To the core

You know what annoys me, like, a lot? People around us who manage, effortlessly it seems, to make their interactions with us in our grief, yes, say it with me... all about them. People who make a production, often somewhat publicly, out of agonizing over whether to call their grieving friends, and of what to say. The sort of backdoor self-compliment highlighted on last night's 30 Rock-- "It's hard for me to watch American Idol because I have perfect pitch,"-- the "It's  hard for me to talk to grieving people because of how sensitive and considerate I am" sort of thing.

Luckily, we didn't get many of these directed at us. This past winter, though, I got to witness a public (in as far as an open post on the wilds of the internets is public) display of woe-is-me-I-want-to-be-the-bestest-friend-ever-but-
-it's-so-hard-how-do-I-make-everything-better bit. It took me a few minutes to figure out what was so distasteful to me in that piece of writing and the follow up comments from the author, but then I got it-- it was all about her, about her desire to fix things so she can be seen as the savior, the one who did the right thing, the rightest thing.

Now, I get that humans are self-centered animals, and I am certainly not blameless on that front myself. But dude,  if there is one area, one effing area of human interaction where it behooves you to check your shit at the door, this might be it. Don't you think? I get, too, that doing something, anything, makes people feel less powerless in the face of the big bad random universe. But see above re: checking shit. Because making yourself feel better at the expense of the person already in pain is.. how do I say it... oh, yes-- a pretty shitty thing to do.

This concludes the rant portion of today's post, and brings us to the part where I contemplate, much more calmly, I hope, thoughts this brought up.  

In that post, a few commenters tried, very gently, to tell the author that in grief there is no fixing things, that basically all you can do is be there for your friend, but she wasn't listening. But, but, but was all she had to answer. Finally, Aite, a good friend I've mentioned before, basically gave it to her straight-- it's not about you. Entering the grieving person's space should not be about worrying about how you will look doing the entering. You can't fix anything. Grief is what happens when there is nothing to do. Don't try to fix it, and you won't look dumb. You can't "remind" someone of their grief-- they remember all the time. Whether they want you to bring it up or wait for them to do so is individual, and you should follow your friend's lead in that, but assuming that people forget and you can remind them is pure wishful thinking.

My friend is mighty skilled in this art of abiding, being there for your friend, selflessly, at whatever distance and with whatever in hand your friend needs. I hope, too, that what we are doing here, in this space, is also very much abiding. Talking, listening, not trying to fix the unfixable. Now, if only laptops could dispense booze too... I'd send you all a drink or five.

So who is this grieving person now? If you are the one doing the abiding, who do you assume is in front of you? Is the grieving person changed, forever altered by the grief? Or is this the same person you have known all this time, only in pain and grieving? Are we changed or are we, at the core, the same?

My first impulse was to say that of course we have changed.  A deadbaby blogger who has since gone private was told by one of her friends to not let this change her. What a shitty thing to say, was my immediate response. Would you tell that to a mom who has birthed a living baby? Hell, no. It's a foundational value of our society that parenthood changes people. In the classical mythology of the media and entertainment as well as the assumed playground wisdom, there are things only a parent can understand. Condescending? Of course. But also pervasive and commonly accepted. So why would people not allow it as the same level of truth that having a dead baby should change you? Change you as profoundly and as deeply as having a live one is assumed to change you? And also, don't we all change just by living? Would you want to still be your high school self?

But isn't it also true that we are the same basic people, only now with extra crunchy shitty experiences included? Extra sad.  With extra tender feelings. Extra sensitive to things people say without thinking. Maybe even wiser and more compassionate. But with the same chewy center?  

What defines us as people? Are we changed abruptly, or are we in the process of integrating our grief into the fabric of our selves? Are we defined by grief, or are we living towards defining our grief as a part of our selves? Are we changed, or are we ever-changing?

what they say

You'll hear these words again and again, sometimes as a reassurance, sometimes as an explanation, sometimes, it seems, simply as a mantra: "everyone grieves differently."

"Everyone grieves differently," they say, "Oh, yes, everyone grieves differently. You know, everyone grieves differently." They say it, but it isn't true.

Everyone seems to grieve in remarkably similar ways. There's the chasm, the stumble, the stagger, and the fall. There's the cold, the silence, and the dark. There's the shattering, the splintering, the grinding, the rending. There's the strange language in low whispers. There are tears that strangle and tears that scald. There's the chain of words around your wrists, the story worn out by the telling that always ends in exactly the same way.

