The Chill

I love this time of year, right up until the moment
when I feel the chill in the summer eve.

The back of my arms legs neck, the slight scent of decay.

We're bright and beautiful in the summer sun
and then nightfall
and night breeze
and the darkness spreads around me.

We fucked up last year.  We didn't prepare.
Too consumed by the stunning child in our haunted lives
the rage and sadness and death and madness
snuck up, as only memories can do.

Five years without Silas.
A blazing son on his way to his amazing birthday
that instead is merely anniversary.

That first chill of late summer orients my soul.
Distracted by the wild life and breathing love
I suddenly feel exactly like the night we collected the birthing tub.
The indigo evening, the creaking crickets, the harbingers of doom;
they are now his silent calls made mine, made into
the broken sounds of hope stilled, that future killed.

I love this time of year,
but I cannot breathe in the gorgeous evening summer breeze
as my love for Silas falls from my wet, silent eyes,
and I die a little more inside, again,
wanting him quietly, deeply, desperately as dusk settles.
Waiting for his breath I sit still,
chilled to my bones in the sweet summer eve.

~~~~~

Please post a poem or prose rant to your lost child.  My son would have been five years old on Sept. 25, and instead I just get Fall.  What do you get?  What have you found?  What can any of us do about being part of this tribe?

friend

I lost a few friends after George died.  Well, really, they were in the process of being lost during the five weeks that he was in the process of dying and that I was in the process of changing into something different than before.  For those weeks and the ones immediately following, phone calls went unanswered and emails went unreturned.  Our previously close relationships changed into something else, something not anything anymore. I was taken by surprise by the change but I probably shouldn’t have been.  

...

Melissa made the drive to the hospital from across town after work.  She brought a board game and we played scrabble on my hospital bed.  Our laughter temporarily filled the space that the thwump-thwump of his heart tones normally took up in our room.  Nurses, who were as constant as my shadow, mostly left us alone and for an entire hour I felt almost normal again.

...

I can look back at my life and divide it into discrete periods, each one associated with a different version of myself.  Each Brianna, similar in some ways and completely unique in others, was surrounded by a relatively distinctive set of friends.  Adolescent Brianna and Teenage Brianna had some friends in common but they mostly faded away once University Brianna made her first appearance.  University Brianna evolved into Adult Brianna and the story repeated itself; friends came and went.  Throughout all the versions of myself over the years there have been a few friends that have remained steady: veins of marble in the limestone of my life.  For the most part though, friends have come and gone with time. 

...

The necklace that often hangs from my neck is a secret between Jennie and me.  A delicate gold band imbedded with a single diamond, a gift she gave me immediately after George died.  “Your laughing star in the night sky,” she told me. “Remember the Little Prince.”

...

As I’ve changed -or maybe as my friends have changed- so have our relationships.  Sometimes we’ve stayed buoyed to each other and sometimes we’ve floated away, each pushed along by the tide of our own lives.  The friendships that have stuck and have followed me through my life despite all the changes, both theirs and mine, are the ones in which we’ve continued to find new places in our lives for each other. 

 ...

Natalie and Marc flew out for a long weekend after he died.  We went to the beach and to a karaoke bar.  We stayed up too late and drank too much red wine.  They ate Korean fried chicken with us even though they did not eat meat.  They listened.  We talked and cried.  They remember our son…still. 

...

I am not the same as I was four years ago and neither are all of my friendships.  There is no more animosity for the ones who could not stay but there is so much gratitude for the ones that did. 

Tell me about the people who stayed, the people who were there to abide with you.  Tell me about your Melissas, Jennies, Natalies, and Marcs.  I want to hear about the good hearts and the souls who have suffered right along with you.  Tell me about the ones who have continued to love you even as you’ve changed.

vacation

photo by Garry - www.visionandimagination.com

I walked on the black-sanded beach by myself, waiting to come across a large carcass of a whale or ship, something broken and empty, like me. Here it is, I would think, the perfect metaphor for my grief. I would climb it, I imagined, examine it, and take a piece of it home. "You didn't die in vain," I would whisper. "I will remember you." And in that moment, the inextricable link between all creatures would be known to me. Nothing like that happened.

