the shape of grief

Upon Ferdinand's death was a big void. And I filled it with tears and words. I wrote and wrote and wrote, because I did not understand my grief and I had to figure it out.

There were many things repeated: the tears, the hollering, the pain, the hurt, the questions, the anger. Sometimes there were appreciation: gratitude, seeing the beauty.

But sometimes it seems my words were just not touching it, not describing the grief right. I really wanted to yell out to the world what it feels like, how it is, but it seems no matter how I string together the words, no matter how hard I contemplate the letters on my keyboard, there is a glass wall between me and grief. It seems I hold and cradle it, and I rock to sleep murmuring its name, yet it seems so intangible.

Then one day, my wonderful friend Leigh sent me this poem:

The Phoenix Again

On the ashes of this nest
Love wove with deathly fire
The phoenix takes its rest
Forgetting all desire.

After the flame, a pause,
After the pain, rebirth.
Obeying nature’s laws
The phoenix goes to earth.

You cannot call it old
You cannot call it young.
No phoenix can be told,
This is the end of the song.

It struggles now alone
Against death and self-doubt,
But underneath the bone
The wings are pushing out.

And one cold starry night
Whatever your belief
The phoenix will take flight
Over the seas of grief

To sing her thrilling song
To stars and waves and sky
For neither old nor young
The phoenix does not die.

~ May Sarton

and upon reading it, I broke down and cried. I realized that I have been trying to grope with the shape of grief, and perhaps denying what it was. The poem spoke to what I feared to face up to: I had died with my son.

And it spoke for what I desired: to live again.

Those words gave shape to my grief.

Often, it is when reading the blog of a fellow bereaved when I will chance upon a line that makes me say, or think, "Oh, my gosh, you just nailed it. You just said it for me, in a way more eloquent, and more beautiful, and more wide-eyed that I ever could."

Yet, it is not just the fellow bereaved who knew my grief, or who actively and compassionately sought to feel around this hole in my life, groping, tenderly touching, patiently trying to understand it all with me. At my Blessingway, organized by my two wonderful, incredibly awesome friends, a friend read the following poem during the session in which we all honor my son Ferdinand:

When in the paling darkness of the lonely dawn
you stretch out your arms for your baby in the bed,
I shall say, “Baby is not there!”–mother, I am going.

I shall become a delicate draught of air and caress you;
and I shall be ripples in the water when you bathe,
and kiss you and kiss you again.

In the gusty night when the rain patters on the leaves
you will hear my whisper in your bed,
and my laughter will flash with the lightning
through the open window into your room.

If you lie awake, thinking of your baby till late into the night,
I shall sing to you from the stars, “Sleep mother, sleep.”

On the straying moonbeams I shall steal over your bed,
and lie upon your bosom while you sleep.

I shall become a dream,
and through the little opening of your eyelids
I shall slip into the depths of your sleep;
and when you wake up and look round startled,
like a twinkling firefly I shall flit out into the darkness.

When, on the great festival of puja,
the neighbours’ children come and play about the house,
I shall melt into the music of the flute and throb in your heart all day.

Dear auntie will come with puja-presents and will ask,
“Where is our baby, sister?”
Mother, you will tell her softly,
“He is in the pupils of my eyes, he is in my body and in my soul.”

~ Rabindranath Tagore

Oh, how I trembled as those words left her lips. Those words made me realize how close my son is to me, and yet how far away he is. Those words reached deep and touched me where it is the most raw and most tender. My entire being shook, down to the very depth of my soul, because in those words, my grief had once again been given shape. Those words beautifully expressed my grief and longing. I read the poem many times over after the Blessingway and cried many good crys.

::::

How about you? How do you find shape to your grief?- thrugh your own writing, by reading? Do you have a poem that you return to often, be it for comfort, or just to give yourself permission to have a good, good cry?

What dreams may come

I don't tend to remember dreams. I used to say I don't dream, and then I learned that we all dream, but unless we wake up at the right time in the sleep cycle, we don't remember what it was we were dreaming about. So now I use scientifically correct terminology-- I don't tend to remember dreams.

