The Rule of Thirds

“Keep in mind the rule of thirds:  one-third of your friends will be supportive of your need to mourn, one-third will make you feel worse, and one-third will neither help nor hinder."

--From Alan D. Wolfelt, Healing A Parent’s Grieving Heart:  100 Practical Ideas After Your Child Dies

A good friend who lost her husband very suddenly to a brain tumor in ’04 sent me this book last year after Maddy died.  She liked the “Spouse” version, and being cut of a similar cynical edgy sports-lovin’ foul-mouthed cloth as I, thought I might appreciate Child version.  I did, it’s the griefbook I appreciated most, and still find myself picking it up a year later.  One thing I really like about this book is that every page is a topic with a few bullet points, so you can open it randomly and discover something, and if something sits wrong on a particular day you can just flip to the next page and see if that feels better.  (Or put it down, and pick it up months later.  I find it to be rather timeless that way.)  No need to sit and feel like you need a few hours to go through something linear.  I also like that, for-all-intents-and-purposes, it’s genderless and can be applied equally to a husband or wife -- and let’s face it, very little out there on this subject can be.

I'm sure I read this particular passage long ago, during the first pass, but wish it had stuck.  It did not.  And so I am constantly amazed at those thirds who fall at the ends of the spectrum, the ones who surprise me with their understanding and kindness, and the ones who floor me with their inability to show even a modicum of compassion.  The other surprise for me was that this “third rule” included family.

Let’s start with the innocuous middle third.  There will always be those who will treat your life-altering experience as a vacation:  you were gone for a while, you came back, maybe shared some pictures and stories, people mingled around the water cooler for a few days to follow up, and then it got dropped and life moved on.  At some times I’m a bit taken aback at what appears to be complete ignorance (“Did I tell you?  You do know that my kid died, right?”) and yet 30 seconds later am so fucking relieved to be deeply involved in a conversation about how maybe I should pay attention to the  Penguins in the playoffs this year.  Aback that they wouldn’t say anything, relieved that they said nothing, all the while rather pleased that they don’t view me as some bad jinxy hex that needs avoided altogether (although I may be missing some crucifix and garlic waving when I turn to leave).  And frankly I’m at the point where I’m rather pleased that I can go places and talk to people WHO KNOW about things like books and dogs and whether the Steelers did right in the draft (another quarterback?  really?).

I’m constantly surprised by the bookends.  I’m blessed to have some very good friends and family in my life that I knew would be supportive, and they are, but I’m always so impressed by how much.  These are people who have such grace, they make it seem so effortless to say the right thing at exactly the right time.   I end up thanking them, they are just so meaningful and classy, and they look at me as though I’m thanking them for breathing or combing their hair – they simply can’t understand what it is they’re doing that warrants praise when it is simply how they are.  And I realize:  I probably wouldn’t be one of these people if I were on the other side of this mess.  I’d be tongue-tied, never knowing what to say, not horribly sure of my own emotional sanity, and probably wind up in the innocuous middle chatting about the NFL draft.  

But I know I give thanks, and am so surprised by the outpouring of kindness, because of the other end of the spectrum where people shock me with their unsympathetic cruelty.  I don’t think in a million years I would’ve thought that someone could turn my baby dying against me, but indeed, some have.  If someone had told me the day after Maddy died that friends and (gasp) family would not just behave awkwardly around us but actually treat us poorly I would’ve scoffed.  No way.  People are not that stupid and cruel, are they?  (are they?)

Um, yes, gentle reader, they are.  It really began in earnest around six months after.  And suddenly  people began leaving signs in fluorescent paint:  enough.  Stop.  You’re wallowing.  Party poopers.  Isn’t it time to move on?  How dare you suck the life out of someone else’s joyful event.  Don’t want to call me?  Well, two can play at the game.  Apparently six months is about the time when the people of little patience move into that end of the spectrum, and begin a not-too-subtle dance of pushing you, hurrying you, belittling you, ignoring you.  I think it dawns on others, if you’ve ignored them for this long for other reasons (say, they have children that would’ve been the age of your deadone and they haven’t been horribly involved anyway, staying in the middle third for so long), that you’re avoiding them.  No, you’re angry at them.  They develop a complete psychosis about how you must feel about them, without them asking you.  And if you’re unlucky, someday they’ll dump it on you – like one of my neighbors did.