I had never traveled sad before.

After my daughter's death, I fantasized about moving away to somewhere very warm and beautiful. Life is too short to stick around New Jersey. Or maybe this time, when we didn't have a newborn to care for or money to be spent on her, was just the perfect occasion for us to travel the world for a while. We could leave this terrible place where babies are stillborn and you can't make a left turn. Eight months after my daughter died, we packed up our grief and headed to my mother's country, Panama, for ten days.

Some days, I was ecstatic, begging to travel long distances through the country for the possible glimpse of a sloth, or totally jazzed to hit the fisherman's beach to bargain in Spanish for some fresh catch. I bounced on the balls of my feet, clapping my hands like a motivational speaker. "Come on, people, those monkeys aren't throwing poop at themselves. We've got a jungle to trek." Other days, I could barely muster a walk out of the bedroom. I woke up several times each  night thinking about the dog or my father, wracked with guilt and overwhelming anxiety. Something. Was. Wrong.

The other thoughts in those hours of the night were how far away this country is from my daughter's ashes. Lucy's death seemed so small and long ago, like a dot I saw on the tarmac of Newark as our plane arched toward Central America. Oh, but I packed her death. It ached in my every joint, in every inch of my being. Some days, every activity seemed rather pointless or overwhelming or both. "Meh. I'd rather be sleeping."  And the family would leave as I read books and wept uncontrollably.

And I remained cold. Eight degrees off the equator, I shivered in the sun. I wore a sweater most nights, sometimes during the day. I couldn't get warm. It had been like this since Lucy died, not being able to feel warmth.  I carried a bit of winter solstice in my body now.

+++

I cried during very chaotic turbulence, because what I didn't dare speak before my trip or during, was that I was convinced I was not coming home from Central America. Riptide. Hanta virus. Panamanian drivers. Mud slide. Pool accident. Infected finger. Lightning. Freak machete accident. The ways in which one can die on a vacation are surprisingly varied, interesting and around every corner. I sent emails to all my people, "I will always love you." The pilot actually came on the loud speaker on our return flight to say that we may have to make an "emergency fuel landing." This is it, I thought. I was the one with tears in my eyes and hand raised. "Uh, is that emergency landing because we have no fuel? Or is that a landing to get fuel? Could you just clarify the emergency part?"

Once you are on the shitty end of statistics, that small stretch of number is your homeland where no death scenario is too far-fetched, wild, or out of the realm of possibility. I even imagined different ways to be imprisoned in a Panamanian jail for being at the wrong place at the wrong time during a drive on a desolate piece of highway.  And my living daughter seemed a step away from death too. Sometimes I just cried, not because I saw Beatrice's imminent drowning, but because I wanted Lucy to be in the pool with her sister and her father, bouncing and splashing. I hate seeing Beatrice without her sister. My husband without his daughter. The world without a little giggling girl.

+++

There was part of me that imagined this trip as something healing, something different than it was. I tried not to build it up or imagine it being a vacation from my grief. But I admit part of me felt like maybe a change of scenery would change my grief. Just a respite from the exhausting heavy weight of it. Maybe like Atlas passing the world to Heracles for a brief minute just to stretch the shoulders. How could I not be happy in such a beautiful place? But the pure exhausting nature of grief amplified the ugliness inside me and the beauty of everything else. Lush green and grief. Moss and anxiety. I looked out of our room onto the great expanse of the Pacific Ocean, watching the sun set, and still, I was so fucking sad. It's easier to be sad in New Jersey. You are supposed to be sad in New Jersey. This was just another shitty day in paradise.

+++

When we walked in our house, I walked straight to her urn. Why hadn't I taken it with us? I stared at it for fifteen uninterrupted minutes, I missed home.  I missed her (which had nothing to do with home.) I missed grieving her. Home represented non-judgment. No expectations. Just grief in whatever form it came. And yet the vacation was beautiful, dare I say, worth it. I listened to the story I told to other people about the vacation--epic hikes through the jungle, watching twenty hummingbirds fly around my daughter, lying on the beach, rolling a cigar in a factory with my cousin,  spotting a sloth in the jungle, or discovering a moss-covered wall and waterfall.  Those were amazing moments. The truth is when I spoke of my amazing days before, they have really always been an amazing moment or two enveloped by the mundane. After my daughter died,  they became amazing moments enveloped by the grief. And they are, in their own way, sometimes happier. Maybe the juxtaposition with grief makes them happier.

