ghost town

I lost my daughter then I lost my friends. Not simply lost them. It was more like they drove me out into the country and told me to go run out in the woods for a while, they waited by the car.

"There, Angie, check out behind that big tree. A little further away. There is something shiny there. It is the internet and there are people on there whose babies died too."

"Over here? I don't see it."

"Just a little further. Go on now. Be good. I loved you once."

"Okay. I love you too."

And I watched their license plate become illegible in the distance. I walked back to town, determined to understand, only to find that they moved without a forwarding address. So, I suppose, they lost me.

photo by Denise ~*~.

Villages of friends were gone. I walk into the ghost towns of my past, sidle up to the bar. There is nothing left. I am not part of their tribe any longer. I slam the empty bottle of the long bar. They were drinking buddies, after all, not friends. For years, it made me angry. It made me angry that my daughter died and then I kept losing more and more and more until it was just me.

When it was just me, I saw you. And you. And you. And you. And you is beautiful and amazing. I told you all about the pain of losing friendships, and my daughter, and raising a daughter and every little thing about this experience. I listened to you talk about it too. We suddenly had a little boom town of the babylost. I felt normal.

Normal was all I ever wanted.

+++

Everything about my life changed after Lucia died, even though it looked exactly the same. And I feel attached to all those things I once was, like grape vines winding around the withered parts of me--my arrogance, my lightness of being, my inappropriate anger, my bravado, my aloofness, my old friendships, the confidence I had in my body. I cut the shoots, understanding that those bits of me are dead, but the tentacles grow back, clutching dearly again to something already gone. (I fear it takes the nutrients of my thriving, beautiful bits.)

In the weeks after, it became abundantly clear that I had no idea how to feel anything but anger and longing about her death. I was not emotionally equipped to handle the death of my daughter, except I had to handle it. It was awkward and painful. I clumsily talked to people, until I just couldn't do it anymore. I drank heavily. I watched the same safe comedies over and over. I was afraid to call friends and cry. I thought I would never stop--hysterical, uncontrolled tears. Keening. Misplaced anger. Blame. Fear. Blubbering. I heard the conversation before I uttered a word.

If I say I want to die now, you won't understand. You will think I am suicidal. You will call the authorities. You will take my only living child. I just don't know how to live this life without her. I don't know how to shop for groceries now that she is dead. I don't know how to make small talk. I don't know how to watch Law & Order. I don't know how to do anything.

And so, thinking they understood that about me, I expected them to call me. Surely someone calling a grieving mother would know what they signed up for if they called. It felt rude to call someone, even a very good friend, just to cry, even though, ironically, I longed for someone to call me in the early months and cry. I just wanted to be needed, not underestimated. I had once a month calls from a few friends, which were like tall cool glasses of water in a drought. I never cried during those conversations. I was almost maniacally positive about how fine I was doing. Then those petered away too. Mostly, it was silence broken by long, drunken tirade emails. 

Left to my own devices, I behaved badly. Oh, I behaved graciously here and there, but mostly I was angry, chaotic, impulsive, and afraid, lashing out at unsuspecting strangers in markets and yoga studios. The crying stopped eventually. The misplaced anger at other people slowed. I quit drinking. I figured out how to shop, and chitchat, and watch crime dramas. I learned how to feel all the emotions of grief, not just the loudest ones. I went to baby showers, and parties, and stopped expecting, or wanting, anything Lucia-related to be discussed. That took time, but it happened. The grief fog lifted. 

Being the me I was and grieving was fucking torture. So I changed stuff about me, like who I trust and when I trust and what I trust and how much I trust. I changed what I give and what I take and what I give personally and what I take personally. I changed what I complain about and what I don't.