Perhaps most surprising and upsetting to me was that family fell into this category of the “make you feel worse” third.  I should add a disclaimer here that I do have a couple family members – one who I assumed would handle the situation poorly given past experience, and another who had a baby shortly after who we ceased contact with – who have flabbergasted me with their solid appearance in the front end of the spectrum.  They are patient, articulate, compassionate, and the latter even defends us against the detractors despite the fact that we haven’t seen them much since the birth of their son.   But to think your own flesh and blood would grow tired of your grief -- tire of hearing of their relative!  Maddy!  Don’t you miss her too? --  impatiently try and hustle you along through the alleged grief steps (“They must be in that anger phase”), wonder if you’d ever snap out of it.   And then do things like fail to show up at a memorial service for your daughter after promising they’d be there, refuse to answer your calls (even on holidays) after telling them they were disappointed, and as Julia so eloquently put it a few days ago:  refuse to check their shit at the door.  It’s not about them, none of this.

I’m torn; while I’m relieved to look around the blogverse and realize other people’s families let them down too and we’re not the only dysfunction to arise from the ashes of a deadbaby, I’m also saddened that it seems to be such a pattern.  There’s a dissertation to be written here, about the pressures such tragedies put on extended families and how they deal with them long term.   Are they more invested in our happiness than our friends, neighbors and coworkers?  Or does the law of averages simply say that a third of the people you run with, no matter their relation to you, will fall over there, off the edge into a pit of selfishness and denial and ignorance?

But when they get me down, I flip over and revel in the wonderful part of the spectrum again, and wonder why it is that everyone isn’t wired like that.  I would like to think behaving that way is human.  It’s clearly not.

collateral damage

I know that Mother's Day is, for many of us, a difficult day, a day on which we think about our lost children, mourning the fact that we don't seem to count as mothers in the eyes of the world or, perhaps, in our own eyes, mourning the fact that all our children aren't with us. For me, though, Mother's Day has never been about me or my children. Instead, it's a day on which I think about my own mother and mourn the fact that, for reasons I can't quite understand, I'm not with her.

My brother and I always said that no occasion was truly complete until our mother turned to me and said, more in sorrow than in anger, "Niobe, you've ruined my [insert name of holiday]." I ruined so many Mother's Days and birthdays and Fourth of Julys and Thanksgivings and Christmases, that I imagine my mother, as she has brunch today with her other children and step-children, taking a certain grim satisfaction at the idea that, on this Mother's Day, I'm sad because I'm thinking of her.

I've never been able to explain what made things so difficult between me and my mother. Different temperaments, perhaps. Or because my childhood coincided with a long run of turbulent years for her. Or because she disliked and resented her own mother. But, for whatever reason, it seemed that I could never be what my mother wanted me to be, could never do what my mother wanted me to do. We were always fighting and I always lost. No matter how angry I got, my mother could always get angrier and she held the trump card. I loved her and I couldn't be sure if she really loved me.

When I was thirteen, during the chaos that followed my mother's second divorce, I decided to go live with my father and his family, and left, taking my little brother with me. My mother didn't speak to me for six months. She remarried right away and had a child with her new husband. "Niobe," I remember her saying, "you have to remember that I have another daughter now. I don't need you anymore."

Eventually, I grew up and we came to a truce. We weren't exactly close, but we didn't fight and I called my mother almost every week and, once in a while, spent a weekend at her house. When I was pregnant with the twins, my mother was thrilled. She was going to take a month off from work to stay with me. She called all the time to see how I was doing. I know she was buying baby presents, though I told her not to give me anything until -- until I was sure everything was going to be all right.

When it turned out that everything was not going to be all right, my mother came and visited me in the hospital, talked to me, encouraged me to eat. But even then, I could feel her anger building and, by the time I came home, everything I did made her furious.

I was, she told me as I cried and refused to go outside, wallowing in my sorrow. I spoiled my oldest niece's first birthday party, held a few weeks after the twins' deaths, because I hid in an upstairs bedroom, unable to bear seeing the sister-in-law who was eight months' pregnant. I put too many restrictions on what she said, because I asked her not to talk about my stepbrothers' babies. I wasn't grateful enough for all she'd done for me. Now, a year and a half after the twins' deaths, my mother has refused to see me or speak to me for months.

Now, I'm sure I'm making my mother sound like a monster. But she isn't. Really, she isn't. And I'm sure that if she ever read this post, the story I'm telling would be incomprehensible to her. "That's not the way I remember it," I can hear her saying. But, as I see it, the loss of my mother is, in many ways, the saddest part of the twins' deaths. A stone, dropped into a lake, disappears almost immediately. But the ripples -- oh, the ripples. They etch widening circles until they collide with a distant shore.

