white hot

White-hot is not uncomfortable, just what it is right now. Short periods of intense, shattering grief. I feel him comfortably in my heart, and I still do not believe time is linear and therefore we must meet again. I do feel some regret for not harnessing that fire and doing more for the community. But hopefully, that will change. How about you, did grieving turn you inward or has it inspired you to reach out to the world more? Do you feel your relationship to grief changes as time goes by?

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the other way

Some scientists say there are parallel worlds, realities stacked side by side like books on a shelf, or piled high in an old, dusty attic.  That seems obvious to me now that I have a whole other life hidden in my head.

The day went smoothly, the birth long but ultimately raw and right and beautiful and true.  Those first insane and breathtaking days when Silas was in our arms and screaming in our ears and staring into our eyes seemed to pass instantly and slowly, all at once.  The uncertainty of new-parenthood was a knot of fear and hope and determination in the core of my being.  I was positive I was the happiest person in the entire world, but then I'd look at my wife Lu as she breast-fed him, and I wasn't quite so sure.  Maybe the happiest man on Earth, I thought, settling for that and into the couch next to their bonded bliss.

Weeks turned to months and already a big baby, he grew fast on mom's milk.  I learned to change diapers, to hear the language of his wailing cries in the middle of the night, in the middle of the day, in the middle of the everything.  The middle of everything, that's exactly what he was whether he was awake or asleep, or whether I was, too. He slept well.  He was ahead of the curve.  Naps were long and pleasant.  He weaned easily and ate everything.  He learned to talk early and told us things I could never imagine.

On it goes, that impossible world, each day we didn't live that way seared into my mind as time pressed on.

The not-so-funny-part is that I had to make it all up before Zeph came along, but now I know exactly, specifically, precisely every single fucking detail of everything that we missed and everything we won't have. That parallel world I first inhabited wasn't just a figment of my imagination, it was the only salve to my damaged soul.  Simply accepting this world with all of its not-Silas-ness was a physical impossibility. I fantasized that whole other way as I cried and drove or lay stewing wide awake deep in the night, not hearing the wails of my dead son.

For years I was a shadow of myself, a projection of what I should be, even as half of me was gone within, wading into the deep deep deep waters of grief and anger, of loss and pain, of utter and complete rage that the midwives had failed us, that this is how the Universe rolls, and that it had just rolled right over us squashing us to nothingness and drowning us in tears.

But when Zeph was born, everything began to change in that parallel world.  Instead of feeling split in two, divided equally between the what-is and what-should, I had to focus strongly on the life in front of me.  Silas as his three year old older brother was harder to see than the baby we never had, and now the baby we did.  As Zeph grew day by day and the fantasy vision of Silas's life was shattered on the shrieks and laughter of an actual baby, I felt that other way slowly fade and dissolve, merging into the single path we now tread.

It is a relief to be whole, even with the hole.  Living halfway in a hope that could never be was maddening and exhausting.  Silas is gone.  Zeph is here.  In order for Zephyr to have the joyful life I want him to have, the only thing I can do is to be here with him, all the time.

