the crack in everything

ring the bells that still can ring
forget your perfect offering
there is a crack, a crack in everything
that's how the light gets in

- Leonard Cohen

I heard the lines above last night, a melodic crescendo, and was stunned into reverie. Down to the sour smell of smoke and sawdust that were in the air that night, I was, for a moment, transported viscerally to the time and place they'd last crossed my consciousness.  Three summers ago, almost.  With old friends, gathered from our scattered points around the globe, for a weekend of talk and wine and beer.  It was nine weeks after he died.  I was supposed to be thirty-five weeks pregnant for that visit: instead, I was raw, raging, humbled...unmoored.  but with those friends I felt comparatively safe and we talked about him, a little, and they talked about him, a little, and there was no sweeping under the carpet and I felt freed by that, grateful...even welcomed the strangely soothing balm of the eight month old boy one couple had in tow.  The group of them were some touchstone of normal - of the me I had been before - in a time when there was none, elsewhere in my life. 

But then Leonard's voice broke in through light chatter and mild drunkenness on the second night of our gathering. ring the bells that still can ring, he intoned, gravelly and sage.  and suddenly I was choking on smoke and tears, and I bolted from my chair and went stumbling across the yard in the darkness, almost blind.  What fucking bells?   Seriously, what bells were left?  I was broken.

I'd lost my job along with my child.  I was struggling to find a place in a community we'd moved to only months before, struggling to find other work, struggling to get up the courage to leave the sanctuary of the house on a daily basis.   I was a parentless child and a jobless professional...and we'd left our old life behind on another continent to come home and have a baby.  Without that baby, I could not figure out how to go forward.

I'd been, I think, in the denial stage of my grief.  I looked back to my friends in the circle of light on the deck, and realized, there really is no going back to normal.  fuck me gently.  And then I went inside and mixed myself a Southern Comfort Janis Joplin would've been proud of, and sat, numb, staring, bewildered.
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The thing about grief - and in particular, the keening loss that was deadbaby grief for me - that blew my mind was how it robbed me of any clue about how to continue to live my life in a meaningful way.  I understood, factually, that I still had a reasonable semblance of a life, if one in a bit of a shambles at the time - but I could not connect to it.  I groped for the bells left to me to ring and came up clutching air.  It wasn't the overabundance of a sheltered life in my previous incarnation, either, that left me so bereft even of my self, of my survival instinct, my resilience: I'd been violated before, just by living...betrayed, divorced, disappointed, grieved.   But I'd never been stopped up short.

I wonder, sometimes, what it must have been like to grieve a child back in the days of our great-grandmothers, when infant death and pregnancy loss were common and maternal death a fairly regular outcome of childbearing.  I imagine it was still a lonely, isolated thing for many, particularly given the stiff upper lip with which loss would've been expected to be met in many communities and circumstances.   And yet...other than the fact that fewer of us would be present in this company of mourners, lost as we would have been along with our babies...there would have been one key difference between then and now: we would not, could not, have gone into pregnancy without realizing that a loss of this scale was very possible.

I realize, finally, three years on, that that has been the crack in everything, for me.

That pregnancy was fraught with bleeding from the early days.  At six weeks, I was told I was probably miscarrying, and sent home on bedrest.  It felt surreal, but not shocking.  I knew women miscarried.  I knew a number of women who had miscarried.  My partner had already lost two, with his first wife, so I understood full well that the risk of that loss was part of the bargain I'd gotten myself into.  But when the bleeding resolved and the docs said all clear and I sailed past fourteen weeks with no further complications and a perfectly normal ultrasound, I was naive enough to believe that I was pretty much going to be bringing a baby home.  I wasn't sure that baby might not have some minor health issues or delays...I worked in special ed, I knew not every child fits every norm, but to even consider seriously that my baby might die seemed beyond dramatic, frivolous, macabre. 

Such are the miracle assumptions modern science has taught us to espouse.  All other truths and possibilities - especially those that involve dead babies, unsavable, for no apparent reason - are silenced in the mainstream discourse surrounding pregnancy and birth, these days.  There is no norm left to us, and so we are unwelcome and awkward and exposed in the societal conversation surrounding how babies are made, marginalized because we can be, because medicine has made us anachronisms, relics.  