Happy Mother's Day, Mom. I love you and miss you and wish I could fix whatever's wrong between us. I hope that by next Mother's Day I'll be able to say that to you.

Please use the comments to let us know where you are -- literally and figuratively -- and what you're thinking about this Mother's Day.

To the core

You know what annoys me, like, a lot? People around us who manage, effortlessly it seems, to make their interactions with us in our grief, yes, say it with me... all about them. People who make a production, often somewhat publicly, out of agonizing over whether to call their grieving friends, and of what to say. The sort of backdoor self-compliment highlighted on last night's 30 Rock-- "It's hard for me to watch American Idol because I have perfect pitch,"-- the "It's  hard for me to talk to grieving people because of how sensitive and considerate I am" sort of thing.

Luckily, we didn't get many of these directed at us. This past winter, though, I got to witness a public (in as far as an open post on the wilds of the internets is public) display of woe-is-me-I-want-to-be-the-bestest-friend-ever-but-
-it's-so-hard-how-do-I-make-everything-better bit. It took me a few minutes to figure out what was so distasteful to me in that piece of writing and the follow up comments from the author, but then I got it-- it was all about her, about her desire to fix things so she can be seen as the savior, the one who did the right thing, the rightest thing.

Now, I get that humans are self-centered animals, and I am certainly not blameless on that front myself. But dude,  if there is one area, one effing area of human interaction where it behooves you to check your shit at the door, this might be it. Don't you think? I get, too, that doing something, anything, makes people feel less powerless in the face of the big bad random universe. But see above re: checking shit. Because making yourself feel better at the expense of the person already in pain is.. how do I say it... oh, yes-- a pretty shitty thing to do.

This concludes the rant portion of today's post, and brings us to the part where I contemplate, much more calmly, I hope, thoughts this brought up.  

In that post, a few commenters tried, very gently, to tell the author that in grief there is no fixing things, that basically all you can do is be there for your friend, but she wasn't listening. But, but, but was all she had to answer. Finally, Aite, a good friend I've mentioned before, basically gave it to her straight-- it's not about you. Entering the grieving person's space should not be about worrying about how you will look doing the entering. You can't fix anything. Grief is what happens when there is nothing to do. Don't try to fix it, and you won't look dumb. You can't "remind" someone of their grief-- they remember all the time. Whether they want you to bring it up or wait for them to do so is individual, and you should follow your friend's lead in that, but assuming that people forget and you can remind them is pure wishful thinking.

My friend is mighty skilled in this art of abiding, being there for your friend, selflessly, at whatever distance and with whatever in hand your friend needs. I hope, too, that what we are doing here, in this space, is also very much abiding. Talking, listening, not trying to fix the unfixable. Now, if only laptops could dispense booze too... I'd send you all a drink or five.

So who is this grieving person now? If you are the one doing the abiding, who do you assume is in front of you? Is the grieving person changed, forever altered by the grief? Or is this the same person you have known all this time, only in pain and grieving? Are we changed or are we, at the core, the same?

My first impulse was to say that of course we have changed.  A deadbaby blogger who has since gone private was told by one of her friends to not let this change her. What a shitty thing to say, was my immediate response. Would you tell that to a mom who has birthed a living baby? Hell, no. It's a foundational value of our society that parenthood changes people. In the classical mythology of the media and entertainment as well as the assumed playground wisdom, there are things only a parent can understand. Condescending? Of course. But also pervasive and commonly accepted. So why would people not allow it as the same level of truth that having a dead baby should change you? Change you as profoundly and as deeply as having a live one is assumed to change you? And also, don't we all change just by living? Would you want to still be your high school self?

But isn't it also true that we are the same basic people, only now with extra crunchy shitty experiences included? Extra sad.  With extra tender feelings. Extra sensitive to things people say without thinking. Maybe even wiser and more compassionate. But with the same chewy center?  

What defines us as people? Are we changed abruptly, or are we in the process of integrating our grief into the fabric of our selves? Are we defined by grief, or are we living towards defining our grief as a part of our selves? Are we changed, or are we ever-changing?

my son may be in your vacuum cleaner

Seriously. You may wanna go check.