The times I have dreamt of A? That I remember? I don't even need one hand to count. And never have I seen him as an infant, either the way he looked when he was born or as an alive one. Since I am by nature not an easily guilt-ridden parent, this does not usually cause me angst. I don't even know if I ever felt envious of the bloggers who have had these vivid live baby dreams-- the practical side of me kicks in right away with the "how hard it must be to wake up from a dream like that."

The times I have seen A in a dream? Well, a number of times before he was born. When I owned up last year to knowing he wouldn't be staying I left one thing out-- the dreams. I saw him in my dreams, a couple of times, while I was pregnant with him. Never as an infant. Always as a little boy, always in a distance, with a full head of curly hair, never looking at me, always running away. If this was a part of a storyline in a book or a movie, I would roll my eyes. Too much, too thick, too manipulative. But, as Mark Twain famously noted, fiction is obliged to stick to possibilities. Truth-- not so much.

A was born with curly hair. Tiny little waves of hair, perfect little squiggles, all wet from the birth, all over his perfect little head. And in one of the only dreams I remember from the weeks after, he was still running away, but this time he stopped and turned his head to look back.

My boys are different people, I am sure of it. Was sure of it the whole time, from before I was ever pregnant with the Cub. (Though who can really say how much of this surety is a pushback against the idea that a living baby fixes the grief and the griever-- one of my absolute favorites, that.) And even if I wasn't convinced of A being distinct from any future baby just on general principle, there would still be the part where he was running away from me in the dreams. That's not to say that I think that bereaved parents who believe that the souls of their children who are gone come back to them are wrong. I am, as with so many things in this grief world, agnostic on this. For other people. Not for myself. My boys are distinct.

And actually, since I was so sure that if we were to have a living baby it would have to be a girl, I considered the whole question, as it relates to me, purely theoretical. I think I was even a bit smug about that in the privacy of my own mind. Obviously that is not how it went. Though now that it went, now that I am getting to know the Cub, I am ready to attest with even more conviction-- they are different.

Except... Except that once in a while I think back to this other dream I remember from the early weeks. Well, "remember" is a bit strong there. The dream that was capital W Weird. Spontaneous human cloning-- oh yeah, baby! I dreamt, as far as I can remember, because it became hazy within minutes of waking up, that there were some cells left of A's placenta, and that at some point one of them went all pluripotent and created another, genetically identical pregnancy. This is both bizarre and absurd. So much so that I think I knew even in the dream that I was, in fact, dreaming. I certainly knew it the very moment I woke up (behold the power of years and years of my not entirely wasted edumucation). In the end, though, after I dismissed the literal scenario of the dream, in the end I had this unmistakable feeling that there was something tangible, something physical left. Even if I couldn't touch it.

Curiously, this dream happened only days before one of the handful of dead baby bloggers I was reading at the time posted about the research that showed that fetal cells can enter mother's bloodstream and remain there for at least 27 years. Physical indeed.

So what about you? Do you remember your dreams? How much attention do you pay to them? Do you dream about your dead baby? Do you want to?

The bitter and the sweet

I have a latte addiction. Over the last month or so I've had three or four chances to reflect on how I got here, on how this habit that is now second nature started, startled and transported without fail every time the memories came.

What you need to know is that I do not take sugar in my tea. I just don't. Black rates a lemon wedge, unless it's one of those fancy flavored black teas (like this one that I brewed a whole pot of the other day), and then it's straight. Herbal, green, white, roobois-- no sweetening any of them, thankyouverymuch. They are what they are, and if I don't like the smell, I don't buy the tea.

What else you might want to know is that I managed to get through both undergrad and good part of graduate school without developing a full blown coffee addiction. Oh, sure,  my first exam week, the one in the winter of my freshman year, was more or less entirely courtesy of chocolate covered coffee beans. But really, who could resist that-- deep dark chocolate goodness over the magic bullet of late night endurance? I had a baggie that I got as a gift less than two weeks prior. I budgeted my stash for optimal performance-- one bean every 30 minutes, or maybe 45, or even an hour, if the night was still young. I thought that was pretty clever-- a steady stream of low dose brain support, not much for peaks or valleys.