In retrospect, I see now that I've dealt with every other sorrow that's come my way in life by telling myself I expected it.  Each time, it was at least somewhat true.  Nature and experience shaped me as a cynic of sorts, a Cassandra, attuned to the emotional and relational roadbumps that littered most of the paths I ever chose.  I got wounded along the way, but seldomly truly surprised.  And that helped.  It didn't assuage the pain, not necessarily in the moment, but it left me semi-intact, with bells held in reserve still to be rung.  Until I was blindsided by the death of a child who had at least a 75% chance of survival even at the moment of his untimely birth, I had never had all the bells torn from me at once...even the small, cold, brass one marked i saw it all coming.   Without it, and without the baby in whose basket I'd piled all my hopes, I was - for the first time - bereft.
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Last night, listening to Cohen and time-travelling, I wondered about what seems to me now like the naive and sheltered discourse that surrounds pregnancy in our day and age and culture.  And I sang along, frog-voiced but loud, proud, forget your perfect offering.  there is a crack, a crack in everything.

We embody the crack in the perfect offering of modern pregnancy sold to us by Parenting Magazine and BabyCenter and What to Expect When You're Expecting.  We embody it because our children are not here to.

The logical conclusion, of course, to my stretched analogy is, then, that we are how the light gets in.  A part of me likes that.

Half a Mom

There comes a point in a pregnancy where one usually starts pondering how things will get balanced after the child is born, in terms of of time and psyche:  how will I manage to be both a wife and a mother? (Jeebus, is it really 5:30 already?!)  How will the time get allocated between my obligations to these distinct places of grocery store and nursery, not to mention work, my friends, my family?  A cold wave of early bedtime, schedule-crushed weekends, sick days, babysitters, daycare, and netflix subscriptions suddenly washes over one as she realizes things will change, radically.  There are only so many hours in a day, and while I multitask with the best of them (lifts fingers from keypad ever so slightly in order to blow toddler’s nose, take turn at Candyland, throw ball to dog, click over to respond to chat message, and realize chicken needs defrosting) sometimes things need undivided attention and take priority.  Babies are one of those things.

I remember in the weeks before Maddy was born, wondering how on earth I was going to juggle two children.   And I mean that somewhat in the literal sense of throwing them both in the air, perhaps with a banana some yogurt and a cell phone, and seeing if I could make a five-minute lunch plan out of it for all of us.  But I also mean that in the more figurative sense of balancing my time with them, and the more existential sense of how I would carry them around in my heart and my head, equally, and yet individually and appropriately.  With liberty and justice for all.  And a bit of down time for mom, who needs a good bubble bath now and again.

And so it started, pulling away from the house on a Monday morning, weeping, leaving my toddler behind for 48 hours while I went to birth her sister.  The split opened fresh and wide: guilty for leaving one behind, anxious to meet the other.

Before I could secure on my helmet, my brain began careening from one wall to the other, not only between Bella and Maddy, House and Hospital, but Well and Sick.  It became clear to us by late Tuesday that Maddy was severely impaired, and would likely require exclusive hospitalization or institutional care.   How on earth would I ever manage parenting, loving, holding two extremely different individuals under two roofs separated by distance, time, and most likely money and visiting hours?  This was not what I envisioned when I imagined pointing out to Bella that her sister had just spit up some god-awful substance on my couch that demanded immediate attention, sorry if I couldn't help her find other maraca right this second.  It somehow seemed justified, explainable, easy when both were right there, in front of me.

As the week dragged on I couldn't settle in either place.  When I was at the hospital, I simply longed to be home, snuggled with the well, knowing what sweet life could be.  While I was home, I was racked with guilt for not being at the bedside of an infant -- a tiny babe who couldn't possibly understand, but needed nothing more than her mother next to her side and I yearned to return and touch her small hands.  I was restless in both places, both in spirit and in body.  My eyes cried, my breasts leaked, my head screamed for silence and sleep, my legs found themselves heading to the door, my hands constantly picking up the phone to check on the other, my mouth always speaking of the other daughter:  "Bella, your sister is very sick.  But she is so beautiful."  "Maddy, your big sister Bella wants to meet you so much.  She used precious Dora stickers on your valentine, she must love you immensely."  There was no way to bring these worlds together -- Bella was on month three of a post-nasal drip hack.  One NICU deemed her too young, the other I didn't dare bring her into.  Maddy, with her sea of tubes and wires and machines that go "ping" was in no shape to leave the hospital.  Both children demanded my attention.  Both children deserved it.  I couldn't reconcile my obligations.

The last 24 hours of Maddy's life were spent exclusively at the hospital; I left my home Saturday a mother of two, but two split by location and health.  I came home Sunday night, the mother of two, divided by living and dead.

I wish I could announce that at that point the pendulum finally quit its manic swing, and I settled back into my one-dimensional life.  But it actually became worse.   To this day, I fly back and forth between earth and the underworld, my family room and Hades, with a surprise and suddenness that brings whiplash.  My mind smashes against one wall and is suddenly spinning pel-mel towards the other until it crashes again.  The duties I feel toward my two disparate daughters have left me concussed.