I couldn't call those old friends after I changed. I didn't know what to say to them anymore. I wasn't over her death. I would never be over her death. But I learned to live with it. Time had moved forward. I moved forward. They moved forward. I missed so much, and they missed so much. Not many people stepped up. Those that did, stepped away eventually. I never called them to ask about the thing I should have been asking about--birthdays, illnesses, new jobs, old jobs, pets, boyfriends, girlfriends, new babies. When I came to fully understand that my daughter was never coming back, I came to understand that neither were my friends. I don't blame them anymore. I was a terrible friend--grieving and overly sensitive, impetuous and distant. I didn't and still do not understand how I could have been any better. I did the absolute best I could with who I was. Emotionally, I was stunted and small. And maybe they were too.

+++

I wrote because I didn't know what else to do with this ache in me. I couldn't speak it to my closest friends, so I wrote her birth story. I posted it on the internet. I thought that was everything I knew about her. I put it on a blog. Maybe someone will read it, maybe someone will understand. It was a flare shot into the night. Or a campfire, as we say around here.

Then I wrote about going to the market. Suddenly, people were there. Other grieving parents. I read about tears in the produce department. I wrote about my fears and anxieties and loves and revelations. I wrote like no one but babylost folk were reading, and sometimes, I wrote like they weren't even reading. I wrote with a kind of freedom that is both naive and slightly endearing. I found myself in the community I longed for since birth--supportive, honest, loving, compassionate. I made friends who appreciated my dark side, as well as the other parts of me. And I theirs. I had found normal.

Writing publicly about grief and pain and the darker parts of losing your child remains both incredibly comforting and absolutely terrifying. In most of my friendships that ended, the complaints centered around my blog and writing. My friends didn't like grieving, complaining, sad, disappointed Angie. 

You wrote about the friends! How unforgivable! You made it sound like we are terrible people! You write about your dead baby every week! That's too much! You make art and sell it! It is about the death of your baby! How terrible! How gauche! Everyone is sick of everything BABYLOST! It is unhealthy! It is wrong! We can't have it!

I never expected any friends to read my blog. It had nothing to offer them. It certainly had nothing to offer me for them to read my innermost, ugliest thoughts about the death of my daughter. I never imagined they would read, but they did.

I wrote because I had no idea what else to do. I wrote because my friends didn't call, and I couldn't call them. I wrote because I needed a community, to feel normal, to feel worthy of compassion. But it came with a steep price. 

Because I lost Lucia, I found something of myself tangled in the tumbleweeds of my emotional and physical defects. After everyone left, something dark and ego-filled, sensitive and critical, drunk and capable of sobriety, redemption, and forgiveness emerged. I forgive those friends, not because they have made amends, but because I have. I had to forgive my humanness. In doing that, I had to forgive theirs. I was grieving the death of my daughter. I did the best I could, and so did they. I sit with who I am now, a human being worthy of compassion. You taught me that. Thank you.

How have your friendships been affected since the death of your baby(ies)? Do you have a blog, or on-line presence? Do your before-friends know about your on-line community of babylost? Do they read your blog, or participate in your forums? How do they feel about it? How have you felt about being public, or not so public? Anonymous? 

Indelible

Who are we, now? Are we still ourselves, the people other people know, except, you know, grieving? Or are we changed forever, marked in a way that changes who we are fundamentally? Is there a middle path, a third option? I'd like to think there is, mostly because that is how I feel-- I am still me, but I am also marked.

I've often wanted to be marked in a physical sense too. To underscore, I guess. Sometimes also so that others could see-- though this desire is much less prominent these days, I've also from time to time wanted to make sure that others couldn't ignore my son. And a physical mark would probably make that somewhat harder to do. There are always the irreverent t-shirts, ones we've all fantasized about making and wearing. But fun as those would be, they are not permanent, and not exactly changes to our physical self.

This is likely why I am always at rapt attention when bereaved parents discuss their memorial tattoos. Some of these are true works of art, with layers of meaning and images in images. I wish I had the creativity to design something like this. But even then, I am so culturally conditioned not to get a tattoo myself (it's kind of a big Jewish deal, concentration camps and all) that I can't imagine breaking with that. So I admire the heartbreakingly beautiful work of others, and I think about how you really need to know the story already to see the entire story in the image. Which means that these are really for the parent, and not so much for the passers by.