There's the wearying round of repetition. The first month, the second month, the third month. There's the ever-recurring day as the weeks gain ground. There's the first Christmas, first Easter, first Mother's Day. Then the whole year has gone and the counting begins again, but more quietly this time.

Sometimes there's the stake and sometimes there's the stone, the garden, the poppied field far from the swing of the sea. There's the shadow and the apple blossoms, the thimble and the stitches, the cypress and the yew. Everyone grieves that way. Everyone, it seems, except for me.

"You can't compare pain," they say. But that's not true either.

I lift your grief in one hand, mine in the other. I balance them against each other, gauging their heft. I lay them side by side and measure carefully. Mine always comes up short.

In.vi.si.ble Boun.da.ries

Invisible, but I see them. Feel them intensely, almost as if they are branded lines on my very skin.

Is it because I created them, and thus only I can discern? Maybe.

I created these boundaries. I stepped over them to the other side.

When F died.

Most of the time, for the girls, I work hard to break down walls, remove boundaries and rip open the horizon further. Push the ceiling, destroy obstacles and burn down the limits. I want to show them, with a dramatic wave of my arm, “Look, girls, look! There are no limits, no lines. Skin color does not matter; what you eat for breakfast is of no significance. We are the human race, don’t let anyone convince you that you are anything less because you are different. Don’t ever let such boundaries trip you up. The world is yours, take it!”

Little did I know I only knew a small measly corner of the world. Before F died.

After F died, a trapdoor swung open and threw me into the world of bereaved parents. Totally unprepared for this unplanned trip, but a visa was granted. Swiftly. There were no guidebooks, no maps, and forget about a tour guide. Once you’re in, you’re in. Sink, swim, or float. Gulp some of that bitter water and swallow it; scream for help or yell for injustice. But once in, you’re citizen for life.

This world is right here, superimposed with the world of healthy, living babies, but not everyone knows of it. Sometimes a person will catch a glimpse of it, and will nod as if they understand. Only they do not realize that invisible boundaries separate us.

It is a world I sometimes have to slip out of, to conjure up some form of “normalcy” for the girls. Park days, play dates, library, shopping… … all those things we used to do. Only I know I do it with a different mind, and a different body. Often while on the other side of the boundary.

In the early months after F died, I built a brick wall up around me. In this little dark corner of the Republic of Grief I built my space, since it looked like we’re in for the long haul. And slowly, I started to probe around. I found other walls, and run my palms over them, tenderly, and gingerly. Yes, yes, some places feel so familiar! Yes, what you said! Exactly! That, that, you just fleshed out in your words. You speak my heart… … I found I was not alone.

The thing is, everyone in the Republic of Grief has dual citizenship, because they still need to be a wife, mother, daughter, sister, friend, employee, etc. Mouths need to be fed and bills need to be paid. Kids cannot survive on cereal for months on end and they need to be washed and their hair disentangled. You stay in the Republic for ever and ever but it is not a full-time hide-out. Sorry, but on top of the grieving you still need to go and scrub the dingy toilet and queue up to pay for your toilet rolls and/or frozen dinners. Some people require you to hurry up and get over it already so they can stop tiptoeing around you and just say what they want without worrying that you will be upset/hurt/sad/hysterical, etc.

So, like putting on a pair of very ill-fitting thong, with something always getting into the wrong space all the time, you try to fit back into the world where baby losses are a non-feature. You squirm and try to smile and valiantly act like a normal person would because really, you cannot freak out like a moron every other minute. But usually your awkwardness is overlooked in this grief-forgetting world. It is ok. Once you show your face all is assumed fine again.

Bu what can you do? You need that paycheck and your children need their friends and stuff. Moreover, can I really bury myself in this house until green mold grows all over me and my children outgrow all their clothing and have to wear dirty underwear three times over? Can I really wait till I am all-OK before venturing out? (And goodness knows if I’m ever going to be all-ok) So you go on, trudging and fumbling.

And you become acutely aware of these invisible boundaries that exist between you and the non-bereaved. In your mind, you make different lists and think different thoughts. Your heart beats different and flips over different things. Some words mean a different shade of meaning to you. Some dates are just h*ll to go through. Some hours of the day especially witchy. When you sit and eat together you are poignantly aware that you are swallowing something else together with that lopsided piece of quiche, and those half-decaying leaves of salad. And you wash down your foods with different thoughts in your head. You may go to the same stores, but a different memory is triggered in yours when you enter and exit (The last time I was here was to buy something to wrap his ashes in.)