I'm still always guilty of where I am, feeling that I'm snubbing one daughter for the other, unable to spend quality time with one and pay attention to the other’s needs.  I often feel like half a mom.

I discovered early on that Bella, only two-and-a-half at the time of Maddy’s death, began associating my frequent and random griefbursts with whatever activity we happened to be involved in at the time.  Music Class, for example, quickly got scuttled when I cried roundtrip the first week back.  The following week Bella blew up and refused to leave the car, pronouncing “music makes me sad.” (Maddy 1, Bella 0) The tears, apparently, would have to stop during daylight hours lest she begin associating them with trips to the grocery or walking the dog.  I had to manage my grief, no matter how badly I simply wanted to curl in a ball and cry and remember Maddy, and hold it off.  (Bella 1, Maddy 1).

My Maddy-time is right here, right now, on the keypad, typing her name, sharing my memories and feelings.  I try desperately to limit this to when Bella is killing gray matter in front of the television, or when she’s off at school or in bed, but sometimes I need to “check my mail” – see her name, send my love, receive support.  It kills me that when Bella picked up her dad’s camera she turned it and caught me, as I must always seem to her, hunched over the keyboard.  Bella can’t you see that she needs me right now?  That she’s crying?  That she reeks a bit of stale vomit?  That her hands are outstretched?  That mommy needs a few minutes with her?  No, of course you can’t.   Truth be known, I can’t either honey.  But I just need to be with her a moment, m’kay? (Bella 2,346, Maddy 4, 578)

And then there are the times I stifle my memories, my feelings, my grief, and mentally block out the picture of my other daughter and what she would look like today stumbling across the lawn so that I may enjoy Bella attempting to blow bubbles and then eat them, or hanging upside down out of the hammock or delivering Little Miss Bossy Boss her Milk!  Now!  “Oh and some crackers too, Mom!”  So that I can pay attention and avoid a trip to the emergency room, and not get too impatient and testy and be in the moment and breathe and enjoy.  Shit Maddy, your sister’s doing that thing where she’s hangs upside down by one arm on the tree branch and tries to drop four feet, and I can’t right now!.  But the otherworld baby can’t possibly know when it’s a good time to slap me upside the head and demand attention. (Bella, 1.67x10⁷, Maddy 1.24x10⁷)

Sweetie, I’m in an important meeting and everyone’s looking at me, I can’t, I just can’t, can it wait?

I’m sorry, I’m so sorry, but rush hour tonight is a bitch without taking that detour over the River Styx.  Maybe tomorrow night?  Ok?

I’m right in the middle of dinner, I have raw chicken yuk on my hands, the stove is on, the dog is barking, Bella is crying in front of the fridge, the phone is ringing, the cat just coughed up a hairball perilously close to the salad, can’t you see?  Can’t you see that I just need a few minutes here and then I’ll deal with you?  I’ll be there in just a second.

I know a day will come when the head-banging oscillation will cease, and that I’ll find myself firmly planted here, with only an occasional, slightly depressing venture to visit Maddy.  But I almost dread that day; it will mean we all have grown:  neither of my daughters will need me as much, and I’ll come to realize that the voices in my head aren’t really, it’s just my need to grieve finally waning.  One will no longer be a baby, and I’ll come to realize that the other never was, on this plane.  At which point I’ll only be able to look back and hope I did the best I could, by both of them.

Mother’s Day looms large right there around the corner and I can’t bring myself to celebrate and feel rather guilty accepting anything from the live daughter.  I feel I haven’t been there in full.  For either of them.  I’m constantly distracted by the other, and have yet to figure out how to hold each of them against my still poochy stomach and tell them both simultaneously, “I love you both, equally, fully, with all of my might and ability.  Recognizing that you both are quite different, of course.  You know, in case you hadn’t noticed.”

what they say

You'll hear these words again and again, sometimes as a reassurance, sometimes as an explanation, sometimes, it seems, simply as a mantra: "everyone grieves differently."

"Everyone grieves differently," they say, "Oh, yes, everyone grieves differently. You know, everyone grieves differently." They say it, but it isn't true.

Everyone seems to grieve in remarkably similar ways. There's the chasm, the stumble, the stagger, and the fall. There's the cold, the silence, and the dark. There's the shattering, the splintering, the grinding, the rending. There's the strange language in low whispers. There are tears that strangle and tears that scald. There's the chain of words around your wrists, the story worn out by the telling that always ends in exactly the same way.

There's the wearying round of repetition. The first month, the second month, the third month. There's the ever-recurring day as the weeks gain ground. There's the first Christmas, first Easter, first Mother's Day. Then the whole year has gone and the counting begins again, but more quietly this time.