So my body remains unchanged, except for what life does to it. And yet, I feel changed, I feel marked. I realize, too, that some of these changes are about my part of the story, and some are about A's, or rather about me reacting to his part. For example, the way pregnancy after is different, that's about me. That part is about what it feels like to be a mother whose child, whose baby, dies. And who then chooses to chance the fear and the anxiety and all the attendant crazy in hopes that another child might live.

On the other hand, the fact that I can't make myself fill out the part of my online profile with a cool local toy store that asks for children's birthdays because it numbers said children? That, I believe, is about him. It's about me knowing in my bones that he was here, and so I can't list the son who was born after him as "child 2." But at the same time I can't very well list the birthday of a dead kid under "child 2," not least of all because the store will then send me gift suggestions for him based on the age he should be for his birthday and various commonly celebrated holidays. And that? Might just break my heart.

So I am changed. But am I marked? Recently, I've come to believe that I am. Not in a way that others can see easily. The most striking of these little internal markings is the reaction I have to a very everyday thing-- supermarkets. Some of the food stores where I shop have flower sections right by the door. And I noticed that every time my eye falls on the fresh cut bounty, the first thought, and I mean the very first thought that enters my mind is essentially about which of the bunches on display I could take to the cemetery. This is more than five years later, so I think it's safe to say that this is not a passing thing. It is, in fact, so much a part of me now, so much not out of the ordinary for me, that it took me all this time just to notice. And I don't even go to the cemetery much now, so I think of choosing flowers much more than I actually do that.

When I did notice, it made me feel only a little sad. Mostly, mostly I think I was and am glad to have this. This change is no less indelible than the tattoo ink, even if less obvious to anyone else. In a weird way it's just nice to know that I carry my son with me all the time.

Are you marked? What are your markings and how do you feel about them? Are you glad to have them? Or would you rather not step on grief land mines as you navigate life?

Future Perfect

This post is brought to you by 80s synth chords and spaceships made from tinfoil and fishing wire. I'm wearing epaulettes. Yeah, they came back round. The president is a lesbian. I have a belt that makes me invisible. It's awesome. Errr... just trying to create a little atmosphere, folks. Sheesh. The point is, I'm writing from the future.

Today is four years.

Four years ago she died. Four years ago she was born. Four years ago time stopped. Life paused. She was still and so was the world. 

I didn't have the capacity to think beyond that room, that moment. There was no space for "next." And yet events continued to unfold and now I'm here in the future, and it is... different. It is not how things were going to be. It is so unfamiliar, this place.

Jess-that-was is no more. Life-that-was-to-be has not happened. And it's not bad. But it's not what I had planned.

But maybe this would have happened anyway. Maybe you would still have grown apart. Perhaps this was always going to be this way. You. Him. A tree. Some lemon tart. Two living kids singing Happy Birthday. A look exchanged. And then the turn away: Turn away. We are no more.

He blames today on then. I asked him once: where did it all go wrong? Did you ever feel content? And he recalled a time before she was born. He painted our new house for two small girls to grow in. He was so ready to step in to that life. 

But here we are apart. Four years on. There's one girl, one boy and one little jar of ashes. The same house, paint peeling. Looking out; looking beyond. To what?

Sometimes I try to see. I turn the tarot endlessly and hold my breath for Four of Wands, but normally it's just The World or The Wheel and I'm like yeah, yeah, brilliant, whatever, it's not the card I'd choose, but I'm sure I can twist it to mean something vaguely convenient.

And I think back to Jess-that-was, and all her wants, her hopes. Poor fool. She couldn't know the path that she would walk. Yet here I am, a fool again. The future unfamiliar looms, forever imperfect.

She'll not be there. And I still stand. No, I still walk. Towards... towards... towards...

A raygun and rehydrated food. A robot mixing martinis. A womb that's closed for business. And epaulettes, gold epaulettes. 