But that other life is in me, still.  Still I grieve.  Still.

~~~~~~~~~~~

What do your parallel worlds look like?  How much time do you spend there?  Is there a certain time of day or part of your life where you feel the life you never had more strongly? How do you reconcile what you wanted with what you have?

strength.

I refuse to become a seeker for cures.
Everything that has ever
helped me has come through what already
lay store in me. Old things, diffuse, unnamed, lie strong
across my heart.
This is from where
my strength comes, even when I miss my strength
even when it turns on me
like a violent master.
--Adrienne Rich

 

The early days, my tenderness scared me more than the realization of my mortality. Death never scared me, rather the desperate need I felt to be comforted; to have someone fix my grief; the desperation to have my daughter's death and life acknowledged; to be held, cooked for, and tended to; the pure vulnerability; my inability to control my emotions; my hyper sensitivity; the pure, raw, screeching insomniac grief--that frightened me. It meant the pain would continue, perhaps indefinitely, because of the unchangeable fact that my daughter died, and I could do nothing to prevent it, change it, or make it right. This strong, capable, forgiving person had been permanently transformed into an angry, bitter, grief-stricken beldam without kindness in her heart. That scared the crap out of me.

I thought I knew what grief was before Lucia died. Extreme sadness, longing perhaps. I had no idea that grief is forgetfulness, self-centeredness, anger, moodiness, wanting to be alone when in a group and in a group when alone. Grief was hungry and desperate and pulling hair out from discomfort. It was fear. Times ten thousand. It is the feeling of shrinking and starving. Grief is obsession and living in the past. Grief, unadulterated and unwieldy, seeks a cure. I sought a cure.

I never admitted this to anyone except for in my writing on the internet, where I edited and pruned and plucked out phrases that sounded poetic and raw, but never managed to make my grief sound nearly as ugly as it felt. In person, I remained relatively staid, at times, even gracious. When asked how I was, I said, "As well as can be expected." When people saw me with my two year old, they saw an involved, present mother. Perhaps I forgot that they couldn't hear my inner voice saying over and over again, the mantra of grief, "My God, the baby died. I can't believe the baby died. The baby is dead." Over and over and over. I was so tired of my own voice, and yet could hear nothing else.

I waited for words of comfort to come, but there were none. I waited for someone to see through that veneer, but they didn't. An exposed nerve, I buzzed with irritation. I reached beyond my skin for something to protect that vulnerability. I drank too much, wrote too much, cried too much, complained too much, self-pitied and directed all the kindness I couldn't extend to myself to other grieving mothers, but it still wouldn't change. And because that vulnerability is so cold and uncomfortable, and the grief is so demanding and relentless, I shifted and adjusted. I shoved that tenderness deep down. I thought the ability to hide my vulnerability kept me alive for many years. Maybe that is true, or another in a series of lies I told myself, but nevertheless, I shut down. Shut out. I found something that was much more comfortable than vulnerability. I wrapped myself in unforgiveness, another layer of anger, marked it with the stamp:

 

JUSTIFIABLE ANGER.
DO NOT REMOVE.

 

That tenacity, roots tangled in the craggy sides of an uninhabitable place, desperate to find measly drops of water, just enough to survive, became the illusion of strength.

"You are so strong," Random, well-meaning person would say.

 "I don't know how else to be." I would look away.

Not you too.

You have mistaken my anger for strength.

I am a hurt animal.

A wild thing, baring her teeth at everything, waiting to heal, trying not to get eaten.

I need you.

Think like an animal.

Bite the scruff of my neck.

Make me cry.

I am dying of loneliness and grief.

I am dying of vulnerability.

Strength, I had nothing of it. I wanted nothing of it. It was another way for me to be Other. A noble, grieving mother-angel, not a person filled with rage and self-loathing. People said, "Stillbirth, it's the worst thing I can imagine." It isn't the worst thing I can imagine, and the truth is they truly don't even know the worst of it--the shitty, horrible mess in my brain. That the best of it was that I spent time with my dead baby, the worst is leaving her in the hospital to live the rest of my life. They cannot imagine how ugly I was inside, how dark I became, though I thought they could smell it coming off me. I behaved badly after all. I was dying of my own poison. It must have seeped out my pores. I kept going, but nothing I did was strong, noble or sacred. I just kept going. That did not seem like strength to me. It seemed like stupid stubborn obstinance.

"Oh, but that is strength," the wind whispers. "It is knowing you have nothing left and still going on."