If someone asked me many years ago to describe how both my best and worst moment could be wrapped up together, I couldn't have imagined what that could possibly be. Then I birthed Lucy, knowing she was dead, both so incredibly tragic and beautiful. Her birth, a peaceful moment of agony. And so this first vacation after her death, an agonized moment of peace.

Have you traveled, or been on holiday, since the death of your baby? What was the experience like? How has grief changed your experience of travel? Or how has travel changed your grief?

Singing Her Home

I wrote this song a week and a half ago, on a Thursday night. The heat had been terrible. I was irritable with everyone in my house, and they all wanted something from me, humans and beasts alike.

To play princesses.
To change bulbs.
To fetch snacks.
To change doll diapers.
To be let outside.
To be paid attention to.

Simple, reasonable, everyday requests, but a wave of snarl was building in me. I knew it was going to crash onto the people I loved. I knew I needed to be alone, but in my day-to-day, there are few, if any, opportunities to be alone. It is often during these spells that I pick up the old scratched and weathered Harmony acoustic guitar that always waits for me in the corner. That battered instrument is my force field. My invisibility cloak. See, I am a songwriter (or, as Bobby D once put it, a “song and dance man”) and in my house when I pick up my guitar and set myself to recording something, it is known that everyone should give me some space. I suppose it is my way of being alone.

On this night, I knew the heat was getting me again. The heat of remembrance or PTSD, whatever you’d like to call it. Roxy was coming on over. I was 3 weeks away, yet, from our Roxiversary, but the heat of the summer was bringing her early as it often does. Not that she has far to come. She lives right next door to every thought, waking and dreaming alike.

Roxy, nearly 6 years dead, wanted my attention too, so I sat down and wrote this song.

I It wasn’t Abilene or the cinders
It was the way she shut her eyes
And I couldn’t tell how she may have felt
It wouldn’t change a thing tonight
I guess we parted like a river
Some of us left and some of us right
I took a drink of her, she took a drink of me
And it was time to say goodbye
I’m singing her home
I’m singing so everybody knows
They better leave me alone
Sometimes the night can close the distance
And it can turn you like a knife
I had a dream of her and it was alright
But it wasn’t, wasn’t really alright
Shiver my bones
She is the ghost I can’t let go
I can’t let go
I’m singing her home
I’m singing so everybody knows
They better leave me alone
They better leave me alone
They better leave me alone

Does your grief cause you to want to isolate? How do you create space for yourself?

After The Bear Hunt

The discussion boards for Glow in the Woods are truly that warm, welcoming campfire to so many of those who find us in the darkest of journeys. Throughout Glow's five years, the boards have grown tremendously. We are so grateful to how graciously our community continues to abide, listen, and support one another. Through our growth and feedback from our community, we felt it was time to expand and add another board--Parenting after Loss. Whether you were parenting children before your loss, or parenting a child born subsequently, Glow felt it was time to create a space to talk about the specific issues around parenting and grief.  We hope this space will be welcoming to those in all stages of grief and parenting. As always, if you have any suggestions or feedback on the community section of Glow in the Woods (the general board or the ttc/pregnancy/birth after loss board or our new board parenting after loss), please contact us here. We'd love to hear your thoughts. 

Today, we are thrilled to introduce Merry of Patches of Puddles as our new Board Moderator and a regular contributor. Merry's support and love permeates all the nooks and crannies of this community.  Merry's fifth child Freddie lived for eleven days in SCBU before dying of pneumonia. She is parenting Freddie's little brother and four older sisters in the UK. We are so lucky to have her keen eye, compassionate heart, and eloquent voice among ours. --Angie

“You can’t go over it, you can’t go under it…Oh no, you have to go through it.”

So say the words of a rhyme my children sing; lines that have played in my head since I stepped upon this grief path. The Bear Hunt; the long, difficult, fearsome journey.

