news that might effect you differently now, how did they do it? How and what do you want to be told -- if at all?

Duty

People have stepped on my toes before. Many have done so and walked on by. Whatever-- people are self-absorbed, I know, and I try not to take it hard. I am OK at it, I like to think. You forget how much work I did on this one project last year? Harrumph, of course, but I'll deal. An extra latte, perhaps. Oh, yes-- just the thing. In fact, I discovered, that extra latte is a cure for great many things, people being inconsiderate prominent among them.

Except. Except when they are being inconsiderate about my dead baby. Scratch that. Not all people-- most people, people who don't know, who are just randomly passing by, who know me, but not well,-- from them it will sting, sometimes a lot, but it won't sear. They, I reason, do not owe me consideration. Not any more than any random person. And though I, myself, may aim for considerate at all times, I know that not to be everyone's standard. And so I don't hold most people to mine.

I watched the pilot of The No.1 Ladies' Detective Agency this spring purely on the strength of the previews. I stayed for the series because I liked the pilot. And because the main character, Mma Ramotswe, is a dead baby mom. They might've laid it on a bit thick in the first episode with a violent flashback (not that there aren't things to have violent flashbacks about in her particular dead baby story-- more like that the one they picked for a flashback isn't entirely believable), but from then on I really liked how they handled that part of her story. It's in every episode, and only occasionally overtly.

Most of the time it's something that I bet many a viewer won't even pick up on. It's subtly written, and subtly played. But if you know, if you've heard these things yourself, you can see it, plain as day. Like the time when a client of her detective agency, not thinking much of her suggestion that perhaps it wouldn't be a good idea to hire a detective to spy on his 16 year old daughter, tells her that she, as a childless woman, must take his word for what's the right thing to do there. Mma Ramotswe doesn't say a thing, but-- and this one goes to how good an actress Jill Scott is,-- you can see just where that hits her. 

In the show, as in life, the context is everything. Mma Ramotswe tells another client, a woman looking for a son she believes probably died in Africa many years ago. But not this man, because, and we all know it, it wouldn't make a difference to him where his daughter and the need to spy on her is concerned. Besides, perhaps this is not the type of man you want to trust with that most sensitive of personal information, and likely not something you want him to know in a professional context anyway.

So context. Context is what I've been thinking about. When it's a friend who steps on my dead baby toes, or, as I tried to explain to a group of friends recently, when it's friend who hits my open compound fracture, the existence of which fracture is something the friend in question is most certainly aware of, that's not something I can just latte away. But it is, for me, something that can be reasonably turned into the proverbial water under the proverbial bridge with a simple and direct "I am sorry."

What has me bewildered even now, more than two weeks after that conversation, is the statment by another in our group of friends, that she thinks we must consider other's feelings in how we react to what people say. As in, don't make a scene. You know, don't you, that people don't mean to be hurtful, and therefore, even if you did point at your compound fracture and wince in a way that should've suggested to the person continuing to hit that very spot, that perhaps it would be best to stop now, you shoudn't, before hightailing it outta there, finally raise your voice to suggest that the person stop-bleeping-hitting already.

I guess a more accurate description is that I am by turn bewildered and infuriated, and working hard to stay with the bewildered (because infuriated may end up fracturing the group). Because you know what? I don't think we have a duty to be nice to people hitting us where it hurts. We might, as Mma Ramotswe does, not want to say anything, either in a particular situation or at all. We might not want to be party poopers, or we might not feel up to talking just then, or, indeed, ever. For our own reasons we might choose not to speak up. But what gets me is the suggestion that we ought not to, or that if we do, we be super extra tripple nice about it.

I do not believe we owe it to anyone to keep quiet. (I'll go further-- some of the shit people say, they really should feel bad about.) I don't think the one in pain should also be responsible for gracefully articulating where and exactly how much it hurts. Luckily for me, most of my friends don't think that either.

And what do you think? What do we owe those who are hurting us with their words? Does it matter if they are friends or random passers by? What, if anything, do you think people owe us?

the pressure

You've read those stories. Those people who had near-death experiences and how they became changed people: gave up smoking, went overseas to volunteer, building houses for the poor, holding sick children. They finally find a job and get sober, go to church, become a shining member of the community.

When you've expereienced a life-altering experience, usually you come out stronger, and become a much more positive contribution to your family, society, the world, the Universe.

For me, Ferdinand's death was a near-death experience as well. (Actually, I died.) It is without a doubt life-altering. But I did not emerge a better person with a lot to give to this world. I will say though I feel more awake in some sense.

I will admit that I almost felt the pressure to become better. To start serving food at the soup kitchen, run marathons to raise funds for various causes, perhaps donate a kidney, half a lung, maybe an eyeball even.

Do you think this? -- Something's good gotta come out of this.

Sometimes I do, sometimes I don't. It depends on the day I am having. Some days it makes me more compassionate and I can actually reach out and be genuinely nice to (grouchy) strangers. Some days I spit on the dirt, slam my door and slither under a rock, wrapping my rattling tail around my neck.

I have not done anything major after my son died. Sure, I made a few donations and I made great efforts in being an even more present mother. I worked harder at being compassionate, calm and patient. Other than that, I have just been trying to live, trying to figure out how to live the life of a bereaved without making a laughing-stock of myself. (And all the while fending off insensitive remarks and some clueless people who makes the already-bad life-after even worse.)

Now, two years out less a day (tomorrow is Ferdinand's birth/death day. I don't know what is a good word to call it. Anniversary? Birth and death day? Usually we call it birthday in our house...), I feel I am slowly coming out from the shadow.

I am not ready to do big things yet. (Though sometimes I wish I do. I wish I am announcing here a new foundation I am setting up, a baby-related research that I am throwing money into, a charity that I will be sponsoring for life, the name of the soup kitchen where you are going to be seeing me... but NO. Not today.) Just small tiny steps. Like trying to walk again with new feet.

Just trying to live better. For myself, my children, my family. Doing things I can for the community, when I can. Living more eco-consciously. Listening better to strangers. Not curse so much when driving on the highway, sending compassion the way of errant drivers (of course I am a perfect driver. Don't you ever doubt that).

A part of that entails stepping away from the internet and spending more time and attention on making our house more like a home, not the war-zone it has been the past two years. More time with the children I have earthside, creating memories that will buoy them and strengthen and empower them and make them better citizens of the world (hopefully). More time thinking about what am I here to do, what potential is within me that needs nurturing, perhaps?

So, this is a farewell post on this wonderful website. I am sad to go (and honestly, even afraid... but I will still have my blog), but I also think it's time for new blood. I feel I have said a lot and it is time to listen instead. I also just wanted to explore this issue of the pressure to be "better" and to do grand things after our babies died, wondering if I am the only moron who thinks that way. Will you share your thoughts?