The wasteland that lies between what I feel and what is true is frozen and dark, and at night, the ice weasels come. When I traversed that land, I saw that my anger froze all my landscapes, fear killed the plants and overreaction drove away all the people, I grieved all over again. Like it was the first day she died, and I had to live with the reality of my own creation. When I reached out, I could not mend the fences tore down, the bridges I had burned, the wrongly placed words I rejected. I lost my daughter, and gave away all my friends, simply because I was not brave or strong enough to trust them with grief. But when grief came again, it broke open the hard shell that encased everything I had ever believed. Something humble, damaged, but beautiful emerged. Even as it was happening, I saw it emerge, leaving the guilt of who I was behind. I did the best I could with what I knew. That is perhaps the saddest part, that that person was absolutely the best I could be with the knowledge I had. But this new, delicate being emerging searches for meaning again in the trees, the moss, the full moons, the rocks of a thousand shades of healing. My walk through the tundra of anger saved me nothing. It gave me nothing. It served me not at all. Except that it happened, and from it, I emerged. 

 

Was grief what you expected? How was it different? Did you embrace your vulnerability or your strength? How do you feel when someone calls you strong? In what ways has strength helped you? How has it turned against you like a violent master? 

The Answer

The intersection of grief, creativity, and writing remains a place of such deep beauty and personal horror, I stand in awe of people getting their hands and souls dirty in it, exploring it with art, music, and writing. Kenny is a songwriter and musician from Bloomington, IN, whose band Gentleman Caller, has just released their fourth record, Wake (Mariel Recording Company). This record meditates on the loss of his daughter, Roxy Jean, who was stillborn at thirty-eight weeks on August 1, 2007. His music breaks me wide open in such an important way. I learn more about my own grief. Kenny agreed to join us at Glow as a regular contributor where he will be exploring his grief with his wise insights, brutal honesty, and dark humor, and of course through his music and words.  —Angie

In the year following Roxy’s death, I was just hunched, squinting and holding on.  I tried to outrun my thoughts, but they were in every hiding place I ran to.  I self-medicated with booze for a few weeks.  Became an expert on panic attacks. Sometimes I just waited, counting days away from the day she died. There was more comfort in math than hugs. I held on and flailed, as quietly as possible, inside my hollowed-out flesh-cage. I went to therapy, took anxiety meds and tried to get to know and understand my new, messed up self. 

During that god-forsaken year, 3 friends also died early, tragic deaths.  One by house fire.  One by drowning.  One by aneurysm.  All three under the age of 40. It seemed unreal and impossible at first… then, inevitable.  Remember, in The Empire Strikes Back, when Han Solo snaps “NEVER TELL ME THE ODDS!” before successfully flying through an asteroid field?  My life, the lives of my friends and family… ours had become the exact opposite of that.  We weren’t beating the odds, but being destroyed by them, and those odds were giggling.  

Hollowed out by losing my beautiful, dark-haired daughter, and managing my anxiety with medication (prescription and other), I was sliding down and increasingly absent of hope. I started recognizing patterns in the memorial services I was attending. The hollow, crying eyes of the mother, the trembling, shaking hand of the father, all while speakers talked about what the deceased loved, how they loved and who they were… and there was always a song. I was so embittered by all the loss, and death just seemed right around the corner for everyone I loved. I was certain I would not live to be an old man. I felt that no one I knew would. 

So, I decided to write my own funeral song.

I wanted a song that would just tell the bleak truths of my life… a song that wouldn’t put a bow on the end of my life, but a thudding and appropriate period. Somehow, it felt like the bravest thing I could do.

It happened immediately upon returning home after the last memorial service I would attend that year. It took literally the amount of time to write that it does to sing it. It remains, easily, the quickest I’ve ever written a song. It also remains the most cathartic:

THE ANSWER

I did not find the answer in church
I did not find the answer in church
I did not want a god that would not spare the rod
I did not find the answer in church
I did not find the answer in my home
I did not find the answer in my home
I was a stranger to my kin
I was a stranger to them
I did not find the answer in my home
I did not find the answer in school
I did not find the answer in school
I was sucker-punched and thin
I was not like the other kids
I did not find the answer in school
I did not find the answer at the bar
I did not find the answer at the bar
Beneath the stale embrace
I was always out of place
I did not find the answer at the bar
I did not find the answer in prescription drugs
I did not find the answer in prescription drugs
I took every pill they make
But I was still awake
I did not find the answer in prescription drugs
I did not find the answer in your eyes
I did not find the answer in your eyes
Not your hands and not your lips
We were always passing ships
I did not find the answer in your eyes

 What songs, if any, have been a comfort to you since your loss?  What songs can you no longer listen to? What would be your funeral song?

balancing, act