Do you think about the future? What do you believe it hold for you, now? 

raven

I am wearing a pink gown, the opening in the front. I am grateful for that small gift--back openings makes me feel so vulnerable and undignified. There is a paper blanket covering my legs. My shaking hands fumble with the thinness. I tear a hole in the thigh. It is not meant to keep me warm, I remind myself. There is a blood stain on it, already. I lean back on the table. There is a skylight over the stirrups. The rain falls like a war drum, hard, without rhythm, but persistent. The wet leaves cover the bottom of the skylight.

 

Nature keeps falling, water and leaves. Dead things that look alive. I stare at the counter. Purell and ultrasound gel. A pap smear kit, and non-latex gloves. A black bird flies over the building. It looks like a shadow of a happier bird, something predatory, but special. I know the baby is dead before he tells me. I have imagined the baby dead in all the moments I am not actively thinking she might be alive. But I wait for him to say it aloud.

 

The doctor tells me it looks like a miscarriage. I am twelve weeks pregnant, but with the labwork and the bleeding and the ultrasound without a heartbeat, an empty sac, perhaps, the baby is gone, or was never there. A paradox I may never unravel. My uterus growing and believing, even while I am stunted and cynical.

 

The doctor convinces me to go for another ultrasound because of the trauma of Lucy's death. He thinks I should see there is no heartbeat again. He said, "Just so you know, deep within you, that we did not make a mistake." And I tell him steadily without tears in my voice that I held my dead baby and I still thought it was a mistake. Her skin was torn and growing colder, and I thought she would live again. I thought there was some system-wide error, that she could still come back, if someone did something other than mourn. I thought I could puff my lungs up, cover her nose and lips, and breathe life back into her, as though the doctors and nurses hadn't quite thought of that yet. "She just needs some air," I wanted to explain. "We just need to remind her to breathe."

 

Sometimes I still think that perhaps we cremated her too soon.

 

I watched a hawk chase a raven, diving and attacking. It was a spectacular show above us as we hiked through the woods to a waterfall. We all stopped and gawked. I bent over in the first bangs of unbearable cramping. The ravens have been around me all this month, waiting for the death in me to escape. The ravens swoop low, cross in front of my car, reminding me that I can lose once, lose twice, I could lose them all. It has been an unkindness of omens--dead baby birds on my front steps and ravens, stopping me in the street, daring me to hit them. Maybe I should call the nevermore baby, Raven, the blackness, the hole within me.

 

I received an email just as I began bleeding. "Your life is beautiful, so beautiful now. Do you appreciate it? I think you do. I appreciate it, but I can't bear it. I have to look away. It is painful how beautiful it is." It is beautiful, even though our daughter died. I made something else out of her death--a life I always wanted to live. I understand if someone can't bear it. Joy reminds me of grief too. Happy reminds me of sad. And besides, two children is something, I get that. Two living children cover the holes where the others were. You'd never notice if you didn't search for the spaces where others were supposed to be, if you didn't read our stances and our smiles. It would be hard not to believe the lies we are telling in our photographed smiles. My dead outnumber my living now, but still two children is not all of your children dead. I do appreciate it.

 

What I wanted to say, though, is that we still suffer. We have a beautiful life, but we still suffer.

 

They search my womb and they don't find the baby. The technician says the baby is dead, even though she is not supposed to say it aloud. Words I needed to hear. In moments, I begin the process of miscarriage, passing clots and tissue. As though my body was holding onto her, until someone could speak the truth that she died. The little dot inside of me that was growing once is gone now. The children would ask me how big she is every day. And I would tell them the size of an olive, the size of a lime, the size of a peach. But she was no size, just my womb grew, making space for an unkindness. She is an empty space now. A hole of what could have been.

 

I thought I could slip under the radar with one more quick baby, like Fate could turn her attention somewhere else for a quick nine months. "The last time. The only time. One chance," I said to my husband. "One more chance at one more child, then nevermore."

 

photo by Brian Auer.

I know what I know and I still got baby greedy. I still thought somewhere in me that things would end differently. I am not ranking my sadness, but this is a small grief compared to Lucy. Lucy died, and I held her. I felt like I knew her, she was in my womb for 38 weeks nary a thought of life without her. I never imagined her dead in those 38 weeks. But my little raven died and I only ever imagined her dead. (It didn't help the pain.) 