You stand next to each other at the park, swinging your respective kids on the swings, observing the temperature trends and talking about diapers, but all the time this line is drawn between you and your friend. It seems you are standing in the same, physical space, but actually, that boundary puts you in a different dimension. You look at your friend and all of a sudden her words are just a jumble of mumbles, because her language is no longer yours.

Oh, you will never know, you will never understand. How I can still put hot food on the table and get out of the house looking decent, when every muscle in my body is aching for my baby. You have no idea. You have no idea how much strength, and how much courage I need to muster, with clenched fists and gnashed teeth, in order to get through every second of the day, until I finally collapse at the end of it. Behind every thought is the question, “Why is he not here? Why can’t he be here?” Every cell in my body writhes in pain with the memory of the loss, and the void. Every glance I take is in search of my baby. Every breath I take is caustic with reminders of what I have lost. My skin burns to feel the softness of my baby against me; my arms ache to hold and nourish and love. My fingers stretch out in an attempt to hold, but I do not even have memories, except of the pain and shock. My loss is the front-page of my brain every time it gets turned on, even if many pages are running at the same time. Oh, you have no idea what it is, how it is, to live life like this.

This invisible boundary exists. Sometimes attempts to erase this invisible boundary are made, like, “I know, my grandfather died five years ago. We were very very close.” Or, “Our pet toad died last week, it was really devastating.” But no, it is different to have a grandfather die than a baby die (and I do not even have the strength to think how devastated I will be when my beloved grandmother departs one day). Yes, any death is a big loss, including the death of a pet toad, and no accountant or mathematician will be able to put a value on our losses so we can compare.

But the loss of a child is way too different. Aches very different; hurts very unusually. The loss is a very intimate one, tied to our bodies. This child was once a part of you. His heartbeat was beating inside of you, with you. You fed him, nurtured him, curled up to sleep with him. You made promises to show him the world and to shelter and protect him.  And so a baby loss is very different. Unfortunately, the pain and insanity experienced by baby losses can only be known by going through it personally. And I would love to ban everyone from entering the Republic of Grief. Forever. That place should not exist.

Grieving is a full-time job. The intensity of it varies by day and moments and it is not necessarily always hands-on. But there is no leaving it, just getting to know it so well, wearing down its rough edges, so that you can carry it more comfortably in your heart, without having to bleed every second. Grieving is done not just in the Republic of Grief but also in the “normal” world. In the normal world our grief looks different, and our grieving is done differently.

And it creates invisible boundaries.

eight short words

Three years ago.

It was three years ago today I left the hospital for the first time after nearly three weeks of bedrest.  I'd been airlifted in during winter's last April gasp, but in my hermetic isolation in ye olde Craftmatic, the ground had transformed into a mushy carpet, spongy with sprigs of green poking through it.  I felt like Rip Van Winkle, utterly out of time.

We drove out of the city, to the old tower on its outskirts, the one I'd climbed as a child every time we visited.  My legs were weak and I walked gingerly.  I was not in pain, per se...just timid, afraid I would break.  The tower was closed, too old, too dangerous to be left open for tourists any longer.  I stood in front of it, staring, as if I looked long and hard enough I might catch a glimpse of a younger me, might disappear with her into a different time, any other time than this.

She did not materialize, that former self.  And I realized, viscerally, that she never would again...that there was no going back.  I had stepped off the side of my own flat earth.

I turned in the rain, then, and tested my footing on the slippery bank of overgrowth there that leads up and then down, eventually, to the harbour.  I climbed a little, until I was alone on a low ridge, looking down through the brush on tiny sailboats, seabirds.  And when I was sure I was far enough away that no one could hear me, I spoke into the wind, and spoke his name for the first time in the thirty-six hours since he'd died.

i had a son.  his name was Finn.

It was only a whisper, spoken to raindrops.  But I knew it might be a very long time before I had the courage to say those words aloud again, to risk exposing the gaping wound I had suddenly become, to risk being that crazy lady talking about her dead baby.  I knew too that I needed, desperately, to mark him on the world, to tell someone of my joy and my pride in him, of my sorrow, to tell that he had been here. 