I like Matthew Perry. Not, as many people of my generation might, because of his role on Friends, but rather because of his guest spots on The West Wing followed by his starring role in the sadly short-lived Studio 60 on the Sunset Strip. (If you love musical theater and good comedy, look up their second episode, The Cold Open. I still smile when I think of the number that is the namesake of the episode, the one they are working to the whole time. But maybe it's just me. Likely, even.) So it is not entirely surprising that even though I usually try to watch what I can in DVR delay so that I can fast forward all the commercials, I stopped and watched the ones NBC kept running for Perry's new show, Go On. The show premiers tonight, but the pilot episode has been sitting On Demand since Olympics, when they started running the relentless promotion.

Do I sound like the TV Guide up there? Sorry... I think I got that all out of my system now. So let's get on with the main event-- the show and what we think of it. Well, what I think of it for now. Though I am hoping that (provided my description doesn't make you want to destroy the TV rather than watch the show, which I hope it does not) you watch it at some point and chime in. Or vote early, vote often-- comment before you watch, comment after you watch. Heck, comment instead of watching.

Why, you ask, am I darkening your screen with a post about a TV show? For one, the main character, Perry's character, is grieving. We learn in the very first scene that his wife is dead and that he shows up back at work way before anyone is expecting him to be there. Shortly after that, he is told to get his loudly protesting self to group therapy. Grief sitcom, then? Why, yes, and I am not telling you this to forewarn you from ever going near the thing. Because when I began watching the pilot, I rather expected to end up disappointed if not outright hating the thing. What I got instead is a heaping bowl of recognition, with a side order of wait, are they going THERE? And yes, yes they did. As suggested by one of the promos you might or might not have seen, Perry's character really does stage a March Madness style head to head Pain Olympics tournament. No, really! What's even crazier, for me? It works.

If you know anything at all about the grieving me, you know that I hate Pain Olympics with a passion. In fact, I caught myself playing Reverse Pain Olympics. In the four plus years since I wrote that post, in this particular area of my world view, nothing changed. I still hate Pain Olympics, and I still think that nobody but each individual grieving person is allowed to say to themselves that it could have been worse. So how is it possible that given this world view, I am on board with the Go On's treatment of the subject?

I think that in a strange and completely unexpected way for me, what they do is actually affirming, not dismissive of each person's pain. First of all, they all agree. They all sign up, and they all accept the rules. Second, there seems to be an underlying and thick layer of good will. Those who fall in the earlier rounds are shown getting into the cheering on of their group mates. Even in "losing" a face-off, there can be recognition of the depth of pain. The character who is so distraught over the death of her partner that she can't pull out salient details to tell the story in brief to fit in the amount of time allotted is told that she is losing the bout "on technicality." That seems validating. And? they manage to do that without completely dismissing the dead pet character who "wins" on that selfsame technicality.

What was really profound to me, what sang to me with piercing clarity of a single string going on after all the rest of the instruments have faded, what I appreciated both as honest depiction and as a fearless move by the show's creators, were the brief vignettes of the characters in their own spaces, on their own time. I dare you to remain composed through the whole sequence, especially when they show us where the Pain Olympics winner's crown comes to rest. And may I remind you now that this is supposedly a half hour sitcom?  

So if, against my every intuition, this works on a sitcom, does it mean I just changed my mind about Pain Olympics in general? Does it mean I am about to offer sign ups for the blog cage tournament of doom? Hell, NO! What I now think is that the show creators have managed to find one of a fairly small set of circumstances where something like this might work. Which is why, I suppose, they are getting the big bucks.  I think that it works partially because the characters have suffered different losses, not all of them losses of people, and not even all of them losses of another being. As such, when they are showing off their wounds, they are presenting the general outlines of the wound, not measuring, if you will, the depth and circumference of the wound. In contrast, it seems to me that doing a thing like this in a community of people whose wounds are all the same general shape is a very bad idea. Mostly because comparing details of losses where the relationship between the lost and the bereaved is the same takes us perilously close to deciding whose lost loved one mattered more. And that is still something I can't abide.

The other reason why I think it works on the show, is that the "tournament" takes place within a defined period of time, in a small real-life community. In other words, it happens in defined space within a defined period of time. Live people interacting, in competitive spirit, yes, but also with compassion and humor and understanding, with other live people, most of whom they have known for some time. This is not something that is easy to ensure happening on the internet. People wonder by, reading the posts they stumble on. When we as readers react to an entry on a blog, something written in a particular time and influenced by particular events and emotions, perhaps even in response to particular events, for us what is said is very immediate, right now. But the person who said it may have changed their mind, may have even changed some as a person, and certainly may simply not be in a headspace to "go there," to engage the topic again. Which, if the post in question is of the Pain Olympics variety, might just leave a late comer reader feeling belittled in their loss instead of supported in good humor.

