Dr. Katherine Gold of the University of Michigan’s Department of Obstetrics & Gynecology studies pregnancy loss (particularly stillbirth) and its effect on families, and explores how the healthcare providers might improve their response.
Dr. Gold has put together a brief web survey for mothers who frequent internet message boards and discussion groups for support—with the results, she hopes to explore the Internet and online communities as a channel to help bereaved mothers, and data from the survey will help the university to design more effective support programs.
Click here to share your voice, your story and your feedback--keeping in mind that the survey focuses on the use of message/discussion boards versus blogs, and is designed to collect quantitative data as opposed to anecdotal.
The survey is free and confidential; both the study and survey have been reviewed and approved by the University of Michigan Institutional Review Board.
There's a backstory to our posting of the University of Michigan's bereaved parents survey. Click through to the comments for the feedback that prompted the whole story, and please -- add your own thoughts. If you found your way to the survey and felt the same way I did, my sincere apologies. I should have preceded our link to the survey with a disclaimer.
What do you think, if you've seen it? Can surveys like this help hospitals to create better programs for bereaved parents? Do your answers reflect an authentic picture of your healing and your use of the internet to achieve it?