I tried to find a way to scramble over grief, glide upon its surface and slither down over the other side of a glass dome that reached skyward, holding my baby and my pain inside it. I pledged to write him out of my mind and memory, believing I could escape the trite truisms of the steps of grief. With no intention of reaching acceptance, I relished denial. Busy, stretched beyond measure by the damaged children surviving Freddie alongside me, I pushed my tears to the quietest moments, the dead of night, the bathroom, lonely car journeys of the parent taxi trail. In the daylight, fear and pain on the faces of his sisters when I cried was too awful to behold. Keep it together, put on a brave smile, hold them when they cried. Just keep swimming. Just keep gliding.

Just keep scrabbling desperately to hold on to the life that had been ours, when we could count our children without confusion. When we could hold them all in our arms. When there was no space on the sofa, no space in our hearts, no empty spot between us all.

And then came despair. Choking, horrifying, utterly consuming and black as night and twice as bitter, despair. And I tried to go under it. I told the world and all her wives of my lost son, just to see the shock, see the horror, see the recoil from all the checkout women and frightened postmen who wished the crazy lady away. Begone, with your foul, mud soaked, horrifying grief. Get over it. Move on. Be on your way with your inappropriate love for a boy made of ashes. His loss rose up between us all, the husband and girls who went on and relearned a smile and the mother, woman, wife and now barren and broken part-human who tunnelled through days and wondered how to make another life. Month after month, I sunk beneath blood and anger and disbelief as a never birthday loomed and a life mourning a baby stretched impossibly - broken - in front of me.

You can’t go over it.

You can’t go under it.

Oh, no… you have to go through it.

Through the mud. Through the tears. Through the river that takes the feet from under you. Through the grass that sways above your head, disorientating, blocking the view, all you can see. And all the time dragging my broken children along with me, committed to the path I had chosen - the hunt I had wanted - which was punishing them so utterly.

The work and effort of grief, a journey, a slog, all to find a big black cave and a big black bear and turn tail and run for home, retracing steps, trying to find the place where once you were, trying to keep my other children safe as they bumped and scurried alongside.

And then… and then… lying on the bed, chest heaving from the chase, bones exhausted, tears all cried out and heart hammering. A memory of horror and fear and the jawed yaw of utter destruction, of unimaginable pain, right there, in your mind’s eye.

Slipping… sliding away.

A memory.

He was here. One of us. I do remember him. We did love him. I do love him. He was a person and he is – always - my boy. He was also a journey, one that broke me on every step and which brought me home, but not to the same place.

And, having gone through it, I tell you a truth now. Life goes on. Not the same life. Not the same person. Not scarred exactly but somewhat brutally reshaped.

The journey, now part of me, has the air of a badge of honour to it. I would not be without it. Here, in the unasked for afterglow of grief, I find myself, us, a family, with every decision we make infinitesimally altered by the knowledge that one of us can die.

The lens is different. Everything I do is tinted by the grief lens. My girls go out and I hope to see them safely back. The telephone rings and I hope to not hear of death. A baby is born and my head reels that people ask for weight and gender, not first breath safely taken. My child, admitted to hospital, makes it safely home. I am stunned by survival. The car breaks down, expensively. Nobody died. Our livelihood is precarious. Nobody died. The toddler ballpoint pens the expensive sofa. It’s just a thing. Nobody died.

This is my story, 3 years on. Mine is a journey complicated by my travelling companions; the living children I brought with me, guilt that they know grief, regret that they see fear in my face when illness strikes, sadness that they fumble answers to simple questions about brothers and sisters. Nothing has been the same for them since Freddie died. They do not have the same mother, or father, or family. Everything is a fight to weigh the knowledge of loss against the right to independence. They trod the terror of the subsequent baby path with us and their life is changed because of that.  And his life, the precious princeling who came after, is a kaleidoscope of the fragments of loss, love, longing and fear and joy and wonder that he has as yet no knowledge of and cannot change.

I am not the mother I was. I am twice the mother and half the mother, a patchwork of unwanted experience. I am surviving the hunt and the fear, but I will never be home, not quite.

Where are you on your grief journey? Have you tried to move under it? Over it? Tell us what it is like to move through it.