Sometimes there's the stake and sometimes there's the stone, the garden, the poppied field far from the swing of the sea. There's the shadow and the apple blossoms, the thimble and the stitches, the cypress and the yew. Everyone grieves that way. Everyone, it seems, except for me.

"You can't compare pain," they say. But that's not true either.

I lift your grief in one hand, mine in the other. I balance them against each other, gauging their heft. I lay them side by side and measure carefully. Mine always comes up short.

Stirring the pot and singing Kumbaya

Last year, while I was still in the very thick of it, Virginia Tech happened. I didn't watch much TV then at all, and certainly not much in the way of news. I heard of it on the radio, I think. What I did do a lot was read blogs and chat online, mostly with my friend Aite. One day she told me she was watching the coverage of the tragedy, and there was this interview with a father of a student who got killed. One question he was asked was "was he your only child?"

Would it have been any better if he wasn't? Not really. But it would be worse if he was. Facing a life with no surviving children is a separate pain. She is very thoughtful, my friend Aite, isn't she? This is something that stuck with me over the last year, this idea of how some things can't possibly be better, but there are ways in which they can be even worse.

I have been troubled the last few days. Perturbed, bent out of shape, preoccupied.  A comment, a couple of lines and a signature, is what left me alternatively dumbfounded and steaming. A comment that seemed to imply that we here have not so much to talk about because we are, none of us, bereft of living children and at the end of that road.

I never claimed or wanted the mantle of the worst case. In fact, somewhat recently, I finally, after thinking about it for a long time, wrote about one of my coping mechanisms-- the it could've been worse. There are so many ways in which my experience with grief could've been a lot worse. For starters, every time I hear a bereaved parent talk about the guilt they carry, my heart breaks. I have none of it. And this still sucks. Adding guilt on top of the grief seems like it would just be too much. I also had the very best, most compassionate medical care. I have friends who didn't run away, who still remember and take care not to step on my toes. And I have a living daughter. Validating her in her grief, acknowledging that she is a separate part of this story, that her loss is her own and must be respected and honored, all of this has been a challenge. But not one I would ever trade.

Yes, it could've been worse. It is worse for many, I believe. For parents losing their first-borns, how can it not be worse-- wondering whether there will ever be a living child in their home, many times a home lovingly picked in preparation for the arrival of that first-born? For parents who years after losing their child and despite trying and trying, and trying some more have not brought another into the world, how can it not be worse? For parents for whom lightening has struck two or more times, how could it not be worse for them?

So see, I have no problem with anyone telling me I am not the worst off. In fact, I'd be the first to say that. What I do have a problem with, a big huge problem, is with conflating me, an individual who grieves, and my son, an individual I grieve. Or any other baby anyone else grieves. I don't think the value of a child, value of each child to the universe and to their family, can or should be relative to what the family does or doesn't have.

We all grieve our children. We may grieve different things about them. For some it may be as simple and all encompassing as the huge void, the absence, and for them there is no need or use in dividing that void into bite size pieces. Others have come to believe that we grieve the potential. We grieve not knowing. Not knowing so many things. It kills me that I don't know what color A's eyes would've been. What he would've looked like when he smiled. What his laugh would've sounded like.

What has been so upsetting to me in thinking about that comment is the implication that these things I grieve should somehow be less important because he wasn't my first or my only. That not getting to know my son is less of a tragedy because I have a daughter. Or because I may yet get to know another son. The implication that seems to me to be trending towards the hated "you can always have another" line that is the very definition, the very embodiment of the cluelessness of the world around us. The implication that, if extended as logic requires, would indicate that first babies who die lose their specialness, their importance, or the amount of grief allotted to them if or when their parents bring home a living sibling.

Had they lived, our children would be seen and counted as individuals, judged, hopefully, on their own merits. Do they not deserve the same in death? To be seen and mourned as individuals? To matter as individuals?  

So this is my point, a fine one perhaps, but one that has asserted itself as supremely important to me over the last couple of days. The experience of loss, the human interactions of it, the physicality, the treatment we get from medical professionals, from our families, from our friends, the ripples, all of that can be worse.  The situation any given mother or any given family may find themselves in can certainly be worse. Comparing is human nature, and it is ok.

But not when it comes to the babies. I believe that placing differential values on the children based on what else is going on with the family should never be on the menu. Denying me my grief does not speak to who I am or what I have, either in abstract terms or as compared to anyone else. What it does is minimizes my son, makes him less than a person in his own right. And that is just not something I can accept. 

What I believe about each of our lost babies, regardless of anything else, is that they were loved, they were wanted, they are missed, and they are grieved. Other things can be worse. But this, the place where we all started this journey, this place can't really be better.