 

Perching on the fence in my backyard, like the raven, Grief waits for the physical pain to subside to invite himself into our home again. I reacquaint with Grief, another stodgy old raven wearing black. He is silent, never flitting, still is sitting, still is sitting, sitting by my office door, whispering, "Nevermore."

 

 

Have you experienced a miscarriage before or after your loss? How did the grief differ? How was it the same? Did the expectation of loss help with the reality of it? If you have only suffered from one loss or none, how do you abide with others in this community who suffer from multiple losses, or who have not suffered from multiple losses? How do you feel Grief stalks you? Like a raven or a hawk?

Warped?

My department's administrative assistant is a very, very nice woman. I chat with her almost every day when I come into the office to check my mailbox or to pick up what I sent to the printer. Last Friday towards the end of the conversation she mentioned that she'd just been by to see her niece the day before, and that it was because the niece is due any moment. Not my favorite conversation, but I made a supportive noise. "And you know, the cord is wrapped twice around the baby. So they are going to take the baby on Tuesday if she doesn't go before then." I felt my eyes go wide at the "twice." It's an involuntary response, and it comes with the throat tightening. I am pretty sure my blood pressure jumps too.

I am, though, by now able to remain at least outwardly calm. I asked if they were planning induction or c-section for Tuesday, I nodded to her saying that the niece might go earlier as she'd already lost the mucus plug. I didn't jump in with horror stories, mine or anyone else's I know. Because in truth I know that nuchal cord occurs in a relatively sizable percentage of pregnancies, and that most times it presents no problems at all. And because this is not the way I want to tell people about A. The administrator, she doesn't know. It sounded like the doctors were aware of the risk and managing it. So I stayed mum. I thought about them on and off through the weekend. And Monday I made sure to stop by "to check my mailbox" even before dropping my stuff off in my own office. Because as rational as I am trying to be, taking pregnancy and birth related things for granted is just not something I can do. The niece is fine, by the way-- she had a healthy baby on Saturday.

It's not that I am a mess about every single pregnancy I am aware of. In fact, it's a lot harder to expect bad pregnancy-related things to happen to other people than to myself. When my sister was pregnant, she was a lot more nervous than an average bear. Understandable, as she was so very present for us, and in fact was the only person other than my husband and myself (and hospital and funeral home staff) to have seen A. But me? Not until one of the nurses called a doc about the heartbeat strip looking a tad too regular during delivery that I really really worried that something horrible may befall her too (it didn't, my nephew was just taking a little nap amidst contractions). I don't mean I assumed she'd be fine, but I didn't have the horrible pit in my stomach for her the entire time.

I think I assume other people's normal pregnancies will go normally. (Other babylost mamas are the exception, of course-- I worry there. But then none of our subsequent pregnancies are really considered low-risk, are they?) But throw in a hint of trouble, the barest, tiniest hint of trouble and this person, whether a friend, acquaintance, a blogger I just heard about, or a complete stranger begins to occupy a large chunk of my thoughts. I don't want them to know what we know. I don't want them to have a reason to google in the middle of the night. I don't want them to become one of us. Nothing I can do about it, of course.

Or mostly nothing. I once made a pregnant friend call her OB's office when we were on vacation. The friend had a stomach bug, and I was pretty sure the office would send her to the nearest hospital for fluids and monitoring. They did, and when we got there, her dehydration was so severe that there is a good chance getting there when we did prevented at least a bout of contractions. And I think that if I heard of someone who sounded like they were not getting good care or not reporting important symptoms, I would likely raise an alarm and try to get them to do something. But for more minor things I have now trained myself to stay out of it.

It doesn't take a shrink to know why signs of trouble in even complete strangers' pregnancies bug me. I mean, I had a pretty busy weekend, and I still thought about this niece I've never met more times than I've thought of most of my own friends. And because living in my own head is what I do, a lot, I also think about how it is that I react outwardly, and why. Five years on, many conversations are still not very comfortable to me. The "when" the baby comes ones are particularly not my cup of tea. But in most situations, I just look for the shortest or most graceful way out. Early on I was more likely to think of these conversations as a way to tell A's story. But now it's almost as if I am afraid that a pedestrian conversation might be beneath his memory, might get the dust of trivial onto the sacred.