Anywaaaaaaay, fast forward seven or so years, and I am finding it a fun part of my morning routine to grab a cup of coffee on the way to lab or office. At the same time, I am finding it incredibly annoying that my period has been MIA for months, and that the hoity-toity doctor at the university clinic has sent me home with a prescription of progesterone and not a word of explanation. So just about when I am starting to think that this coffee thing is a great counterpoint to the windy and bone-chilling walk from where I park to where I work, I get to see the world's best nurse practioner, who, in three seconds flat, delivers the diagnosis of PCOS. I search the internets and learn of the low carb way of life that sometimes help. I read low carb books and websites, and I learn that coffee has to go, at least to start. So it goes.

It took us another year and a half to get pregnant with Monkey. Then it was the pregnancy, and me hyper-paranoid, and nauseous anyway. By the time I had given birth to Monkey I wasn't even missing coffee. Sushi-- now that was something I was keenly interested in getting back to. But coffee? Meh. Whatever.

I picked it up again when I went back to work, but only on as needed basis. And that's really how it remained up until A died-- not usually, but sometimes. I did like to order a cappuccino for desert at restaurants, but again, once in a while.

If you want a coffee lover, though, then my husband is your man. We own two traditional stove top pots for making Turkish coffee. We also own a drip coffee maker that grinds its own beans. JD was entrepreneurial in exploring locally available bean options, but for many years we also belonged to a mail service that sent us coffee once a month, service JD finally and gleefully cancelled last year as the alternative service, one that now sends us coffee pods came online. Sends us what, you ask? Pods. Coffee in the pods, for a one cup at a time machine. We saw the machine on one of the first Apprentice seasons, and the man fell in love. When friends asked what he would like for his birthday that year, I told them to pull their money and make his day. They did, and it did. We made room for it in the kitchen, but still for a long time it was his toy. Don't get me wrong-- I was happy we had it, since running a drip for one cup was a bit silly, and the stove top thing takes time.

So how did we get from his toy to my latte addiction? More or less in one jump. A died. I went to work three weeks later, as soon as I was physically able. Not the brightest of my ideas, I confess, but at the time it seemed like the thing to do. I wasn't exactly happy at work, as you can guess. I wasn't even exactly focused. The project I was doing at the time dragged, and as result, because the boss became swamped after I left, and even though I did leave her a finished document, is still unpublished. Bleh.

Ok, let's call things what they were. Unfocused is way too mild. I didn't want to be there, or anywhere, really. I had great colleagues, but I'd have rather sat on the couch and read blogs. I'd have rather slept. I'd have rather excavated my office, even. That was the project on my to-do list for the last couple of weeks of pregnancy or for when I was on maternity leave. See how well that worked out? (I did tackle the thing, a bit, last year, but it is again in need of major help. Maybe next weekend then...)

So not wanting to be at work, feeling more than a bit guilty for not getting the work done, and more than a bit pissed off that I was there instead of home with an infant, I realized that I needed something in the day to look forward to. Something that was just for me. Something that wouldn't tax me, something that was a reward for making it to work on my worst days, and a way to settle myself and get something done on my best. After a few days of little sleep and necessary caffeine, one of them splurging on a latte instead of my usual black with a lot of room of cream, that's what it became-- my ME moment, my daily latte. 

My lattes are so sweet that JD and a couple of otherwise perfectly lovely bloggers make fun of me. You put how much splenda in there? You let them put how many pumps of that syrup (sugar-free, usually hazelnut, if you care) into your order? A lot, and many (though not together-- one or the other). My latte is to be sweet, plenty sweet to cover the bitter. When it comes to coffee, I am not a connoisseur. I am an escape artist.

That year, when asked what I wanted for my birthday, my first instinct was to say "um, nothing-- what I want I can't have." A flash of inspiration later I started answering "Starbucks cards. No, not kidding." Eventually, we bought a frother thingie and, with an able assist of the pod machine, learned to make lattes at home. Six-seven months ago our pod machine broke. Sputtered water all over the place for a while, and then just gave up the ghost. JD tried to survive for a week or so, gave up, and bought a replacement. A few days later I called customer service, hopeful that maybe they knew of this ailment, maybe there was a part I could buy.