My tears mixed with the rain and those eight words echoed.
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

It was only in the year and more after his death that those echoes found expression anywhere, for me.  On my blog, I began to carve out a space in which I could say his name, lay out sides of my parenting experience that I had no way to speak in polite company.  I felt exposed, but freed, too.  And in finding ways to incorporate Finn's story into my own narratives of myself as parent, I slowly became, once more, a version of whole.

Of the six of us here, I am the furthest out on this road of grieving and healing, the one whose loss is the furthest removed in time.  I am the one whose firstborn died, who went home both a mother and not a mother.  I was utterly changed by the eleven hours of my son's life, but the disconnect between the internal sea change of becoming a parent and the external lack of anything to show for it...that sparked its own particular grief and isolation.  I am the only one, yet, who has had another child born since my loss, and perhaps the only one who has had another loss in the interim.  I am proof of survival. And I am grateful to be in the company of these woman here, sister Medusas and friends, all of us with our stories.  

My name is Bonnie.  I had a son.  His name was Finn. 

Welcome.

Conspicuous, and not

"Does Monkey have a brother or a sister?"

I consider the source, all three some odd feet of him.  Jake, the skinny kid from my daughter's pre-school, all eyes, the kid who seems to be carrying a torch for her, still, nearly a year after she said her pre-school goodbyes on her way to discover the bigger world that is kindergarten while he stayed for his final year, prisoner of his inconveniently young age. He noticed me where I was crouching into my chair, awaiting my pickup order in the neighborhood Japanese place while he and his family were wallowing away time having already placed their sit-down order.  He asked me first where Monkey was, then something else, and then, finally, THAT question.

His parents, having followed him over to my corner of the universe, now tense preemptively. They are nice enough people, but I can't tell whether they tense because they feel bad for me or because they are afraid I will answer truthfully. I don't know what it is Jake wants to hear either. He might be looking for a validation of a memory he can't explain, or he might just be asking about something just about every other kid he knows has.  Or he might remember something, Monkey talking about her soon to be born brother maybe, or maybe about her brother who died. Jake wasn't even four then. Can he really remember? Does he know what death is? I decide, eventually, that it is not my place to introduce him to the concept if he is not, by chance, familiar. Monkey's good friend and the daughter of our close friends didn't know what it was, and was trying, so hard and for so long, to construct an explanation that didn't suck this very much. So I decide it's not my place to educate, and I answer "No."

The truth is, of course, that Monkey has two brothers. A, the baby who died fifteen months less one day ago inside of me, and this new boy now in my belly. Jake's parents glance at my midsection, or maybe I am just paranoid. Either way, I am not about to make an announcement while I await my order. I am simply not in the mood. But it also means my sons, both of them, remain invisible, and my daughter, in her apparent only-childness, remains conspicuous. After the big ultrasound, walking down the street and chatting, me wrapped in my voluntary pregnancy disguise device, aka my big shawl, looking for all the world as a mother and her only child, Monkey, in response to nothing I can any longer remember saying, said with the air of a huge discovery and equal measure of happiness "But mama, you have three children."

Yes, yes I do. As jarring and scary to accept as that simple statement is, in my heart, I very much have three children. In the eyes of my religion, too, religion which allows full burial rites and full rites of grieving for fetuses over 20 weeks gestation, and which, therefore, has to acknowledge my younger son whatever happens with him from now on, I have three children. Even in the eyes of the law I have three-- as of nine days ago, same 20 week dateline, this new baby can no longer be considered a miscarriage.  And yet, I know full well people in general don't think like that, they don't understand. Even allowing myself to own this statement is terrifying, for it opens me up, somehow more realistically, more viscerally than before, to having to accept the possibility that things visible might remain the same, that we may lose again.

Medusas, though, medusas understand. Here I don't have to keep looking over my shoulder, wondering how others see me. I can both talk about allowing myself to love this new baby, despite not knowing whether he is coming home, and about not wanting or accepting congratulations because I can not let this part of the guard down, and I can't seem to want to let the people who think pregnancy automatically equals full-term, happy, healthy, live baby off the hook.  Here, in the woods, among my snake-haired sisters, I can take these steps I am discovering I need to take-- tentative and contradictory steps into inhabiting this mother of three persona. I need to learn to be her, whatever her visible score is. 

So thank you for being here. I am sorry you have a reason to come by.  What I learned in the last fifteen months is that we need each other, for sanity checks if nothing else. To rant and to rave, and to listen. To drink, to pour. To sit in silence. Welcome to the woods. Stay a while, will ya? I hope you do.