It's weird, I know. One thought that used to drive me bonkers in the early months and years was that most people in the world don't know he existed, and never will know. That as important as he is to me, he is nothing to them. They can go on about their business unencumbered by the thought of him, of all this promise gone, of all the potential not only unrealized, but never even hinted at. And now I don't want to use his name in vain. It's not that it doesn't bother me anymore that others don't know. It still does. But now I don't want to shout about it from the rooftops. I want to tell, I think, in a way that gives dignity to his memory and to him.

A friend once said that she doesn't always know how to speak of A because, she said, "he is your pain." "No," I replied, "he is my son." This, I think, is why I don't talk about him every time I could-- I want him thought of primarily as my son, rather than that very sad thing that happened to me. So when I hear of a pregnancy complication, I don't want to brandish A's story (or any of the other babylost families' stories). I think I worry it would be seen as a prop. I don't want to get attention that way. But I still worry.

Have you been in a position to discuss someone else's risky pregnancy? How do you react? Do you tell everyone about your child(ren) or are you selective about it? Has that changed with time?

One blushing shame, another white despair

We are in a cafe. I blush and stutter. I look through my eyelashes at our neighbours, laughing into their lattes. I murmur, fearing their ears.

We are at my house. I breathe in and unseal my lips in a tiny gesture of anticipation. We are friends, confidantes. You are unshockable in the presence of my grief and rage. But now I am aware of the couch we sit on, the bedrooms above us.

So perhaps it is better that we are in neither of those places. You are there. I am here. This is silent noise. You can adjust your features so that they appear neutral, impenetrable. No one need know that this is what you’re reading. Unless you blush too.

Because here is the thing, the topic, the theme, the issue, the matter at hand. Here is the subject of this post. It’s... it’s... it’s... sex after loss and there is no pretty or dainty or literary way to say it other than that:

Sex after loss.

And what a complicated and difficult subject to address. In grief you yearn. You yearn for a little body, a milky mouth, a tiny foot in the palm of your hand. Is there room for that other yearn, that other want? To need, to desire: they have different meanings now. And now sex becomes about another baby, or not another baby; about bodies that don’t do what they’re supposed to. Bodies mean pain, or sick, or tired. Bodies are small and covered in wires. Bodies are still and cold. Bodies are not the colour of your lover’s skin, but mottled and blue.

Some people are drawn together and some are wrenched apart.

We were wrenched apart, but still we came together. We wanted our baby and so we were naked in our nakedness. And so another baby came. But that is not a given for our kind. There is no guarantee of fertility or of the end result. The end result: the one that seemed so certain to me all those years ago as I stomped up the stairs of the sexual health clinic in second hand army boots, for condoms and pills and other armour.

We are all different. You might believe that my kind of sex neither takes its appropriate form nor serves its appropriate function. You might have stomped up stairs for the same reason I did, or you might find that abominable. You might have loved it, or not. You might have shared it with many people, or with one. It’s political, it’s personal, it’s universal, it’s fucking everywhere. There’s fucking everywhere. In the same way that in those early weeks after Iris died every woman was pregnant, every commercial was for baby paraphernalia, every goddam Facebook status update came with a fuzzy ultrasound photo. Everywhere, everywhere, everywhere, until sex WAS loss and its expression evidence of the distance between us.

I pause and exhale. My hands push in to my eye sockets. I wish we were in that cafe, or at my house, or better still at a bar with an infinite  line of tequila shots and a cute bartender, and I would shout ‘SEX!’ too loudly, and everyone else would blush,  and we would cackle instead of cry.

But instead you are there, and I am here, and now I have to ask: how was it for you?

Has sex changed for you in your grief? Why? How? In what way? Be frank, be euphemistic, be anonymous, be however you want to be, but please tell me.