So I am still a firm "no" on unleashing Pain Olympics into the wild, but a cautious "yes, for now" on the new show. I hope, for their sake and for ours (because wouldn't it be nice to have a popular culture education on grief?) that they can sustain the tight-rope balancing act of being authentic and entertaining at the same time. And I really hope the weird guy's alone vignette doesn't mean he's a bereaved father. Not because we don't need to be represented, and not because bad things don't happen to weird people, but because if I had my druthers, I'd wish for us to be represented by someone painfully "normal" and average.

 

So what do you think? Have you seen the show? Will you? Are there other popular culture representations of grief in general or perinatal bereavement in particular that you find either particularly authentic or particularly offensively cartoonish?

What They Say

Today's post isn't going to be lyrical or beautiful.  It's not going to uplift you or share a new perspective on the terrible tragedy of losing a baby.  And it also contains a fair bit of swearing so be forewarned.  

Today's post is about other people, the ones that have all their kids and don't know one single thing about how to talk to us, how to behave like a true friend, how to navigate in our dark depths and instead say incredibly stupid and insensitive things without using their heart or brain before opening their mouths.  So, let's start with my favorite:

"Well, everything happens for a reason."

What I want to say & do in reply:

Oh really?  It does?  So when I wind up my arm and clench it into a fist and punch that person directly in their disgusting, thoughtless mouth, I can just chalk it up to 'everything happening for a reason?'  What a relief!  I thought the Universe was just random, brutal and unforgiving, but here you are with your deep wisdom born of nothing, telling me I can do whatever the fuck I want because hey!  It all happens for a reason!  And the reason you are flat on your back from my knuckle sandwich is because you're an unthinking, insensitive ass.

What I say instead:

I disagree.  There could never be a good reason for my son dying.  What you are saying is very offensive to me, and I would appreciate it if you would keep those sentiments to yourself.  I know you're just trying to help, but it's not and you aren't and please, please stop. (or else, see above, I say with my eyes)

"Whatever doesn't kill you makes you stronger."

What I want to say:

Hmmm, let's see, no.  Not true.  Some things that don't kill you make you weak and fragile and bitter and sad.  Some things, like losing your child before they had a chance to make a breath or live a day, make you hollow and desolate and open your eyes to how bad life can get.  The strength I relied upon to live through that terrible experience came from who I was before he died.  His death did nothing but rip the naivety and innocence from my soul and lay the world bare in all its brutal viciousness.

What I say instead:

My son dying didn't make me stronger.  It made me nearly dead myself, and I'm not stronger for his death. I would have been made stronger by getting to be his father. What you are saying is painfully insensitive.  Please stop.

"At least you're young, you can have another."

What I want to say:

Wonderful!  Thank you so much for being a fucking idiot.  Because as you know all kids are replaceable. One breaks or dies, just go out and pick up another one.  How about this?  How about I take one of your four kids and raise it as mine?  After all, you've got plenty!  Spare one for someone who misplaced theirs when they fucking died.  How about it?  Since you're such a dumbass you will probably raise awful children anyway.

What I say instead:

Nothing.  I say nothing to those people.  I just look at them for a moment, shake my head and walk away.

"God works in mysterious ways."

What I want to say:

Fuck you.  Get out of my house.

What I say instead:

That's the stupidest thing I've ever heard.  If this is God's mysterious way of teaching me some kind of lesson, He/She/It can go fuck themselves.

"Is he your first?"

What I want to say:

Why do you want to know?  Or are you just asking things without thinking about it?  Do you really want to know about my first, about how he died?  About how we are still devastated by his absence?  About all our hopes for him and us dashed against the black shards of death?  Or are you just some blissfully ignorant stranger who can't keep their mouth shut and don't really give one fuck about us at all?  Ah, I thought so.

What I say instead:

No, our first son died due to complications during birth.  Then I just look at them while they crumble into despair and I think to myself be careful what you ask people, they just might tell you the truth.

~~~~~~~~~~~~~~

What insane, awful and horrific things have people said to you when they learn that your child died?  Let's rage on this together with the only people that know the truth and feel a little better by getting it all out for once.