Turns out these suckers have something very close to lifetime warranty. We never registered ours when we bought it, but that didn't seem to matter. They sent us a box, postage pre-paid. We sent them the broken machine. They sent us back a new one with a note on how the old one was well and truly caput. My profit on the deal was that the new one JD bought went to work with me. For a full effect, I need to find a small microwave, to steam the milk in. I already have a spare frother. For now I am drinking coffee with lots of cream and splenda when at work, and proper lattes when at home.

When I drink either, I don't usually think about how this started. But I am not sorry that things this last month conspired to make me think about it-- somehow in this season that has been somewhat unexpectedly hard, I find it comforting to locate this link I have to my boy. In my mind, it's not a present from him, nor a consolation prize. And it goes without saying that I would rather have him than all the lattes in the world. But since this is where I am, I will have that latte with all the splenda I need. So there.

What helps you get through your days? Do you have your 'just for me' rituals? When and how did you acquire them? What do they do for you? Has that changed with time? 

'tis the season

For every adult in the kitchen there appeared to be two or three children running between rooms, blitzed on sugar from the chocolate fountain and marshmallows they were using for dipping. Wrinkled party dresses and cheeks smeared with sweetness, they were enjoying the freedom granted by their parents’ own distraction – mainly champagne and a recently restored vintage jukebox. A head collided with the stem of my glass and kept moving, unfazed, back to his friends all up way past their bedtimes.

.::.

'Cardiomyopathy is a chronic and sometimes progressive disease in which the heart muscle (myocardium) is abnormally enlarged, thickened and/or stiffened. The condition typically begins in the walls of the heart's lower chambers (ventricles), and in more severe cases also affects the walls of the upper chambers (atria). The actual muscle cells as well as the surrounding tissues of the heart become damaged. Eventually, the weakened heart loses the ability to pump blood effectively and heart failure or irregular heartbeats (arrhythmias or dysrhythmia) may occur.'

.::.

One of the younger boys came in, crying over some rough play happening in the next room. He’d been wearing a toque the whole time and now pulled it off as he found his mother. He was soothed with some kisses to his cheeks and bald head before running back to the action.

“Yes he’s bald. He’s got leukaemia, he’s been in remission since March. We’ve got two more years of treatment.”

She went on to tells us about how she worries for his future; as a teen and adult will he lead an incredibly healthy lifestyle, or will he feel invincible having beaten cancer, and abuse his perceived strength?

The hostess, the wife of a friend, went on at length about how scary it must be – the thought of losing a child. How utterly terrible it would be to lose an only child.

It was right around the time the walls began to close in on me.

.::.

'Cardiomyopathy is nondiscriminatory in that it can affect any adult or child at any stage of their life. It is not gender, geographic, race or age specific. It is a particularly rare disease when diagnosed in infants and young children.'

.::.

He found me on the front porch, trying to regain control of myself, tears streaming down my face. I was as embarrassed as I was upset and wanted to scream when he asked me what was wrong. I stared through the picture window at the enormous twinkling tree he and their two kids had decorated that morning. I forced some deep breaths and pulled out my mobile to call a taxi.

.::.

We finally received Sadie’s post mortem report a few weeks ago. Any hope I had been holding on to that it would reveal some extraordinary insight about her condition was dashed. Waiting had given me a reason to tuck that part away; I could put off thinking about future children because I didn’t yet have all of the information I needed. There had to be something else, some tiny scrap of information resembling an explanation for it all. Going through the document with her doctor made me face what I have been refusing to believe since he told me so on the day I met him. We would likely never find out the cause.

With nothing left to wait for I know I should be thinking about what I expect from the future. Our genetic counsellor told us that based on what information they do have, the odds of us having another child with cardiomyopathy are 1 in 10. She chose to pitch it as a 90% chance that any future children will be perfectly healthy.

My husband asked me afterward whether I’d buy a lottery ticket given those odds. My answer was simple. Of course I would. Because I know I would survive losing.

We’ve all become much too aware of the fragility of life, regardless of what took our children from this world. I would like to hear how other babylost mamas who went on to have more children came to the decision to try again. How long did it take for hope to outweigh your fear?