Ferdinand was cremated. There is a possibility that some of his ashes, minute particles of them, escaped the plastic bag that it was supposed to be loaded into and tied firmly and then placed in a plastic box and then a velvet bag and then handed over to us with sympathies.

Some of the ashes may have flown undetected onto the floor of the crematorium and carried about by the shoes of the good guy who helped us cremate our son. Maybe some tiny particles of my son’s ashes got onto the good guy’s shoes and it got thumped off at the post office when he went in to get his mail and some of the dirt was sucked up by the ventilator which re-circulated it into the mailroom and got shuffled into the mail and then got stuck onto a part of an envelope and maybe that envelope is somewhere in your house.

When his ashes arrived in Singapore, at the temple, and they were emptied, from plastic bag to urn, and the breeze, almost ever-present, might have swept up a whiff of the ashes, and they got mixed into the food being prepared for the temple lunch. Or, it got stuck onto somebody’s sweaty arms (it is very humid there) and got carried all over the small island-state, or that somebody got onto an airplane headed for the Swiss Alps and so a part of Ferdinand ended up in a different continent. Have you had a guest recently? Check their shoes, you may find my son.

Before he was cremated, I held him, hugged him tight, and kissed him. Tried to make an imprint on him and tried to engrave his body onto mine. Maybe some of his skin cells were brushed off and stuck on to me, for a few seconds. Then, they may have fallen onto the floor, and got swept out of the funeral home as we exited. The wind from the hills may have swept those cells up, carried them across the country, and dumped them somewhere on the East coast.

The dust may have fallen into your house when you opened your door or your window. You decided to vacuum the house. And there he goes, into your vacuum cleaner.

Or, a few molecules of my son’s ashes may be fertilizing your tomatoes right this very second.

I do sound like I am spinning a tall tale, aint’t I?

Except, we know that everyday the world is on the move, in every sense, whether you take the macro- or micro-view. Foods are transported over long distances, and with them, dust. Air circulates, moves over distances, taking sounds and smells and small tiny particles, including human ashes, with them.

Dust is very tiny. Anything smaller then one-sixteenth of a millimeter in diameter can be defined as dust. They come from everywhere and from anything- dirt, pollen grains, tire rubber, salt sprays from the ocean, skin flakes, fire ashes, volcanic eruptions, desert sands, animal fur, and, let’s not forget about cosmic dust. You may have star dust in your vacuum cleaner too.

When a supernova explodes, it sends small particles of dust far out into space, and some of this dust falls on Earth. You may find some of these cosmic dust particles inside your nostrils.

What is more fascinating is that you cannot destroy dust. You dust, vacuum and sweep, and pour everything into your garbage can and think it is good riddance when the garbage truck rolls around on Monday morning. Well, some of that dust is still on your driveway because when the garbage gets dumped, air gets moved and the air moved the dust too. Rumor is, dust from the dinosaurs still remains, because there is no way you can destroy dust. They move around, get mixed into things of all sorts; things break down, and the dust re-surfaces again.

Come to think of it, dust is a beautiful thing. And so indestructible. So durable, it is forever. Forever swirling around. Here, in my house; there, in your house; on earth, over earth; in the vast Universe, and probably beyond too. Ferdinand, my baby, in my current system of belief, is part ashes, part dust, part soul and part spirit. And so he may well be everywhere right now.

Perhaps in your vacuum cleaner, too.

I will never look at the world the same way again. I will never see dust the same way ever again.

the crack in everything

ring the bells that still can ring
forget your perfect offering
there is a crack, a crack in everything
that's how the light gets in

- Leonard Cohen

I heard the lines above last night, a melodic crescendo, and was stunned into reverie. Down to the sour smell of smoke and sawdust that were in the air that night, I was, for a moment, transported viscerally to the time and place they'd last crossed my consciousness.  Three summers ago, almost.  With old friends, gathered from our scattered points around the globe, for a weekend of talk and wine and beer.  It was nine weeks after he died.  I was supposed to be thirty-five weeks pregnant for that visit: instead, I was raw, raging, humbled...unmoored.  but with those friends I felt comparatively safe and we talked about him, a little, and they talked about him, a little, and there was no sweeping under the carpet and I felt freed by that, grateful...even welcomed the strangely soothing balm of the eight month old boy one couple had in tow.  The group of them were some touchstone of normal - of the me I had been before - in a time when there was none, elsewhere in my life. 

But then Leonard's voice broke in through light chatter and mild drunkenness on the second night of our gathering. ring the bells that still can ring, he intoned, gravelly and sage.  and suddenly I was choking on smoke and tears, and I bolted from my chair and went stumbling across the yard in the darkness, almost blind.  What fucking bells?   Seriously, what bells were left?  I was broken.

I'd lost my job along with my child.  I was struggling to find a place in a community we'd moved to only months before, struggling to find other work, struggling to get up the courage to leave the sanctuary of the house on a daily basis.   I was a parentless child and a jobless professional...and we'd left our old life behind on another continent to come home and have a baby.  Without that baby, I could not figure out how to go forward.

I'd been, I think, in the denial stage of my grief.  I looked back to my friends in the circle of light on the deck, and realized, there really is no going back to normal.  fuck me gently.  And then I went inside and mixed myself a Southern Comfort Janis Joplin would've been proud of, and sat, numb, staring, bewildered.
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The thing about grief - and in particular, the keening loss that was deadbaby grief for me - that blew my mind was how it robbed me of any clue about how to continue to live my life in a meaningful way.  I understood, factually, that I still had a reasonable semblance of a life, if one in a bit of a shambles at the time - but I could not connect to it.  I groped for the bells left to me to ring and came up clutching air.  It wasn't the overabundance of a sheltered life in my previous incarnation, either, that left me so bereft even of my self, of my survival instinct, my resilience: I'd been violated before, just by living...betrayed, divorced, disappointed, grieved.   But I'd never been stopped up short.

I wonder, sometimes, what it must have been like to grieve a child back in the days of our great-grandmothers, when infant death and pregnancy loss were common and maternal death a fairly regular outcome of childbearing.  I imagine it was still a lonely, isolated thing for many, particularly given the stiff upper lip with which loss would've been expected to be met in many communities and circumstances.   And yet...other than the fact that fewer of us would be present in this company of mourners, lost as we would have been along with our babies...there would have been one key difference between then and now: we would not, could not, have gone into pregnancy without realizing that a loss of this scale was very possible.

I realize, finally, three years on, that that has been the crack in everything, for me.

That pregnancy was fraught with bleeding from the early days.  At six weeks, I was told I was probably miscarrying, and sent home on bedrest.  It felt surreal, but not shocking.  I knew women miscarried.  I knew a number of women who had miscarried.  My partner had already lost two, with his first wife, so I understood full well that the risk of that loss was part of the bargain I'd gotten myself into.  But when the bleeding resolved and the docs said all clear and I sailed past fourteen weeks with no further complications and a perfectly normal ultrasound, I was naive enough to believe that I was pretty much going to be bringing a baby home.  I wasn't sure that baby might not have some minor health issues or delays...I worked in special ed, I knew not every child fits every norm, but to even consider seriously that my baby might die seemed beyond dramatic, frivolous, macabre. 

Such are the miracle assumptions modern science has taught us to espouse.  All other truths and possibilities - especially those that involve dead babies, unsavable, for no apparent reason - are silenced in the mainstream discourse surrounding pregnancy and birth, these days.  There is no norm left to us, and so we are unwelcome and awkward and exposed in the societal conversation surrounding how babies are made, marginalized because we can be, because medicine has made us anachronisms, relics.  

In retrospect, I see now that I've dealt with every other sorrow that's come my way in life by telling myself I expected it.  Each time, it was at least somewhat true.  Nature and experience shaped me as a cynic of sorts, a Cassandra, attuned to the emotional and relational roadbumps that littered most of the paths I ever chose.  I got wounded along the way, but seldomly truly surprised.  And that helped.  It didn't assuage the pain, not necessarily in the moment, but it left me semi-intact, with bells held in reserve still to be rung.  Until I was blindsided by the death of a child who had at least a 75% chance of survival even at the moment of his untimely birth, I had never had all the bells torn from me at once...even the small, cold, brass one marked i saw it all coming.   Without it, and without the baby in whose basket I'd piled all my hopes, I was - for the first time - bereft.
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Last night, listening to Cohen and time-travelling, I wondered about what seems to me now like the naive and sheltered discourse that surrounds pregnancy in our day and age and culture.  And I sang along, frog-voiced but loud, proud, forget your perfect offering.  there is a crack, a crack in everything.

We embody the crack in the perfect offering of modern pregnancy sold to us by Parenting Magazine and BabyCenter and What to Expect When You're Expecting.  We embody it because our children are not here to.

The logical conclusion, of course, to my stretched analogy is, then, that we are how the light gets in.  A part of me likes that.